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TexasTom

Having fun with DBS & Blood Pressure

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TexasTom    706

Getting ready for my MDS appointment for programming session this morning.

 

I was reviewing my notes last night on non-movement issues, and realized I have had ZERO

tremor on the left side. None.  I had forgotten my 6pm Sinemet, so at 8pm it had been six hours.

I was feeling great, some tremor on right side.

 

So like any good Engineer making notes and writing up current status, I turned off my DBS.

Nothing immediate happened. Hmm, maybe this is the honeymoon period? My right hand started

up with a pretty good tremor, but I can manage this. I started feeling really flush, which I hadn't noticed

in some time those fluctuation.   I had my BP cuff, took my blood pressure. 159/98.   Oh crud.

 

No voice, wasn't able to yell for my wife. My faithful Golden Retriever was outside, so I couldn't get her

to help by "get Mom".  Starting perspiring and really shaking pretty bad by the time I got my DBS

turned back on. I really had no clue it would affect me like that!

 

Took a few minutes to get the remote and turn myself back on. My wife took one look at me and

realized I couldn't get out of the chair. Took about 15 minutes to get back to normal.  BP had

settled back down to 110/70.   Whew!

 

At least for my notes "DBS controls my Blood Pressure"  I've never seen that mentioned anywhere,

but I seem to have more Autonomic dysfunction than other PWP's.

 

Other thing noted: Bowel Movement seems to be more regular. 

 

I really thought DBS would only affect movement (tremor, freezing) so seems odd to note the

non-movement issues it helped.  I am also out in the workshop, currently doing a wood working

project. I really need a Table Saw as leaning over and ripping sheets of plywood with a circular

saw is not a good thing to do (Solo work).

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MurrayPD2    219

Wow!  That sounds a little scary.  It is good to know the DBS is helping already, but it sounds like you are dependent on it.  What did the MDS say?

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TexasTom    706

My MDS thinks my notes are great!

 

I thought it would be instant reaction when I turned off my DBS, but it varies for everyone. For some people it is instant, for others up to an hour later to see a difference in tremor.

 

My MDS has seen other PwP's whose blood pressure varies like that, so wasn't surprised at all. If anything it is good to know so if I do have to turn off my DBS (MRI or EKG testing) it is  good to know what to expect.

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