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Unified Parkinson's Disease Rating Scale (UPDRS)?

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UPDRS total score: 56 (out of 199 possible points)

Mentation, Behaviour & Mood: 5 (out of 16 possible points)
ADL: 14 (out of 52 possible points)
Motor examination: 33 (out of 108 possible points)
Complications: 4 (out of 23 possible points)

This was while on meds. I also had all of this testing done as part of my pre-DBS workup last fall, and seems to be pretty close to what they came up with. I was approved for surgery but decided to hold off a couple years for several reasons, one of which is that I want to do some backpacking while I still can.

Kevin

parkinsons101.org

Edited by RNwithPD
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I am between 16-20....I go to my yearly evaluation this week and hoping I stay there!!

 

LAD

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There is a website, patientslikeme.com, that has the UPDRS as well as the Hoehn & Yahr scale your doctors use.  You can track your symptoms over time. They even have a handy printout you can take to doctor visits. Check it out!    

Dianne 

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14 minutes ago, Beau's Mom said:

There is a website, patientslikeme.com, that has the UPDRS as well as the Hoehn & Yahr scale your doctors use.  You can track your symptoms over time. They even have a handy printout you can take to doctor visits. Check it out!    

Dianne 

Thank you, Dianne, for this very useful information.  I had never heard of websites such as patientslikeme. It sure will be appreciated by all.

Mireille

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In 2013, when this thread started, my UPDRS score was 42 without meds..  Now, 5 years later, my score is 32 with meds.

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UPDRS total score: 20 (out of 199 possible points)

Mentation, Behaviour & Mood: 3 (out of 16 possible points)
ADL: 5 (out of 52 possible points)
Motor examination: 10 (out of 108 possible points)
Complications: 2 (out of 23 possible points)

 

Meds definitely help a lot.  Some scores would be worse even on Sinimet IR rather than Rytary.

Edited by stump

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I got an 18!! Meds were worn off ....exercised in the waiting room since I was the last patient and my doc was running behind ! 

 

LAD

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