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LAD

Helping with parents

9 posts in this topic

As a young onset person with PD, I have had to help my parents with medical issues recently. I work to have my anxiety not take over when I need to be the daughter and help my parent. So far so good but do I trust myself? 

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Helping parents while you yourself are sick is a tough one: I've been there, done that, couldn't afford the T-shirt since my debit card number had been stolen. 

It stinks, it's a terrible, stressful situation that I am so sorry is happening to you. 

 

That said, if you are comfortable sharing, what are your specific concerns? I know that there are several people on this form who are either having or have had similar situations. At the very least you'll be heard and understood, and you may even find some good advice. I know  the encouragment I received here a year ago was invaluable. And even though I have more responsibility for my mom now than I did then, I feel alot more confident in my abilities now. So what is it specifically that's got you worried?

 

If you were just here to vent and not for advice than disregard the previous paragraph 😊. I wish you and your parents the best, and hope things settle down for you soon.

Hang in there

- Feisty

 

Edited by Feisty Folder
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I get symptomatic when I get nervous. I also have anxiety which I keep in check but I'm nervous I'm going to have a full blown panic attack and start to tremor so bad I'll look like I'm having a seizure. 

So far, I've done fine. My siblings and others  worry about me which I hate. At the same time I'm grateful they realize it's hard. I guess I'll just take one day at a time. 

I am afraid of the outcome but also afraid of how I will react to it.

 

I've been part of this forum for awhile so I know it's full of great insights.

Edited by LAD

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I've got no suggestions for managing anxiety it self besides all the things you've probably heard a million times before: take a deep breath, listen to music, blah, blah, blah, blah - I've never found a really great coping strategy, unless you count writing REALLY long posts, which isn't much help in the moment.

 

Stress induced tremors are really annoying, PD gives you a poker face, but then it goes and ruins the act with your hands. I have found a solution or two though -

- my neurologist has approved my making medication adjustments on the fly. If it's going to be a stressful day I take a little extra Sinemet. If something stressful occurs and tremors start I'll take a Sinemet, chew it too bits then chug water to get it working as fast as possible. I don't know what your  medication regimen is and you need to speak with your Dr first, but that stratagey got me through mom's bladder infection in February

- if your main concern is concealing your tremor, I find the bathroom a good place to hide until the Sinemet kicks in. Going for a walk gets me alone and often helps calm things. Ducking behind counters or going for "a nap" I have also used. Admittedly the only person I'm trying to hide them from is my demented mother.

- on the other hand if you're needing the tremor to calm and don't care about being conspicuous then you can use what I call "the neuro exam trick". Move the opposite hand from the one you need to stop tremoring, like at the neurology check-ups. I used this so they could draw blood recently.

 

Worrying the people you love is a double edged sword, on one hand you're grateful they care, on the other you love them back and so want them protected. At least that's how it is for me. 

 

I hope something here helps, and things return to whatever passes for normal soon. 

 

Hang in there

- Feisty

 

 

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Thank you. I don't take sinemet yet. I take an agonist. My dr also let's me tweak my meds. I will look into taking an extra immediate release. 

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We got through the latest health issue and I was able to do what I needed to do for my mom.  I guess something just kicks in and you do what you gottta do:)

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Hi Lad

keep taking care of your parents,great way of forgetting our fate.Or as what Dr.Low famous elixir for the nerves,Do the things we fear and hate to do.As we strengthen our nervous constitution .benefits are mental comfort and inner peace.PD is  what it is but when i visit others much worse off I can laugh at my fate alot easier..

My best to you

john

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I have learned I am not the girl for the ER but I'm good with dr visits and follow ups. So, the many family members that are local will be backup! I'm half Italian so I have lots of them! 

Thanks for the encouragement!

 

LAD

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