Jump to content
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    

Ambulatory EEG after diagnosis

Recommended Posts

My mom was diagnosed yesterday, but I suspected PD all along. She's had a stroke (2014) and also brain tumor (2000.) She also has Diabetes, kidney disease, sleep apnea, hypothyroidism, hypertension, incontinence and near-constant fatigue. She is just 69, and despite these conditions she moves okay (albeit, very slowly!) and tries to have a good attitude. My question though is....

IN addition to an MRI and an EEG, her doctor has ordered an "ambulatory EEG" to be done for 3 DAYS in her home. She does not have seizures though. Anyone else have to do an ambulatory EEG? I'm wondering if it's really necessary b/c it sure will be an inconvenience to her current situation. Or if the doc just wants to do it for monetary gain?

Share this post

Link to post
Share on other sites

Wanted to make sure you got a response.  


I haven't heard of an "ambulatory EEG" previously.  I think if I were you (assuming you go with your mom to her doctor appointments) that I'd be asking a lot of questions about what (s)he's hoping to learn from such a test that can't be learned from less invasive/costly testing.  If you can't get a straight, sensible answer to that I'd advise mom to skip that test.  


One thing about any medical condition, and PD is no exception, is you have to be an advocate for yourself (i.e. your mom) or on behalf of your loved one if a caregiver (i.e. you).  Doctors, prevailing assumptions on many of their parts notwithstanding, are not God, and they are not infallible.  Just because they have M.D. after their name, and you don't, doesn't mean you have blindly trust everything they tell you.  

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now