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New normal

This works for me...what works for you?

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Hi folks...RE : dermatitis

 

I recently posted a link re: psoriasis type dermatitis that frequently occurs with PD. Neuro said it is very common, suggested I see a dermatologist and specifically be checked for skin cancer.

 

As expected, the derm dr said I had dermatitis. I always smile within when I receive a dx like that...hmmmm ...in dr language that means inflammation of the skin. Yep, I agreed. I questioned him about the relationship of dermatitis and PD...and based on the link, I specifically asked him about research that skin changes can occur before PD dx...and may be used as a predictor of PD.

 

He said there is no specific relationship between skin changes and PD and prescribed cortisone cream.

 

HOWEVER, WHAT WORKS FOR ME:

 

I prefer natural remedies. I applied olive oil (extra virgin) to affected areas gently rubbing the area in circles with my finger tips. It removed flaky skin and by morning the redness was gone! So I figure it is a done deal. The areas on face re appear. I use the olive oil and it is remedied.

 

I have to say...I take a long time. If we sit for a movie...I might reapply the oil and gently rub the area for an hour. Now I have learned that if I end with a course wash rag gently rubbing off the oil in circular motions... it serves as an exfoliator leaving skin very soft. Skin is just as,soft as having a spa facial.

 

I hope this helps someone. I am not a doctor or medical professional.

 

It works for me....what works for you?

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Many of us have restless leg syndrome.. For years, I have had restless body syndrome. Usually when I go to sleep an energy starts building...hard to describe...but the energy builds in leg muscles and sacrum area...builds until it drives me crazy. I have to move to get relief.

 

What works for me is a yoga rolling tube...looks like a truck tire material about 4" round and 20" long. I put it under sacrum and rock the pelvis across it...the knobby surface feels like pressure points of deep medical massage or kinesiology. Works great for sciatic nerve spasm.

 

It works for me...what works for you?

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Here I go again....a new way for stretching that works for me.

 

Ooops, I have not been doing exercise routine. And I have the consequences. However, I still stretch...every chance I can. I use an exercise ball ....laying on floor or bed...with legs resting on the ball. While I read, watch tv, etc...I work the ball stretching legs or mid drift.

 

If I quit...rigidity returns next day...

 

Just sayin'...works for me...what works for you?

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Hi folks...RE : dermatitis

 

I recently posted a link re: psoriasis type dermatitis that frequently occurs with PD. Neuro said it is very common, suggested I see a dermatologist and specifically be checked for skin cancer.

 

As expected, the derm dr said I had dermatitis. I always smile within when I receive a dx like that...hmmmm ...in dr language that means inflammation of the skin. Yep, I agreed. I questioned him about the relationship of dermatitis and PD...and based on the link, I specifically asked him about research that skin changes can occur before PD dx...and may be used as a predictor of PD.

 

It works for me....what works for you?

 

I saw a dermatologist and she said that these skin problems occur in most PD patients.  She said that she could write a prescription, but suggested that instead of a prescription to simply wash my face with dandruff shampoo.  That's what I do.  I simply replaced the normal shampoo in the shower with dandruff shampoo and use it to wash my face.

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Patriot

Thanks for the tip have been doing since you posted washing face with dandruff shampoo and works great

Thanks again Bard

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I stole this tip too! I have to shower hubby and after shampooing I give the face and neck a good wash. Saves me time. When he gets cold in the shower his tremors are really bad, even tho it feels like a sauna in there. Any small thing to get him in and out quicker is a winner in my book!

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Patriot

Thanks for the tip have been doing since you posted washing face with dandruff shampoo and works great

Thanks again Bard

Funny cuz I'm lazy and have been doing head & shoulders for face in the shower for years.

 

I have recently discovered beard balm. It does a great job to stop the beard dander.

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Oddly, I can still play the banjo at local jams. Some nights things don't work so good, but most of the time it is like the old days. I play Old Time Mountain music for the most part, but I'll play anything anyone at a jam wants to play. If I'm having a bad night, I just play real quietly so as to not mess up the group. Everyone knows of my limitations, and they don't care, at least not yet.

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I do the PWR4life program and take dance lessons with my husband.  My MDS says your mindset and attitude are important in your PD fight.   

