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Lorit249

Back from Gainsville and Azilect Study - any others?

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Discovery    378

Hi Lorit249

What is the study? I've been on Azilect for 3 years and it's benefits work well for me.

I didn't realize there was ongoing studies on a med that's already mainstream.

Cheers

D

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Discovery    378

Hey MM, hope all is going well for you!!

Thank you for the link regarding the Azilect study. I'm taking it that Science wants to put a final stamp on whether Azilect indeed slows down the progression of Parkinson's. It will be very interesting to read the results. I had my yearly check up with my MDS at the Pacific Parkinson Research Centre in Vancouver June 27. Dr Mc Keown for the first time in three years didn't talk to me about getting on  Sinemet due to having a positive 2 hour exam. So far so good. Is it due to Azilect? Who really knows. I just know I'm feeling good, however my time will come when Sinemet will be added. I'm not living in a fools paradise!

D

 

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stump    452

I do wish my experience with Azilect had been more positive.  Though, given the cost (even with insurance), maybe that's not such a bad thing for me.  I forget what it would have cost, as I was still using samples from my MDS when she pulled me off it.  IIRC she gave me a 4 week supply of samples, and pulled me off it after 3-3.5 weeks.

 

Very glad for those that tolerate it that there might actually be something to the protective effects.

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MrFritz    110
3 hours ago, Lorit249 said:

Yes that's te goal - to test if Azilect slows the progression - we will see.  

Azilect was my first PD drug. I started taking it in 2012 and I still take it today. It did not reduce any of my symptoms nor did it halt progression. However, it is impossible for me to say if it slowed down progression. That is why I continue to take it today along with my Sinimet and Ursodiol (UDCA). The experience of others may and probably will differ.

Fred

 

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DaveN    425

I participated in a study a few years back to see if Azilect could aid in cognitive decline.  Unfortunately, I was given the placebo during the trial but have been taking it once the trial completed.  It has been very helpful in restoring my cognitive decline and my progression appears to have slowed down.

Dave

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