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Chief 2

New to Parkinson's

4 posts in this topic

Hello group,

I am newly diagnosed with PD and outside of my family nobody knows.  My doctors says that I have young onset as I am 43 years old.  I am interested in hearing from those who were diagnosed young and what information they shared with their employer.

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Welcome, I was diagnosed at 46 but probably had it for a few years prior. My coworkers knew and were very supportive.  You need to do what's comfortable to you. I am not sure what or if  you are required to tell an employer.  I guess it depends on your job. Eventually, PD is just a part of your daily life and part of who you are. 

I don't announce I have PD to whoever I meet but I don't hide it either. I go with the situation as it comes. 

good luck 

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welcome , I was DX at 50 but had symptoms well before . Telling people of your DX is a personal choice , I generally don't talk about it unless someone asks why my hand is shaking or why do you run off to the bathroom so much etc  . I guess it is because I don't want people to look at me and say things like poor guy he has parkinson's or for people to treat me any different than they had before . That being said ,for work purposes it depends on what line of work you do and is it affecting your ability to perform your tasks ? I was a union Steamfitter  (pipefitter ) and was having issues with balance and had a couple falls at work . Using my left hand for delicate tasks was becoming increasingly more difficult . The balance issue was a huge concern as most of our work is off of ladders or in some type of man lift  . These are some of the same reasons I went to have my symptoms checked by my Doctor and eventually the neurologist . When I was 100 % sure what I had and how much it was affecting my abilty to perform I told my boss . In my case I was rather lucky as my boss was also a good friend that I had gone through the apprenticeship program with 24 years earlier so he was very concerned and supportive . I guess it comes down to Do they need to know now and if they will be supportive of you and do you feel they have a need to know .

Dan

 

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