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italy52

Restore Gold

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5 hours ago, MusicMan said:

I was paying about $500 a month for Azilect before I found the generic thru Canada for $100 per month.

I have but two things to say about this:

1) There is no such thing as generic Azilect. Either you are buying Azilect or you are buying %^^&*. At $100 per month, IMHO it is more likely the later.

2) When I was first prescribed Azilect I told my neuro that it was not helping me. He said he was not surprised as many of his patients responded likewise. Subsequently, two other neuros told me the same thing but their consensus was to continue taking Azilect just in case it is helping.

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On 7/28/2017 at 4:18 PM, jds6958 said:

Hi italy52. As a disclaimer, I am part of WHP, but I was diagnosed with PD at 35 and I have been taking the ingredients in RG since Nov. 27 2014. I am still doing better than when I was first diagnosed and my PD has not progressed in nearly three years (praise God).

I would like to take an opportunity to offer a clarification. The video from WHP does not make any claims about Restore Gold. We have our customers speak about the product themselves, either in video or through 3rd party verified reviews. It is of no value for us to make claims, and according to the FDA we are not permitted to anyway. We do note the positive feedback we receive from others. The real value is to read and see others who take RG speak for themselves. So that has been our focus to help mitigate skepticism, though the criticism is fair and understandable. Outside of the drugs we all already know well, there is not supposed to be anything that can help PD in regards to symptoms and certainly nothing delaying or pausing progression. It is natural to doubt.

I have contacted a few persons that are longer term users of RG to see if they would be willing to create an account and offer their experience about Restore Gold. We know that there are many questions about RG and that it is helpful to talk to those who also take it. We do hope some will volunteer some time to afford some conversation about their experiences.

I can also answer questions if interested. I do note that I am part of the team that led to the development of RG, and I also take RG, so I am admitting bias. As another disclaimer, we also know that RG does not seem to offer any benefits to about 18% of persons, for reasons we do not understand. We suspect that some are diagnosed with PD and do not actually have PD, or their form of PD is not related to mitochondrial dysfunction. We also know that some decide to take RG anyway that are in stages IV or V, which we discourage, because positive results are more unlikely.

Ultimately, WHP was created in hopes that it would help persons like myself with PD. We are proud to note that we are receiving such feedback and only pray that more see an improvement of quality of life through WHP.

Thank you Fred for sharing your experience with UDCA (which is similar to our main ingredient TUDCA in RG). You have been taking that longer than I have been taking TUDCA, so I am always interested in how things are going for you as time goes on.

Don't you take like 60 supplements in addition to the PD meds?  How do you know this is making you feel better and not from say Vitamin C that you may be taking too?  I think it's very hard to pin point what is doing wonders for you when you are not only on this to make a sound judgement.

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16 minutes ago, miracleseeker said:

Don't you take like 60 supplements in addition to the PD meds?  How do you know this is making you feel better and not from say Vitamin C that you may be taking too?  I think it's very hard to pin point what is doing wonders for you when you are not only on this to make a sound judgement.

Certainly a fair point, but when hundreds of others have the same or similar results as me, I feel fairly confident. Some of them have even visited this forum. The only common denominator is the same ingredients. But yes, I do take other supplements to support fitness goals, but not as many as I used to. I no longer take PD meds. 

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The same can be said about the people who think they show improvements from taking this.  They also can be on other medications/supplements that are making them feel better.  I'm not dismissing this supplement but I just think people should not join the band wagon and  or trick their brains into thinking it works because it's suppose to work based on other's testimony.  $100 a bottle is nothing to sneeze at.  People are desperate to find relief.  Unless there is a money back guarantee for this purchase I don't think it's something I would consider for my mom.  

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I don't want to speak for anyone else, but RG is TUDCA with other supplements added. Re my Ursodiol thread (UDCA & TUDCA). I know you've read those posts over the past few years.

Fred  

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7 minutes ago, miracleseeker said:

The same can be said about the people who think they show improvements from taking this.  They also can be on other medications/supplements that are making them feel better.  I'm not dismissing this supplement but I just think people should not join the band wagon and  or trick their brains into thinking it works because it's suppose to work based on other's testimony.  $100 a bottle is nothing to sneeze at.  People are desperate to find relief.  Unless there is a money back guarantee for this purchase I don't think it's something I would consider for my mom.  

