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ScottSuff

Follow the DBS Road

16 posts in this topic

Decided to blog my journey with DBS, if anyone wants to follow along.

 

Scottsuf.blogspot.com

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Scott: 

 

Great posts!  Another aviator on our forum is Dancing Bear who was in the Air Force as a pilot and then flew commercially.  Just FYI, in case you would enjoy chatting with a "brother."  :-)

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I'm 12 days post Stage III surgery (Vanderbilt ) with a couple questions. I was warned about stiffness in the neck but this feels worse than I thought might hit me. So, has anyone else experienced a stiff and tight neck after neurotransmitter insertion, from the extension lead having scar tissue build around it? I move my neck around frequently. When I get up I can turn my neck a full 90 degrees to the right, but to the left I might be able to get 60. What did you do? What was your outcome (positive I hope)? Sent surgeon pics, he thought it would resolve itself basically but repeat pictures next week.

Thoughts? Comments?

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blog update

scottsuf.blogspot.com

 

 

Great job of explaining it all, Scott.  I would think this would be extremely helpful for those who are facing DBS and have lots of questions. I hope any issues (like your stiff neck) resolve/get resolved and that you get the very best result over all.  Very interesting to journal us through your surgery!

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Scott, that sounds awful to be going through.  I hope they can pinpoint the specific pathogen and knock it out quickly for you.  in the meantime, rest lots and drink lots of fluids, as I'm sure they are encouraging you to do.

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Scott, you have really been through a lot with this.  Hang in there.  It sounds like they are taking good care of you,

and your wife sounds like she's been such a tremendous support.  That's so important, and a real blessing.

Will pray for you right now, and please keep us updated.

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Sorry to hear of the infection.  i am recovering from DBS surgery and this week andI I certainly do not want to repeat any of it.  Like you said... it is good they caught when they did.

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Murray, please keep us updated on how you are doing, too.  You've had a very challenging and difficult road, for sure.

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Thanks.  I don't want to take away from his thread, and I have been updating things on my DBS Screening thread.   I am due for a follow-up on Tuesday.  I have an appointment to get programmed in about a month.  It is certainly a challenge to go through the surgery, but I keep hearing the benefits are well worth it..

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