Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    
Sign in to follow this  

"Dystonic storm"

Recommended Posts



About 1/3 of us with Parkinson's also have Dystonia.   Not the "storms" by more fixed muscles, sore neck. I joking call it a ocotopus that tries to twist my head off until my levodopa kicks in.


Personally I have never heard of the term Dystonia, until my MDS mentioned it.  Key item in my life was trying to hold a pen and write as it was a painful exercise.  I learned to use a typewriter as my hand cramped badly (age 7).   Later in life I dreaded  writing out a check at a grocery store (I'm older than ATM cards). Irony is I have very small part in widespread ATM usage. :)


I suspect you maybe asking with respect to DBS for Dystonia, which is common.  I had GPi placement of DBS for that reason, to help both Parkinsons and Dystonia.  Time will tell.

Edited by TexasTom

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

Sign in to follow this