Jump to content
helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    
LAD

A little something to think about

Recommended Posts

2 hours ago, papa57 said:

Thanks for all the positive messages in this thread. I've been away from the forum for awhile, not on purpose, just been busy. I've been on a down slope lately and reading this thread of late is helping me make a turn I hope!

I just need to break through this stretch of mental negativity.  

Thank you...you made my day! Sorry you are on a down slope. I honestly get my punching bag out and go at it sometimes. I asked for a boxing speed bag for my birthday...some girls want flowers. 

Keep fighting! Stay hopeful!

 

LAD

Edited by LAD

Share this post


Link to post
Share on other sites

Our uniqueness, our individuality, and our life experience molds us into fascinating beings. I hope we can embrace that. I pray we may all challenge ourselves to delve into the deepest resources of our hearts to cultivate an atmosphere of understanding, acceptance, tolerance, and compassion. We are all in this life together.

-Linda Thompson 

 

stay hopeful & be hopeful 

 

LAD

Edited by LAD
  • Like 1

Share this post


Link to post
Share on other sites

I think what this study shows is that movement is important for slowing progression and disability.  Many people are not able to vigorously exercise (myself included).  But, I do try to keep active all day long.  Sitting causes me the most discomfort so I avoid it as much as possible.  Vigorous activity burns dopamine (for me) so I find that I need to take more medication.   Gardening, housework and walks, along with medication,  seem to help me cope with symptoms at 6 years since diagnosis.

Share this post


Link to post
Share on other sites
Quote

 

Starting small -- tracking your steps with a pedometer and setting incremental goals or working with a physical therapist to gain strength -- can help increase activity.

"A person with Parkinson disease will be best off when medical management, such as taking medications, will be combined with behavioral interventions that reduce a sedentary lifestyle.  The good news here is that this does not require intense or vigorous exercise efforts but can be done right at home while cooking, doing this dishes, cleaning the house, working in the garden or walking the dog," says Dr. Bohnen.

 

Yep!  Just keep moving!

  • Like 1

Share this post


Link to post
Share on other sites

Find something you love to do..... Whatever it is incorporate other things... If it's walking, look around and say the colors of what you see or walk with a ball in your hand and switch it from one hand to the other... Exercise your brain too!!

As Patriot said just keep moving! 

 

LAD

Share this post


Link to post
Share on other sites

 

Just a little something......that awkward conversation.....

“How are you doing?  Well…you look great.” Ok.  Here’s the deal.  No one told me I was supposed to look bad as a result of my diagnosis. 

My standard answer has become..."thanks....was I supposed to look bad?"  It breaks the ice and moves the conversation along...

 

LAD

Edited by LAD
  • Thanks 1

Share this post


Link to post
Share on other sites

My DH always answers the question "How are you today Al? With "I am fit as a fiddle!!!" Even if he is having a bad day. Their response is always " Oh so glad you are having a good day." It brings a smile on their face with his comment and it makes him feel good with theirs. Being in a Nursing Home he is asked this every day by nurses, staff and residents.

  • Like 3

Share this post


Link to post
Share on other sites
1 hour ago, maral77 said:

My DH always answers the question "How are you today Al? With "I am fit as a fiddle!!!" Even if he is having a bad day. Their response is always " Oh so glad you are having a good day." It brings a smile on their face with his comment and it makes him feel good with theirs. Being in a Nursing Home he is asked this every day by nurses, staff and residents.

Fit as a fiddle- nice!

Share this post


Link to post
Share on other sites

Thank you all for your inspiring words and advise from your experiences.  I got my confirmed diagnoses a little over a month ago and at first I thought I'm too young at 54 for this, I was suppose to be healthy and able into my 80's like my parents.  I've always been a very active person and totally "on top" of everything.  I started noticing a difference about 2 years ago and have been struggling to keep up with everything the same I way I always have.  I kept asking myself,  why do I feel so old and sluggish and why can I not do what I use to?  I was beating myself up.  But now that I have my diagnoses, like many others have said, it's been a relief to have answers to the "why" and after reading everyone's encourage words, I actually realized it's all OK.   I think the biggest thing for me, I've finally given myself permission to slow down a little and accept I might not be able to do everything I once did and by doing this my stress level has dropped tremendously!  I've decided I'm not going to work all the extra long hours, I'm going to take all my vacation time and so what if the house isn't spotless.  I truly feel like I'm a happier person.  Thank you Parkinson's for giving me a reason to slow down and smell the roses (if only my sense of smell was better :) )

  • Like 2

Share this post


Link to post
Share on other sites
20 hours ago, Dink said:

Thank you all for your inspiring words and advise from your experiences.  I got my confirmed diagnoses a little over a month ago and at first I thought I'm too young at 54 for this, I was suppose to be healthy and able into my 80's like my parents.  I've always been a very active person and totally "on top" of everything.  I started noticing a difference about 2 years ago and have been struggling to keep up with everything the same I way I always have.  I kept asking myself,  why do I feel so old and sluggish and why can I not do what I use to?  I was beating myself up.  But now that I have my diagnoses, like many others have said, it's been a relief to have answers to the "why" and after reading everyone's encourage words, I actually realized it's all OK.   I think the biggest thing for me, I've finally given myself permission to slow down a little and accept I might not be able to do everything I once did and by doing this my stress level has dropped tremendously!  I've decided I'm not going to work all the extra long hours, I'm going to take all my vacation time and so what if the house isn't spotless.  I truly feel like I'm a happier person.  Thank you Parkinson's for giving me a reason to slow down and smell the roses (if only my sense of smell was better :) )

It's truly a process but you will get there. One of the best quotes I like is MJ Fox

Acceptance doesn't mean resignation; it means understanding that something is what it is and that there's got to be a way through it.

Reach out anytime.... 

 

LAD
 

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


×