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italy52

STEMCELL TREATMENT

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italy52    0

Saw 5 videos on  facebook about stemcell treatment. It showed how people were almost cured from parkinson's and how their life changed after having it done. If its so great , why isn't it talked about more at the parkinson's websites?

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swva    81

Because none of the treatments have been proven to help PD. Any that claim to help are snake oil salesmen and are only out to get your money.

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otolorin    30

Some MDs will do anything to make money,but I don't know why the silicon valley is not doing anything to censor these sites online.Until somebody gets killed,before they get sued.Big hope for the cancer drug "nilotinib" treatment for parkinsons.A small trial was positive for a cure or slowing down PD..Waiting for the results of a larger trial,currently recruiting.I also hope the study could be accelerated.

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Drummergirl    98

Hi Italy,

I have been researching stem cell for PD for a while now. There are reputable physicians/clinics, not all are frauds. Here is one my PT met during a seminar she attended and I spoke with them. http://qigenix.com/

There also is a website that list stem cell clinics/physicians, as well as a blog. www.ipscell.com. 

I think the main reason stem cell hasn't been discussed or supported is, the cost, and the long term results of treatment haven't been yet been available.

  Seems like the majority of people have good results for several months, but info isn't there beyond this. Also, depending on the stem cell process, which there are many, it may take up to several treatments for results.

At 10K plus, the average person can't afford the treatment.  If it was 80% + guaranteed to work , it would be worth it to me! 

They will get there in time....

 

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ShopGuy    88

No stem cell therapy for PD has passed rigorous clinical trials, and so far, trials of stem cells for PD have been underwhelming. The notion that for-profit clinics, in business for a few years, are achieving amazing results while legitimate researchers with decades of experience are not, makes no sense.

Offering unproven stem cell therapies outside the context of a legitimate clinical trial, without full disclosure and obtaining informed consent (which is what all these so-called clinics are doing, regardless of their claims), is unethical, by any ordinary definition of the word. 

Charging many thousands of dollars for unproven, potentially dangerous treatments of dubious benefit is even worse. And, yes, people have been very badly injured by stem cell clinics: https://www.nytimes.com/2017/03/15/health/eyes-stem-cells-injections.html 

These operations are a scourge. They trade on people's fears, and victimize the vulnerable. Any doctor who profits from this work violates their Hippocratic oath, at the very least. Plenty of them deserve to be jailed for fraud and reckless endangerment.

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lbonifas    1

My husband has PD....12 years.    I had stem cell procedure for my knee in March.....results have been great.    Different problem than PD, but sure stem cell for orthopedic issues will be eventually be approved and insurance will pay.   Watching this closely for PD.    I did a lot of research before having the procedure, and there are many places offering stem cell procedures as an alternative for a total knee and many are not good.    I used a company called Regenexx. Highly recommend them.  Theirs is a three step procedure and even the bone marrow procedure to obtain the stem cells is vastly different than most.    

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otolorin    30

Stem cell treatment for the knee maybe an easy fix,just to regenerate a worn cartilage.But the brain is a complex organ,and this is why it hasn't being easy for the experts to have a perfect breakthrough with stem cells treatment in PD.It might take a long time for them to figure this out eventually.

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