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Jgard

DBS

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Usually DBS itself does not cause dystonia or freezing of muscles.  Usually it is Parkinson disease progression.  However in some cases the location of the DBS lead or the programming/medication adjustments can contribute.

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Thank you for your reply. It has been a year since my last DBS surgery. Shortly after my R brain DBS as hooked up, I began to feel a tightness in my L arm and my wrist and ekx

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A year ago, I had DBS surgery, first on the L brain, and a couple of months later on the R brain. Shortly after the R brain was connected, my L elbow and wrist became bent. To complicate matters, Itripped on my L middle finger, fracturing it.. Since then, that has healed. I have had OT but my arm remains bent in a dystonic position. At times it freezes up,more and gets very psinful, at times. Last week I fell on the stairs on my back and felt no pain. I did not think much about it and about walking 30 min on the treadmill as well as 30 min. on my recumbent bike. The next day, my back was pretty stiff. I am sore from where I landed an on up to my L underarm. Since I have limited use of the L arm, my R arm feels overworked. Can you make any sense of this? Could this merely be anxiety issues.?.

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One thing you may want to do is verify the location of the right DBS lead for the left arm symptoms.  Is it possible that it is suboptimally placed and this has led to the tightness (lead could be too close to internal capsule).  Sometimes turning the DBS lead on and off can help you determine if it is stimulation induced or not.  Good luck.

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