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Bills

Those that FEEL unsteady on there feet.

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Did u ever have days when u didnt feel unsteady, like u felt normal?... Or was the feeling always there?

 

i know we are all different but just want to know that when it comes to unsteadness if its mostly the same across the board.

 

im not diagnosed and im trying to figure things out, if my unsteadiness is related to pd.

 

thank u.

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Bill,

 

My balance issues are not from feeling unsteady but rather my right side is just a tad bit slower than my left. This combined with my drop foot (nerve damage in lower back) makes it look like I'm drunk sometimes. This usually only happens when I'm a little low on dopamine.

 

Hope this helps a little.

 

Dave

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I usually stand to put on my pants. Put one leg in then the other. But, it's starting to look like I'm dancing because I lose my balance and hop around. Lately, I've fallen into the wall. If it wasn't there I would have fallen on the floor. It's much harder to balance on my right leg, near impossble. That's the leg with the stiffness and tremor. I'm hoping my new exercise program with help. If not, I'm sitting and putting my pants on. I was diagnosed with PD April 2015.

 

It seems to me that being unsteady could to be do to any one of a number of aliments. Best left for the docs to figure out. :-)

Good Luck.

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Bills,

 

Lately I've been feeling unsteady for more days than before.  My stress level is fairly high at the moment so I assume that is why.  Just last week I was feeling very strong and after my normal morning exercise routine I came home and during the course of the day felt energetic and 'had' to take a walk.  Felt steadier last week than this.

 

Hope that answers your question.

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I get the oddest sensation that my feet are slipping, or I am wearing shoes with 5" rubber soles that flex too much.  My arms tend to jerk, so it is noticeable to my wife.  Add any type of ramp and the feeling is worse.   It's both a balance and freezing causing issues.

 

I did have to chuckle about standing and putting on pants....  I remember when I could do that.  I used to balance my rear against a counter or the bed, but larger flat sitting area is better.  These days the ottoman is the best bet. 

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Unsteadiness is common amongst PD patients. The good news is that balance can be improved. They work on balance at every Delay the Disease class that I attend. One of the things we do at every class is to walk three steps and then stand on one foot. Once your balance improves so you can do that well, then you throw a fairly heavy ball up into the air and catch it while standing on one foot.

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Thank u for the responses.

 

Also did everyone who feels unsteady fail the balance test by the nuero/mds?

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I usually stand to put on my pants. Put one leg in then the other. But, it's starting to look like I'm dancing because I lose my balance and hop around. Lately, I've fallen into the wall. If it wasn't there I would have fallen on the floor. It's much harder to balance on my right leg, near impossble. That's the leg with the stiffness and tremor. I'm hoping my new exercise program with help. If not, I'm sitting and putting my pants on. I was diagnosed with PD April 2015.

 

It seems to me that being unsteady could to be do to any one of a number of aliments. Best left for the docs to figure out. :-)

Good Luck.

I am a leaner. I have to lean against something to put on pants or socks. My wife says why don't you sit down to do this but I would still fall over if there is nothing to lean on.

The doc ask me the other day about falling and told him I tumble it is like falling with style. Of coarse I have a big bruise on my side and leg where I fell out of a chair there was no tumbling this time I just fell backwards.

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I can still stand on one leg in the shower and wash my other foot without bracing myself, so I guess I'm doing okay. Still walk upstairs with a cup of coffee in one hand and a bowl of cereal in the other. My days of this may be numbered, but for now all is fine.

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Thank u for the responses.

 

Also did everyone who feels unsteady fail the balance test by the nuero/mds?

 

There was a test?  Never noticed.  HA!

 

My MDS is wonderful and probably all of 120#.  I didn't realize she would do a specific type of test.... and I just about clobbered her as I went over. She was so apologetic, but it caught me off guard with nothing to grab.  Boom!   Keep in mind I was a good 290# then, so even down to 270# @ 6'3"  I'm a big person.  

 

MM.. stairwells, I keep one hand over the rail at all times.  I can not navigate them trying to hold two items, even when fully "on".   Standing while trying to use the urinal, time for my Tai Chi training (plant both legs, breath in, breath out while keeping posture). 

 

At work I have a "looks like a starbucks cup" for my coffee.  Screw on lid with sipping hole.   I love it as it is stealth as you think Starbucks, not an adult sippee cup! 

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After reading some of the comments, I would like to add that I sit up against the back of the sleigh bed when getting dressed.  I have done the hop on one foot and topple over while putting my pants on.  One time my wife startled me and I hopped around the bedroom for a good 30 seconds before I went down.  Still haven't been able to live that one down.  I'm assuming I do well on the pull test, I usually take one step back before I gather myself.  I can't stand still with my eyes closed, hell I can't do it with my eyes open, but the bottoms of my feet are partially numb which is a contributing factor.  Some things can be traced to PD and some are because I have severe peripheral neuropathy in my legs below my knees.

 

Please remember everyone, not every symptom that you have is a result of having PD.  You should always get things checked out to make sure its not something serious.

 

Dave

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For the most part I am a sitter or leaner. I always test myself first and am so proud when I can stand on one leg and put 1st one leg and then it's a bonus if I can do the same with my other leg.

 

I think it's the combination of balancing and moving at the same time that does me in. I'm okay with standing on one leg and have controlled movement.

 

I think I might be a lot more balanced than others of my age though. (Physically balanced that is. :) :)

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So i'm going on 3 years of FEELING unsteady on my feet and I can't help but believe its related to pd .. I also get muscle twitches on my muscles daily.. the unsteadiness is worse in some days but its DAILY .. it effects my work.. I saw a MDS last year and he found traces of rigidity, this is what he said when I emailed him to explain in detail when he told me he found "traces" of rigidity.

 

 

 

"I am looking for rigidity . My examination revealed "trace" rigidity, which means it's barely detectable only when I have you perform a movement with the opposite side of your body. This finding by itself can be found in healthy people. I note it for completeness' sake, but by itself, it doesn't point to anything out of the ordinary".

 

He told me that he doesn't think its pd and he doesn't know what it is and to only return to him if something new comes up.

Edited by Bills

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I am caretaker for my DH who has PD. And considering the four main symptoms of PD are Tremor, slowness of movement, stiffness or rigidity and trouble of balance it could be possible. However, only your doctor can be sure of what might be wrong. 

 

It took two years and many various tests for my DH to go through before his Neurologist could be sure. Of which then sending him to various other specialists such as Physical Therapist, Speech etc etc. He is now at the beginning of Stage 5 with many of his symptoms.

 

He no longer can stand by himself, uses his walker or cane to get around. He also cannot just stand without holding onto something. I have to help him dress now. He can go to the bathroom with my assistance getting him into and on the toilet. He can eat himself but again with much assistance. I envy those of you who can still stand, walk, run and do those things as DH cannot do any of this. However, as mentioned only a Doctor and Neurologist can determine. And there are many other things that it could be. Wish you all the luck and hope things go well for you.

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