People who have a positive outlook and hope do better. Find what makes you feel good and stick to it!

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On 3/3/2017 at 3:34 PM, BillBRNC said:

Oddly, I can still play the banjo at local jams. Some nights things don't work so good, but most of the time it is like the old days. I play Old Time Mountain music for the most part, but I'll play anything anyone at a jam wants to play. If I'm having a bad night, I just play real quietly so as to not mess up the group. Everyone knows of my limitations, and they don't care, at least not yet.

Bill, is it rigidity, stiffness, or tremors that bother your playing the most? For me, my fingers and hands are getting stiffer.

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glad to help...next time you do it...close your eyes or say girls names of each letter of the alphabet....build those neuro pathways!

This is a great exercise..,I do it every day

 

Edited by LAD
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I started to get some dandruff flakes so I started using a dandruff shampoo.    The flaking actually got worse and the shampoo darkened the hair around my scalp and made it feel coated and look bad.  So, I put a couple drops of tea tree oil in my regular shampoo, put it on the crown of my head and left it there for about 10-15 minutes then washed my hair.  The dandruff is gone (it's been a month and still no flakes) and it also completely took off the build up on my hair from the dandruff shampoo. 

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 Tea tree oil is some amazing stuff.  It can help so many, many things.   I bought tea-tree mouthwash recently, though, and it was ghastly tasting.  Really, awful.

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So...with both of us having PD...and likely MSA...our world is changing.  Communication is harder.  What works for me is having responses already qued up..

instead of "WHAT are you doing!"........I say ......"How can I help you? ".   Kinda hides the panic when I see him walking the edge of a building.

""Whaaaat?"       Instead....... "I cant hear you."

"I have NO idea what you are talking about."......... instead......."That sounds like a good idea."

"I did not take your...."     instead......"Let me help you look for it."

"You've told me that again and again.."      instead......" I like to hear your stories"

i am serious.  Instead of having unkind and frustrating responses, I am creating generic responses all lined up to use...then eventually we get back on track.

works for me...what works for you? :rolleyes:

NN

 

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Much as I hate this hand tremor, I have to say it makes scrambling eggs much easier.  Only problem is keeping it in the bowl. 

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The tea tree oil has intrigued me.  So, yesterday I went to Ulta and loaded up.  I neglected to get a body or facial wash.  Any recommendations?

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MusicMan, sorry for not replying earlier, but I just saw your question. For me playing the banjo, my mail problems are fingers stiff when not expected, fingers just doing whatever they want, but the dementia side of my Lewy Body Dementia Parkisonian stuff means sometimes the names of songs and the lyrics just get lost in a fog. Not a big deal, but the fingers just seem to not work, hard to explain. Of course, if I get an upper body shake then that fairly well messes up everything. I can still play most of the time, and I just fake it if I can't play or remember words. If I'm jamming with others, they know my problem and they just pick up the open spots for me, unless I forget the song entirely before I've started, then that can pose problems if they didn't know what I was going to do. Keep on picking or strumming. Bill.

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14 hours ago, She-Ra said:

The tea tree oil has intrigued me.  So, yesterday I went to Ulta and loaded up.  I neglected to get a body or facial wash.  Any recommendations?

I'd suggest Jason's, after a search on line reading about tea tree face washes.  Just IMHO.

Would love to hear how you like the things you bought after you try them.

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Just a quick comment about tea - tree oil, since we all know I am all about animals........don't believe anything you read about using it on animals, either for skin treatment, bathing, or wound treatment, it is highly toxic to all animals.

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I realized today that I will only buy front-hook bras in the future. Not only do I find them much easier to put on, but so far, I can only find them in push-up style. I call that a win/win! :D

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I have discovered Coobies, which are bras that you put on over your head . They are extremely comfortable, and only cost about $20, but I am 70 and small breasted, so they might not be comfortable for someone who is better endowed.  But they come in all kinds of colors and patterns, and are fun to wear and to look at.  Another win/win for this old Parkie!  ;)

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Oh yes I used to buy those stretch over the head type bralette for my mom.  She would struggle with me while I got it on her that they usually ended up being inside out when I thought I was done.   Now she just wears jockey tank tops under her tees.  So much  more practical and it adds warmth and an extra layer of protection.  

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