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noah

stalvo

4 posts in this topic

Anybody have any experience with stalvlo?  Does it work for you and how is it different from reg sinemet 

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My mom has been on it for years.  If your insurance covers it and you can swallow the pill whole and you don't get sick from it then go for it!  It was great for her up until she stopped swallowing pills so now I crush it.  It is being absorbed too much too fast but still better than Sinemet for her.   I thought you take Rytary

 

Edited by miracleseeker

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I do but am having a hard time after dinner.  I take my last dose @ 5:30( 2 reg sin , 1 CR I  cant take rytary @ that time b/c it keeps me awake) but I off by 8-8:30

In the past I would just go to bed.  Then I was having trouble falling asleep. I went to a sleep doc who said i was going  to bed too early(which I was doing b/c I was off)

So I am trying to find some combination of meds that will help me stay on a little longer so I dont go to bed so early. I

So pretty much I am between a rock and a hard plac

Any med I would take to extend my day gives me insomnia.(so I am screwed)

 

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Stalevo = Sinement & Comtan.    Comtan helps the Sinemet stay in your system longer, so you get more effective dose. 

Prior to DBS, I was taking it every three hours. Tremors would return after two hours, making it near impossible to get anything done (no keyboard, nor mouse).

I'm doing pretty good today, taking just one 25/100 Sinemet every four hours.  Six months since I had DBS, so life is good.

Getting Sleepy after eating is normal, often you can space out meals to smaller ones. My wife loves dinner at 7:00PM from the days when she would work until 5:30PM and we had a household full of kids. Empty nester, she isn't working, but still likes dinner at 7:00PM.  Works for me as I take my Sinemet at 6:00PM, so no issue with protien blocking the uptake of sinemet. Also I have been doing something I have done in years, woodworking after work! Just fun to get out into the shop for an hour before dinner.

Oh, finally talked her into going to Snap Kitchen.  She cooks for eight, which means a ton of food goes into the trash (which drives me crazy!).  None of the "pick three meals a week and we will ship to you" works for us. I prefer somethng like the Grilled Kale Hoppin John but she likes her meat main course.     I'be been enjoying vanilla ice cream and fresh blackberries in the evening (small dish), empty stomach for when I take my ER Sinement (extended release) at 10PM.

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