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cbutters

What Are The Chances?

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cbutters    1
For the last 2 and a half years I have been experiencing some strange symptoms. A stiffness in muscles on the right side of my body was the worst of them. Started in my calf, toes and moved upwards. Moved to my shoulder and hands. Got to the point where I couldn't squeeze with right hand or bend toes. Leg was so stiff I limped couldn't lift leg enough to put on pants without pain. Writing was difficult as was walking. I was also experiencing twitches or tremors in my hand/arm. Was fine if it was busy, but appeared when not doing anything. Neurologist said it was different from a typical PD tremor. He was unsure what issue was but gave my Sinemet to see if it helped these symptoms. It has been 2 weeks since I started.

It has helped a lot. Tremors have completly disappeared and rigidity is much improved. What I am wondering is does this mean that I am likely to have PD? Go back to see Neuro in 2 weeks but quite paranoid about results.
 

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Beau's Mom    1,053

Welcome, cbutters.

 

A positive response to a Sinemet trial is an indication of PD. Your doctor will have to make the diagnosis, of course. I just want you to know that there is still the probability of good quality of life after diagnosis. You didn't indicate your age. Young Onset PD progresses much more slowly than PD that doesn't appear until late in life. There will be changes, some of then harder to accept than others. I have found that for the most part, we are a resilient bunch. Fear is quite a normal response as you wait for a diagnosis; I remember saying to my boss that I sure did not want to have PD while it was still uncertain for me. 

 

You will be among friends here while you wait and as long as you need us after your next appointment. Yo.u are not alone. I'm glad you reached out.

 

Dianne

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cbutters    1

Thanks for the kind words Dianne.  I am 45 years years old and this is coming as a bit of a shock, but still need to wait for the final call from the doc.  In a way my wife and I are a bit relieved it is PD as she was worried it was ALS.  Will hopefully know more soon.

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