I don't know. I understand what you are saying, however, people are being able to walk more normal again, tremors are going away or substantially reduced, able to sleep through the night, remembering dreams again, more energy/less fatigue, better focus at work, better mood, etc. We get emails and feedback everyday, people thanking God for Restore Gold...I know that if I stop taking Restore Gold, my symptoms begin to return after about three weeks. I have seen others say the same thing. Even "Beatit" earlier mentioned that his tremors worsened when he discontinued taking it after WHP was overrun with demand.  That was a bad few weeks. We had so many people emailing us saying that their Parkinson's was coming back because we ran out of RG. I recall my quality of life before RG, and after RG. I know what happens when I stop taking it. I suffer, and my whole family suffers. I know I made the right choice for me, but it does not mean that it is the right choice for everyone, including your mom.

It is not my desire to argue or suggest everyone should try RG. We already know it does not work for about 18% of people. That might be enough of a reason right there for someone to not try it. A person that only has a few years left to live should just consider l-dopa or carbidopa. Anyone that is rather progressed in PD should not bother with RG. There are those that cannot afford RG, which is a sad reality. WHP operates in the red already, so nothing can be done about the cost as the ingredients in RG are already discounted over 50%. People with GERD or a very weak stomach may not want to try RG, as it can cause digestive distress. Those that don't really care about their PD symptoms or progression should not try RG. Those on thyroid medication or antidepressants should not try RG either.

I can't tell a person that they should or shouldn't try RG. That is a personal decision each person should make. What was right for me and others might also be wrong for others. There are certainly valid reasons to criticize RG. There are no placebo controlled trials, most doctors are not aware of RG yet, it makes sense that someone might want to wait for years to see if such things materialize, even if it is years. 
 

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Thank You for every ones responds. It seems from what I am hearing, RG is helping more with Tremors. I don't have Tremors. In 2008 I started having trouble writing. My handwriting got so bad at times it would get smaller and smaller till almost a straight line. I had weekness in my right hand. Then my right arm wasn't swinging. It was getting harder to move. At first I thought I had a brain Tumor.  I didn't know much about PD. No one in my family had it. Funny thing, a year after I was diagnosed , My 84 yr old Aunt , at the time and my Mother was also diagnosed with PD. Their symptoms were different then me. They had Tremors and problems walking. My Aunt passed away last year. My mom is still going.

My biggest problem now is the dyskinesia and dystonia I get 2 1/2 hrs after I take my Sinemet . It will last about 1/2 hour. I tried Amantadine. Didn't work for me. Tried taking less dose of sinemet more frequent. Made it worse.  Would love to figure out what I can do for the dyskinesia and dystonia.

NP.org had an article on Mucuna Pruriens that sounded promising.

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IMHO, you would be better off taking Sinemet rather than Mucuna Pruriena. As for RG or plain TUDCA, I think it is worth trying for what ails you. 

Fred 

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%^^&*.

14 hours ago, MrFritz said:

You're confusing Azilect (a brand name) with Rasagaline (its chemical or generic name). Think Advil and Ibuprofen.

 https://www.drugs.com/availability/generic-azilect.html

Fred

 

Yeah okay. Argue just to argue.....

If referring to Rasagaline as "generic Azilect" is good enough for Dr Okun, My MDS, and my Pharmacist, it's good enough for me. Surprisingly, the world is not awaiting approval from Mr. Fritz.

Edited by MusicMan
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If this company is already in the red then this supplement will be gone sooner or later.   What happens to everyone who think they benefit from it including yourself? Aside from the cost of buying and maintaining this there is also the likelihood of it getting taken away just as your body is getting used to it.    People who don't care about their symptoms or it progressing shouldn't take it?   That would be no one so what you are saying then is that everyone should take it if they care.   Looks like TUDCA would be more cost effective and readily available IF anyone chose to take it.    Good luck.  

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Italy52, 

            how long did you take sinemet before you developed dyskinesia?And how do you dose it?

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46 minutes ago, otolorin said:

Italy52, 

            how long did you take sinemet before you developed dyskinesia?And how do you dose it?

For what it's worth, my MDS told me that taking more than 6 tabs of 25/100 per DAY is the point where dyskinesia can begin in most people. Some people can handle 8 tabs per day, but usually between 6 and 8 is where it would start to show.

