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MarcB

AtreMorine - most positive feedback I’ve ever seen

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MarcB    17

I just learned about AtreMorine, which surprises me since I do a lot health/PD research.  If anyone is taking this or has researched it, please share.  I’m tempted to try one bottle.

Yesterday, I followed AtreMorine’s  testimonial link to Facebook, went to every person’s own Facebook page to insure they were real people, sent each a private message asking if they still feel as strongly about it.  I’ve heard back from two who both raved about it.

Note the scatter charts and graphs in the "scitcentral" link.

https://atremorine-viaphyt.com/

http://www.scitcentral.com/download.php?journal=20&article=75&file=documents/a777c18398327ec98bfbe9cf8a92d4bb.pdf

                                    

https://www.ncbi.nlm.nih.gov/pubmed/28190394

 

Edited by MarcB
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otolorin    28

Hi MarcB,

I just read the scientific articles,never heard of this before,very interesting.Would be nice to confirm it's efficacy with Dr Okun on this forum.Hope it is supported by FDA as neuroprotective.Thanks for bringing this up.

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miracleseeker    668

I think Dr Okun is extremely cautious and rarely rave about anything unless it's been around for a long time and have a proven track record.  Actually the only 2 things that comes to my mind are Sinemet and DBS surgery.   It would be interesting to see what he has to say.  

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Linda Garren    733

I think this is very, very interesting and hopeful, especially since it has been found that instead of losing dopamine, Parkinson's is caused by the breakdown of what stimulates dopamine.  (I hope I got that right.)  Therefore, this particular product seems to address that.  I'm excited to follow and see if (1) the FDA approves it for use--hopefully sooner than they usually do since one of the things the government has done was to put through a bill to get meds out much sooner than in the past (cutting down on how long clinical trials take).

Well, I'm out.  It costs $109.00/bottle, and if taking the lowest dose (5 gr./day) one bottle would only last 1/2 month.  Ideally, most people have found that 10gr/day works best.  Wow.  Only the elite can afford this, I think.  Add to that cost shipping, as well. 

Edited by Linda Garren

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Manolo    7

I stumbled thru the scientific literature.  I hope more info is forthcoming. Does the efficacy of atremorine lean toward a dependence on the patient's genetic pre-disposition?  I may have mis-understood.

Anyway, since I am not dementiated...yet, a thought occurs to me: I think it goes without saying, the genetic make-up of an individual impacts the efficacy of everything: drugs; words/advice; relationships; etc.  Not saying that everything is pre-determined; just saying one's genetic make-up provides a pre-disposition for some outcomes.

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MarcB    17
On 6/1/2017 at 0:27 PM, Linda Garren said:

I think this is very, very interesting and hopeful, especially since it has been found that instead of losing dopamine, Parkinson's is caused by the breakdown of what stimulates dopamine.  (I hope I got that right.)  Therefore, this particular product seems to address that.  I'm excited to follow and see if (1) the FDA approves it for use--hopefully sooner than they usually do since one of the things the government has done was to put through a bill to get meds out much sooner than in the past (cutting down on how long clinical trials take).

Well, I'm out.  It costs $109.00/bottle, and if taking the lowest dose (5 gr./day) one bottle would only last 1/2 month.  Ideally, most people have found that 10gr/day works best.  Wow.  Only the elite can afford this, I think.  Add to that cost shipping, as well. 

I  was thinking of getting one bottle, and if it worked as the feedback indicates, taking it for (a day or two before) social events out.  Looks like if you buy 4 bottles, it's $62 per, plus I think there is a 20% discount for 1st time purchase which would cover shipping. If we could find two others to go in on a 4 bottle purchase, would you be interested? 

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MarcB    17

Thank you for this link.  I've read all this and I have two questions; 1) why isn't this being shouted from the roof tops, i.e., it's unheard of on the PD  forums I've checked  - except Bazillion raised on this forum 4 mos ago.    I can only find user feedback on AtreMorine's link  to their Facebook site -- which they control.  2) Since excess L-Dopa/dopamine causes dyskinesia, might this stuff cause severe dyskinesia?  I'm furiously doing research, am highly suspicious, but willing to try 1 bottle. 

Edited by MarcB
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MarcB    17

I just read all the replies from Bazillion's post 4 mos ago.  Not encouraging.

 

"As promised K........ and I have been doing some research around Atremorine and Ramon Cacabelos.

In short, we are not convinced by either of them!

Beans and in particular Vicia faba (Broad beans) do contain dopamine precursors (like levodopa). However the precise amount of levodopa in each bean/plant is hard to control and therefore this type of natural supplements can be unreliable.

There is an official response from Parkinson's UK about AtreMorine. Kirsty and I are in complete agreement with it. Please see below:

“AtreMorine is a supplement made from broad beans (Vicia faba). Broad beans can provide a natural source of levodopa, the chemical building-block that your body converts into dopamine and the 'active ingredient' found in some conventional Parkinson's medications. Natural sources of levodopa, such as AtreMorine work in the same way as Parkinson’s medications, which work to replace dopamine and help ease symptoms. However unlike with Parkinson’s medications which are of known doses, it’s hard to control the amount of levodopa you receive with natural sources.

We would encourage anyone with Parkinson’s who is thinking about trying supplements to speak to their specialist or Parkinson’s nurse. We also urge people to be cautious when buying supplements over the internet and be aware that they are not subjected to the same careful safety testing and monitoring as approved medical treatments”

We also did our own digging. What we found made us question both Atremorine and Ramon Cacabelos' "science". This is what we found (don't worry, we won't be offended if you do not read it all :) )

Ramon Cacabelos

He did study Medicine in the University of Oviedo (Spain) and did his PhD in the University of Osaka (Japan). He has had several academic positions in the past but all quite short. At the moment he is not working in any University (so not really a professor). You can have a look at his professional profile here es.linkedin.com/in/ramón-cacabelos-garc%C3%ADa-3236b3121

He has been president of EuroEspes, a private research centre, for more than 10 years. What research outputs or what the centre does are not clear. Which scientists or doctors work on that centre is not clear either... euroespes.com/en/gallery/

Cacabelos was in the Spanish news about a possible cure for Alzheimer’s in 2012. But this has not progressed any further (I have some links in Spanish if you want to read?)

Buying Atremorine

K....... and I are not convinced by the reviews on the Atremorine website

Edited by MarcB

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Linda Garren    733

HI, Marc and Lori. I'm glad more information was found, as posted above,  In general, I'm wary of trying anything without it being under a doctor's care, plus the med would not have the oversight of the FDA.  Very interesting find, though.

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