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Bluemoon

Just been diagnosed at 36

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@LAD, Thanks for the info.  It sounds a lot like the Delay the Disease program.  It's great that there are PD-specific programs, and thank goodness for them all.

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On May 15, 2017 at 2:52 AM, Bluemoon said:

Francesblo, LAD, these are great resources, thank you very much!

No problem! Hope you are doing well blue moon! !  You're going to be ok! 

 

LAD

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On 5/21/2017 at 10:58 PM, LAD said:

No problem! Hope you are doing well blue moon! !  You're going to be ok! 

 

LAD

Thanks Lad, I'm sure I will!

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Considering the natural hormones in pregnancy, my guess is the agonist medications could be the most risky. Since C/L can cause nausea and the first trimester is usually when the stomach is sick, then you may have to be careful on amounts.  I am just saying from experience (with medication, not pregnancy)  and I can't give professional medical advice.  We do have the "ask the Doctor" forum.  He may have some good tips. 

I lost strength/function in my left side also.  Some activities were good, some not.  If you can get a PT, they can assess you and walk you through the best ones on to focus on for you.  At first, I was in pretty bad shape and it was difficult.  However, after a few visits, I was very happy I went and could see significant improvement.  This was in conjunction with a mild medication called Amantadine.   Once they confirmed my diagnosis, I took the stronger medications, but I was already doing better.  

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1 hour ago, MurrayPD2 said:

Considering the natural hormones in pregnancy, my guess is the agonist medications could be the most risky. Since C/L can cause nausea and the first trimester is usually when the stomach is sick, then you may have to be careful on amounts.  I am just saying from experience (with medication, not pregnancy)  and I can't give professional medical advice.  We do have the "ask the Doctor" forum.  He may have some good tips. 

I lost strength/function in my left side also.  Some activities were good, some not.  If you can get a PT, they can assess you and walk you through the best ones on to focus on for you.  At first, I was in pretty bad shape and it was difficult.  However, after a few visits, I was very happy I went and could see significant improvement.  This was in conjunction with a mild medication called Amantadine.   Once they confirmed my diagnosis, I took the stronger medications, but I was already doing better.  

Hi Murray, thanks a lot for your input. I'm not on any meds yet since I'm yet to see the specialist who will evaluate treatment options with me and prescribe them. The good specialists belong to the public healthcare system here in Spain and it's not particularly quick. So I was thinking about not starting any meds until after pregnancy. But I don't know whether that's a good idea.

Regarding my symptoms, I have mixed feelings. They're not very notorious to other people because I don't look sick and I'm always in good spirits, and also I already exercise a lot. So they wouldn't know if I didn't tell them. But I do notice my symptoms quite a lot. The extreme mental fatigue, the slowness of movements and reasoning, the tremors, the lack of fine motor skills. So I don't know if they're "advanced" enough to demand meds or I could go by for a while on just exercise and a stress-free way of life. What is certain is that I have a DAT scan which says that I have PD without a doubt.

From your experience, what do you guys think?

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18 hours ago, Bluemoon said:

Hi Murray, thanks a lot for your input. I'm not on any meds yet since I'm yet to see the specialist who will evaluate treatment options with me and prescribe them. The good specialists belong to the public healthcare system here in Spain and it's not particularly quick. So I was thinking about not starting any meds until after pregnancy. But I don't know whether that's a good idea.

Regarding my symptoms, I have mixed feelings. They're not very notorious to other people because I don't look sick and I'm always in good spirits, and also I already exercise a lot. So they wouldn't know if I didn't tell them. But I do notice my symptoms quite a lot. The extreme mental fatigue, the slowness of movements and reasoning, the tremors, the lack of fine motor skills. So I don't know if they're "advanced" enough to demand meds or I could go by for a while on just exercise and a stress-free way of life. What is certain is that I have a DAT scan which says that I have PD without a doubt.

From your experience, what do you guys think?

I think, if it doesn't impact your quality of life significantly, you should either choose natural options (supplements) or go with mild medication if you can.  I currently react to stress badly; which is to say that my PD symptoms can get worse quickly.  So I recommend having a good neurologist or MDS lined up in case things change in case of emergency.

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