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coacht

Voice weakness

28 posts in this topic

Coacht,

I couldn't cope with the agonists too.You have greatly helped me with your insights.My prayers and regards to your DW.

Thanks.

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On 6/5/2017 at 7:28 PM, MurrayPD2 said:

There is an optimum window if you take the "hold off" approach, you may wait too long and you may not qualify or benefit as much.  If you wait until you are desperate, then it could be too late. 

My experience is if you have to sacrifice your voice to gain a benefit from dbs as with most dbs patients, think very very carefully if the trade off is worth it. Once you lose your ability to communicate with people properly, it can lead to depression as you will have to hold off your emotions without expressing them to others. Other people will also stop talking with you as they can't understand what you are saying properly. This is the worse part. You will feel isolated as you are living in a bubble.

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I couldn't handle agonists and I had a DBS infection, so I have been down those roads.   Everybody comments how rare an infection is and only %20  have serious agonist problems.  I also had a CSF leak on spinal surgery and that is rare, so I am batting 1000 on the worst experiences, but I still have a positive DBS outlook.  Those few hours DBS was working  (just before I found out I had an infection)  was great!  I felt close to "normal" again.

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