Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Came back to my whole name on display

Recommended Posts


I disappeared, then, when I reappeared, my whole name was on display. Well, millennials aren't know for being privacy conscious on the internet, anyway. A quick update, I don't have PD. I visited an MDS nearby, and he thought based on my DATscan and how I moved, it's not likely I have PD. My neck dystonia never cleared up, but it seemed to do better with more c/l. We tested for DRD, but no genetic link. I don't quite fit the DRD mold, to be honest; I have motor fluctuations, and incomplete response to c/l, and i take way more c/l than a typical DRD person would take (1,400 mg a day, plus an agonist). Dystonia everywhere now, but I'm slowly learning to manage.  I live this weird paradox where I can swim pretty hard, sprint repeats and such, for about an hour, but can't drive my car more than 30 minutes. It's weird. I'm cutting back on the swimming intensity (i'm not very fast, by the way). I'm slowly learning that I can does not equal I should. Or, at least, that's what my shoulders tell me :-) 

  • Like 2

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now