Jump to content
helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    
johnnys

Reverse roles

Recommended Posts

Hi,

Ive had PD now for five years.My condition is pretty much drug and exercise controled and I use the method from Dr. low to maintain my emotional health.

My spouse has been ill since Christmas.She is suffering from a bad case of diverticilitis.She has been in the hosptial several times and hopefully now she wont have to go back unless she needs surgery.

Ive been taking good care of her and especialy advocating  with her healthcare.one thing that has helped is i did alot of investigating her symptoms by googling all her conditions and drugs.She had alot of back pain spreading down into buttocks and legs.She also had burning in her shoulders and neck.i found simular cases even though her doctors were unaware.Now she is home and the pain is managable with pain killers.

Now before I had PD I doubt I would have had as much emathy for my wife.I mentioned to her doctors I knew all to well what uncontrolable pain when I had dystonia.In dealing with her providers I had alot of temper but I didnt express it and things improved with good communication.Express your feelings but supress your temper.

There are pluses of having PD and sufferers can be good caregivers. Of course i wouldn't have been able to do as well without Dr Low and his method.www.lowselfhelpsystems.org

I hope all you look into Recovery Inc.if your looking for mental comfort.

www.lowselfhelpsystems.org

John

Share this post


Link to post
Share on other sites

I can identify. My husband and I have played "trading places" a couple of times since we retired. We figure we just role play the best way for the current situation.

Share this post


Link to post
Share on other sites

I can definitely identify. Although my husband and I are  "young" --  47 and 50 respectively, we are both now dealing from chronic illness. I was diagnosed with an illness similar to Lupus 3 years ago and my husband cared for me, now 3 years later, I am doing well on medications, and we discover that he has PD. We can't both help but wonder what the future will hold -- Who will take care of whom?  Hopefully the trading places will work, and we won't both be dealing with a setback at the same time. At least we both will be able to have empathy for one another. Thank God we have our faith, our family, and  a strong marriage. With God we can deal with whatever lies ahead.

Your wife is blessed to have a caring husband. I hope she is feeling better soon!

Share this post


Link to post
Share on other sites

This makes me wonder how many of us here, are in a similar situation, of dual diagnosis of both partners in a relationship. I continue my fight against my PD, while my DW is just beginning her journey with MS. What do you do when your primary caregiver is DX'd with a disease as chronic as PD?

Share this post


Link to post
Share on other sites

A lot of people on the forum have noticed their PD came during a time of great stress.   Caregiving is stressful so I'm not surprised that bigger health issues can come up as a result OR just a timing thing that you get sick and he/she get sick after you.  It just sucks either way.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


×