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Musicman,

             you know what is confusing, the literature says, people developed dyskinesia after using sinemet for 5 to 7years.But I have noticed on this forum that some people developed it even less than a year after using sinemet.Now the question is, is it the quantity of sinemet taken that causes dyskinesia or the duration of using the drug?

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Worthless opinion #2  -   I think your size matters too.  If you weigh less than 100 pounds you may feel it more than someone who weighs 200 pounds.  Everything factors in when it is taken internally. 

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Another opinion - I understand that not everyone gets dyskenisia and the later in life you get PD the less chance of developing dyskenesia. I think too many variables to make any blanket statements. I've also read having a Duopa pump can greatly reduce the effects of dyskenisia.

HHope my 2 cents has some value.

Edited by pdmanaz

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PD,

From what I understand, you have to add in the factor of how long someone has had PD.  Just because someone is diagnosed yesterday, doesn't mean it just started.  I have mild dyskinesia but only when I start to wear off (I feel the need to be different).  The sad part is if you don't have PD and take these drugs, you'll never get dyskinesia. So, it probably has something to do with disease progression.

Dave

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Some Final Thoughts (maybe) for the Lurkers:

Wow! Just one simple question from Italy52 has caused such a rumpus. Already there are 44 replies and 813 views covering 2 pages.

It seems that newbies are still in search of a miracle as I was many years ago. Alas! Our Neurologists only have drugs like Sinemet to hopefully reduce symptoms such a tremors. However, these drugs do not always provide effective relief of symptoms and they have side effects of their own.

If one had bothered to read through my thread, “URSODIOL - A Potential New Drug for PD,” [I know it’s a big read] they would have found the answers to most of these questions. As for many others in this forum, they still don’t believe our findings but have not tried taking it. So here is my nutshell synopsis:

  • UDCA (Ursodeoxycholic Acid) is the generic name for the brand name prescription medications Urso, Ursodiol and Actigall. Recommended daily dose is 1200 mg daily.

  • TUDCA (Tauroursodeoxycholic Acid) is the generic name for the taurine conjugate form of Ursodeoxycholic Acid. It is a non-prescription FDA approved health food supplement. Recommended daily dose is 1200 mg daily.

  • Restore Gold (a supplement):

    • Serving Size: 4 Capsules Daily.

    • L-Tyrosine 400 mg; 1,600 mg †

    • TUDCA mg 300 mg; 1,200 mg †

    • Grape Seed Extract (95% Extract) 60 mg; 240 mg †

    • Green Tea Leaf (50% Extract) 200 mg; 800 mg †

    • N-Acetyl Cysteine (NAC) 400 mg; 1,600 mg †

    • Acetyl L-Carnitine 100 mg; 400 mg †

    • Alpha Lipoic Acid (ALA) 100 mg; 400 mg †

               † Recommended daily dose

               If you like Restore Gold but do not or cannot purchase it from WHP, you can buy all of these ingredients separately to obtain

              equal results.

 

UDCA, TUDCA and Restore Gold provide equal benefits for symptom reduction in Parkinson’s disease. Restore Gold believes that it imparts additional health benefits which may include a further slowing of disease progression. The slowing of progression is only a hoped for result. There is no way for any of us to determine if this is in fact true.

 

Not everyone benefits from this regimen as each of us is different and Parkinson’s is not just a single disease. For those patients for whom it does work, results in the form of symptom reduction vary from almost immediate (1-3 days) to as much as 90 days. My personal experience was 36 hours. Most who posted their results in my thread had similarly fast results. One of those patients was a founder of WHP. Based on my emails, most who have tried this regimen prefer to remain silent.

 

Currently, there is a clinical study of Parkinson’s patients and UDCA. This study is scheduled to end May, 2018.

 

Question: Will UDUCA, TUDCA or Restore Gold interfere with any of my other medications? UDCA and TUDCA are not known to interfere with any PD medications. However, the Restore Gold web site says that the ingredient L-Tyrosine can interfere with some antidepressant medications and thyroid medications. We recommend that you consult with your pharmacist or medical professional prior to use.

 

Question: Are UDUCA, TUDCA and Restore Gold safe for me to take? The use of these products may be contraindicated for you if you suffer from any gastrointestinal issues. If you have any doubts, check with you PCP or pharmacist. All of these products are FDA approved. In the case of UDCA, there is a long term (20 year) clinical study demonstrating its safety at these dosages.

