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Hello i am 46 and was diagnosed in May 2017. My doctor has started me on the Neupro 6 mg however not helping. This is a nightmare to me. I am having lots of trouble with using a computer keyboard and a mouse. Does anyone have any ideas. Also was wondering what steps I need to take or even what to do at this point, all i do is cry from frustration at this point, any suggestions ?? What are common medication to be taking. They had me on Carbidopa-levodopa 25/100 3 times a day.It was working great and my Dr. took me off stated I would need when get older. Then the Dr started me on the Neupro 2mg and have moved to the 6 mg and not helping at all. I start therapy on Monday and I am just lost and don't know what to do to help me. I'm so lost any advice would help. I go to my neurologist on Thursday any questions i need to ask. Thank you in advance. God Bless !!!

 

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If the C/L was working, tell him that's what you want. It's gonna be effective for however long it will be regardless of when you start. If he won't prescribe it, find another doctor who has more experience in treating PD.

Dave

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Agree with Dave.  Get back on the C/L - newest thoughts are it actually slows progression if you start early but keeping your dopamine receptors alive.

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Glad you posted in this forum- you will get good feedback. 

 

LAD

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loveya1971, 6 years ago I was the same age as you are when I was diagnosed and I understand your challenges and fears as I'm sure do all here on the forum. So know you are not alone. Reading and talking about it with others who understand helps take away some of the fear so keep reaching out.

With regards to your medication, you'll find that you will become the expert on you and what works. Keep a journal of what you're taking and the positives and negatives, and take that to your doctor to discuss. If a medication doesn't work discuss other alternatives. In the beginning I felt frustrated with my doctor because I wanted things to move quicker and wanted everyone to have the sense of urgency that I felt. However overtime you realize that there is a pacing to figure out whats right for you. At the end of the day though, if you feel as though your doctor is not listening to you and doesn't walk to work as a team to create the best care for your situation, then you may want to find another. 

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Is your neurologist a Movement Disorder Specialist (MDS)? If not, you should seriously consider switching to one. This is a very unique disease; seeing a doc who has additional training  & experience can make a HUGE difference. Some people on here have reported long wait times for the initial appointment, but I'm sure most would say it was worth it. At the very least, you should see a doctor who addresses your concerns and helps you feel more in control of your illness. 

What to ask at your next appointment? Anything & everything you want! Make a list; tell him that you're not satisfied with the results of the current medication. If you still feel he's not listening to you, find another doctor ASAP.

I just realized the date on this post; how did it go?

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