Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Not Diagnosed, However Need Advise

Recommended Posts

15 hours ago, DaveN said:


Congratulations on not being diagnosed with Parkinson's. I'm sure that must be a load off your mind. You still have some waiting to do to see if your symptoms will clear up on their own.  Try not to focus on everything and remember to excercise.


Thanks Dave, I was expecting a Dx so it was nice to get a hopeful break from that idea for awhile. I just need to put this in a box for awhile, stay healthy and just see what God has in store for me. 

Share this post

Link to post
Share on other sites

I just got a DIP diagnosis two years after discontinuing a neuroleptic. 

My symptom started on one side but now are on both. I personally think it's interesting that the sides behave differently. I've taken to feeling like my body is a separate person because it just doesn't listen to me. 

The MDS I saw said a diagnosis is complicated because of the meds I took. The decision to go off all your meds is desperate but understandable. I share it with you.  

For two years I walked along looking like an unhappy, defeated old woman until CBT made me realize I'm not. 

Lessons you might learn:

You are not a foolish hysterical woman dealing with her stress with hypochondria. 

Do your best to stand up straight, walk with long a confident stride, look people in the eye, smile and speak clearly. 

And if you tremble like an aspen, talk like a drunk and walk into doorjambs then grin and wink. 

Even if you have major depressive episodes they are not anything to take lightly. Respect yourself.  


  • Like 1

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now