helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    
New normal

Vivid dreams?

5 posts in this topic

Hi folks,

It's interesting to compare  DH's PD experience to mine. Everyone is different.  I had vivid dreams awakening with screams years before dx. After being on  CL, modifying stress load, increasing exercise, and adding alprazalam, valerian root, and melatonin at bedtime...I now have happy dreams, usually sleep well.

DH has had no dreams nearly his entire life.  After starting CL he started having vivid dreams...and acting out.  I felt the swish of air pass my face as he threw a punch while sleeping. It was so fast, I hold greater rspect for the stories he tells of his youth.(smile).  Now when asleep  he laughs and giggles...which make me jealous...or he has emotions of conflict.  I awaken him if it seems he is having a bad experience.  If he is restless, we put a pillow between us in case a sucker punch is possible.

Question:  has anyone noticed a correlation betwenn vivid dreams and/or C/L? ...Or progression of PD?

Gosh, life just keeps on getting more interesting day by day.....

Good,luck u you all....love the ones you love...

NN

BTW, We are nearly loaded for bucket list trip...hoping we have the where with all to make it happen...pontoon air plane  ride ...hot air balloon ride...kayaking...trike rides....water rafting...we are working hard to get in the road......👍

2 people like this

Share this post


Link to post
Share on other sites

New Normal,

This may not be 'vivid' dreams.  Sounds more like RBD (Rapid Eye Movement Behavior Disorder).  Call the Doc and describe him talking, giggling, and most importantly moving around during those episodes.  It's no big deal if it's dealt with, but can be dangerous.  In RBD the person is acting out his dreams, normally we are paralyized when we dream.  With PD, that can change.  You don't want someone fighting off a burglar in real time when they are just dreaming that scenario.  My DH threw a bookcase (loaded with books) across the room one night.  Sprained his back doing it.

Share this post


Link to post
Share on other sites

NN,  enjoy your bucket list trip! Get hubby's RBD addressed before you leave. I suggest a body pillow between you.

My dreams became much more vivid and intense after starting c/l, without the acting out component.

Dianne

1 person likes this

Share this post


Link to post
Share on other sites

(1)  Can't really say whether I've noticed a difference in vivid dreams (and RBD) with or without C/L.  I do know they occurred before, just not sure when they started.  Seems as if they've been around most of my life, just never thought much of them or bothered to analyze and classify my sleep and dream states pre-dx.  Okay, now my mind has gotten more on track and I can point to at least one difference starting sometime around five-years before dx and medication--those dreams become more frequent, stronger and I've come to dislike (hate?) them more and more each time!  That is the one change of which I am very aware.

(2)  Plus one to Beau's Mom's body pillow suggestion.  I'm still trying to re-learn how to sleep, and body pillows have helped.

(3)  Enough of this bad talk and thinking bad thoughts.  Really wanted to pop in, New Normal, and wish the two of you a grand time on your adventures.  [Post-C/L, I have notice that I am now easily excited and happy for people when they get out and explore life.]

Cheers!

 

2 people like this

Share this post


Link to post
Share on other sites

Thanks for responses.

1.  Quietstill...yep, thats why I posted since I've read posts where RBD gets out of control.  I wondered if C/L is a factor.  He has increased C/L  and added an anti depressant...the dreams are less frequent.  I use caution to slowly awaken him if he appears to be in a conflicted state...often to his relief.  If he is laughing, I figure he deserves a "night out." (Smile). What is so crazy is how fast his "punch" was...which tells me how dystonia must be for some people. Appreciate your counsel ....when you speak, I listen.

2. .Beau's Mom... we did not make it on the road for Michigan...and flew instead to grandson's graduation.   We are both determined to be on the crystal blue waters of Flathead Lake in Montana,  driifting through the giant moss covered crevices on rivers in Washington state, and  laying on beaches of Vancouver Island in Straits of Juan de Fuca.  Just one foot in front of the other...often in a head wind...but moving.

3. BRG:  Thanks for the support.  I also hate vivid dreams....the same emotions remain with you for days...I've wondered if you can get PTSD from dreams. (Another smile) Two 450 Valerian root capsules ...3 mg of Melatonin....have helped me get good sleep.   That is significant since recent sleep studies show I never enter REM...and had 266 leg movements in 5 hours...I figure I do aerobics in my sleep.

ok, guys...I am now stoked...all it takes is body pillows and attitude.....and we'll be on our way...I got a selfie extender at the dollar store...so maybe I can send pics...hmmmm...DH tremor....my tremor....a camera extender...pic may not be too clear...but you will get the message....

Thanks, my friends.😎

NN

2 people like this

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now