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april1987

Atypical Parkinson

4 posts in this topic

Hi Dr Okun,

 

Trying to find support  for atypical Parkinson's syndrome,  there is a bunch of information and support groups for idiopathic Parkinson's.  I have access to up to date at work which has supplied me with information.  I have been suspecting that my husband had MSA from the get go after doing my research, he had several red flags and continues to have more them.  Now the doctors are finally saying this is probably not idiopathic Parkinson's.  We are still increasing the sinemet, but the last time we did that he really started to freeze bad.  He is only 55.

 

Thanks for your input, you have been very helpful along the journey and I love your new book!

 

Blessings on your work

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Thank you first for the kind comment regarding the new book on Parkinson's disease.

 

I have a colleague (Dr. Nick McFarland) that runs an atypical parkinsonism clinic at University of Florida and it covers MSA, PSP and others.  Irene Litvan has a similar clinic at UCSD.  Also, Nick has written some free information pages and booklets on MSA, PSP these syndromes

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Thanks for the information and your timely response, your service to patients is truly amazing and I wish ever medical student would have to read your book!

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Thanks, I have heard many medical students are now using the 10 Secrets Parkinson's book.

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