 

UDCA and TUDCA are synthesized bile acids which have been in use since the 1950’s. Bear bile has been used in traditional Asian medicine for thousands of years. Its first recorded use was in the Tang Ban Cao (Newly Revised Materia Medica, Tang Dynasty, 659 A.D.). Bear bile contains high levels of ursodeoxycholic acid (UDCA) known by Chinese doctors to be useful for treating liver and gall bladder conditions.

 

Question: If this product is so beneficial, why doesn’t my neurologist prescribe or recommend it? Every specialist (doctor) has an arsenal of “approved” drugs that they prescribe from. They can legally prescribe any other drug that is not on this list. The uses of any other drugs are then referred to as being “off label.” For example: the drug that I take is Ursodiol which is normally used to treat Gallstones and Primary Biliary Cholangitis but not any neurological disorders.  A prescription for Ursodiol is normally issued by a Gastroenterologist. Since my Neurologist issued my prescription and I do not have any liver disease, my use of Ursodiol is considered to be “off label.” As such, my Neurologist could incur increased liability should anything happen to me. Many of today’s drugs where, at one time, “off label” for their current usage. Recent clinical studies have shown that UDCA or TUDCA may be beneficial in treating a whole host of other neurological disorders such as ALS and Parkinson’s.

 

Fred

mrfritz@comcast.net

 

Edited by MrFritz

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Fred,

My mom was on less PD meds than you before she hit the 5 year mark.  I think the true test for you is how you will progress from here on out with or without   UDCA.   Good luck to you!

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On 8/3/2017 at 8:28 AM, miracleseeker said:

If this company is already in the red then this supplement will be gone sooner or later.   What happens to everyone who think they benefit from it including yourself? Aside from the cost of buying and maintaining this there is also the likelihood of it getting taken away just as your body is getting used to it.    People who don't care about their symptoms or it progressing shouldn't take it?   That would be no one so what you are saying then is that everyone should take it if they care.   Looks like TUDCA would be more cost effective and readily available IF anyone chose to take it.    Good luck.  

Not sure what you are referring to exactly. We operate in the red slightly intentionally.This is so we can make RG so affordable as compared to the alternative of buying all ingredients separately. For example, RG costs with 7 ingredients about as much as buying the same dosage of TUDCA alone. The only way we can do that is to operate with nearly no margin. WHP was formed to help those with PD. I suppose if RG was not available we would all have to go back to buying the ingredients separately at nearly double the cost.

TUDCA alone might be just a few dollars a month more affordable. The last time I did the math, it was about $4.50. So if a few dollars a month are important, and the other six ingredients in RG are not considered immediately important, than a TUDCA alone test might be the way to go. If one desires a TUDCA alone test, Premium Powders and Element Nutraceuticals are sources of TUDCA I trust. I had several brands tested in a lab prior to RG and those faired the best in quality and dosage. I took both of them for a while until RG was available.

Mitochondrial dysfunction is perhaps the largest issue in PD, which is what UDCA/TUDCA appears to address. UDCA/TUDCA also seems to slightly help neuroinflammation but not as much as one might like. UDCA/TUDCA cannot do anything for existing alpha-synuclein aggregation, as it is not water soluble. So the persistent immune response would be ongoing. The oxidation would also still be an issue. Because of these issues that UDCA/TUDCA cannot address other 6 other ingredients were added to RG.

I hope that helps clarify. Your comments are appreciated.

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JDS6958,

You need to refrain from commenting on the product you sell and profit from.  If anyone else comes on here trying to sell their products, they are banned from the site. Just because you say you have PD does not give you the right to peddle your products that you are profiting from. As for UDCA (TUDCA), We should wait for the results from a real study demonstrating what it does for a person with PD rather anecdotal testimonials from people who may or may not even have PD.  

Dave

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3 hours ago, DaveN said:

JDS6958,

You need to refrain from commenting on the product you sell and profit from.  If anyone else comes on here trying to sell their products, they are banned from the site. Just because you say you have PD does not give you the right to peddle your products that you are profiting from. As for UDCA (TUDCA), We should wait for the results from a real study demonstrating what it does for a person with PD rather anecdotal testimonials from people who may or may not even have PD.  

Dave

Very well. I apologize. I was simply trying to be helpful according to the thread topic. I will not make any more comments.

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