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Mizsmitty

A year& a half after dbs

4 posts in this topic

Hi,

I had dbs August, 2015. Definitely helped with tremors and dyskinesias. I have struggled ever since, however, to get meds right. It's a constant problem. Also, I sleep far more than before. Just wondering what others have experienced.

Thanks in advance!

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I'm one year behind you - unilateral GPi DBS August 2016. I am doing well with slightly less meds. Gait and dyskinesia are much improved. However, I can tell the disease is still progressing. I slept more before the surgery.

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My wife is doing well with the DBS. Her biggest problem is she broke her leg at the ankle a year and a half ago and that has really set her back. She didn't use the broken leg (her PD affected side) and now her good leg is worse due to overuse and not stretching it.

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Still adjusting voltage levels, just three months since DBS turn on (11/09/2016).

 

Reduced meds. No freezing; left side almost zero tremor; right side still has tremor (currently low voltage settings, adjusting slowly).

 

Way too easy to fall over first thing in the morning. I do not feel still, no dystonia issues, so tend to forget I have issues, get up fairly quickly and over I go!

 

Work in progress.

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