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Superdecooper

Handwriting changes

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Hi everyone,

The worst part of waiting to get diagnosed is worrying about the what ifs. In the meantime, I just wanted to say how much I hate the fact that my handwriting is changing, for whatever reason. When I write in cursive I can't read it and when I try to write with long-hand, it's smaller and takes a lot of force to get the words on paper. 

Concentrating on writing slowly and clearly seems to be making a small difference, but it's taking some concentration on my part. I'm not sure what's going on yet, but I'd sure like to have my old handwriting back. Super annoying. I'm a journalist and I take notes for a living when doing interviews... So this is becoming a troublesome. 

If it turns out I don't have PD, then I'm still going to have to figure out why this is such a problem.

 

-s

Edited by Superdecooper

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Superdecooper,this is the anxiety that comes with PD like symptoms.It changes lifestyle.Just try to do as much as you can do now,as per functioning,until you get a diagnosis.You may not have PD afterall.and if you do,you just have to readjust,and plan for the future.It will not be the end of life.

 

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Thanks Oto,

This has been a really difficult time since last week. I'm almost wishing my wife didn't nag me into getting the stupid tremor checked out. I only went because I started dropping things and my signature started looking crazily on some days. 

Now I'm beginning to realize why men stop going to doctors' visits. Maybe not knowing is better.

I don't really believe that it's just frustration. Don't worry, I'mhanging in there.

-s

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Ouch today.

Nerve damage in my c-spine causing my right thumb to burn and tingle combined with essential tremor causing it to shake.

Not good. Not good at all.

Can't take gabepentin for nerve damage cause it kicks me into having vivid night dreams.

I'm hanging in there

 

-S

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Have you seen some sort of specialist that might be able to help with this symptom?  Maybe one of the specialists you have seen in the past:  That sounds like an awful trade-off to have to choose between.  I'm so sorry.

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I could ask my PAin Management orthopedic doc for an RX for nerve pain, but it will be something like Lyrica or Cymbalta or Graylise. Those meds have side effects that are just not worth it - they make me forget about colors and see the world in all grays, especially Cymbalta. 

 Plus, I’m not sure what I would do if I end up getting another referral for an MRI for my cervical spine to rule out another bulging disc in my neck. 

So im going to do what men have done for decades, no centuries: ignore it as Long as I can so it will go away. ....Just kidding. 

Theres probably some physical therapy exercise I could do. Oh joy

-S 

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13 hours ago, Superdecooper said:

I could ask my PAin Management orthopedic doc for an RX for nerve pain, but it will be something like Lyrica or Cymbalta or Graylise. Those meds have side effects that are just not worth it - they make me forget about colors and see the world in all grays, especially Cymbalta. 

 Plus, I’m not sure what I would do if I end up getting another referral for an MRI for my cervical spine to rule out another bulging disc in my neck. 

So im going to do what men have done for decades, no centuries: ignore it as Long as I can so it will go away. ....Just kidding.   LOL!!!!

Theres probably some physical therapy exercise I could do. Oh joy 

Something I had meant to mention to you that I read the other day for tremor in hands--The article said that squeezing a flexible ball (you probably know the kind of ball I mean--the flexible for therapy) in your hands is helpful.  Maybe just making and remaking a fist might work, too?  IJ like the idea of the weights on the wrists.  I can see where that would really help.  And something my dad did to better control his shaky hand when writing was to hold his writing hand's wrist with his other hand.  I tried it, and it really works.

-S 

 

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Wow, that is so odd. I've been squeezing my stress therapy ball for the last week because my hand is very stiff and painful. I actually brought it into my bedroom last week and put it on my nightstand so I could squeeze it as soon as I wake up.  

It really has made a difference. But my hand is kinda painful and I didn't know that that was also a symptom of Essential Tremor. I thought it was just the shaking, not stiffness too.  

I have to do some reading to see what other folks are doing.

-S

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Hi gang, 

So, I am making some headway in getting new technologies to help combat my shaky hands at work. The IT department gave me a trackball mouse  that should cut down on the number of double clicks. I also learned how to change the settings in windows and word  to stop some of the double strikes and miss spelling. 

  My hand writing is noticeably messy,  so I'm not sure how to deal with that.  I can't read what I write. That's discouraging  to me. I'm going to be testing out some  Voice to text software this week.  Maybe I can use that for notetaking? 

I am also looking for a new audio recorder and possibly a Bluetooth earpiece.  

I also found an organization called the  International essential Tremor foundation.  I might volunteer some time with them if  I can do it in a way that doesn't conflict with my journalistic responsibility not to engage in Advocacy.  

I also  talked to my company's  EAP counselor and the HR department to get some help dealing with this.

 So a pretty successful week, I'd say. 

-S

 

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I'm still wondering about my super stiff shoulder - could be cervical spondylosis - so that's the pain management orthopedic doc, I think. I know it's not a rotator cuff tear, but it could be scar tissue. 

But what about my stiff and painful right hand. I'm not sure which doctor treats that. Is that related to essential tremor. And I'm still having some  vivid dreams and night shaking. I talked to the pharmacist who doubled checked my meds and none have dreams and jerking in my sleep as a side effect. 

Maybe I'll just ignore that for a while? If it's still happening next year I will reschedule a visit with the neurologist in February. 

Edited by Superdecooper

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Hi, Superde.  That makes sense to be checked again inFeb.  It will give a little more time for you, too,to see if the symptoms continue or not.

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Hello Super Scoop, 

I'm glad that we have another super hero on the forum.  One can't have too many Super Heroes in their corner when the Evil Parkinsonaurus is on the prowl.  Which Reminds me.   Where is Super Lady Shera? And while I have your thread detoured a bit Mr. Super D  Scooper, I need to ask Linda this:  You like nicknames for everyone...how have you managed to stick with just plain Linda.  Should we start a "Pick a name for Linda Campaign."  Not that there is anything wrong with Linda.  It is a lovely name and you wear it well.  Okay Super Scoop, I will get back on topic.

Back in 2007, when I still worked as a carpenter 50 hours a week, I was starting to encounter a bit of a problem with my right hand.  It was not doing what the old brain was telling it to do by way of the nervous system and all those neurotransmitting cell towers that connected up the communication system between Motor control portion of my brain,  and parts of my body that needed to move as requested.  Or be still as requested. I had been treating it as you suggested Super De Cooper:  I was ignoring it.  I knew it was only a pinched nerve and it would eventually revert back to normal and I went to my doctor to confirm my assumption. Imagine my surprise when the good doctor did a few tests on my movement and said that I needed to see a neurologist and perhaps even a trip to a movement disorder clinic.  And few months later it was confirmed.  I had Parkinsons.  

When I started to review what this was all about and scrolled through typical symptoms, one thing that came up was that handwriting gets smaller and trails off.  Which was exactly what was happening.  Signing a stack of Christmas cards became a task.  Filling out addresses on envelopes became a chore. I told them at the bank that my cheques may have a signature that looks like this or this or this....  If not careful, I could have trouble reading my own grocery lists. 

The problem with handwriting is  that it is an act requiring fine motor control.  If I was writing on a chalk board with big strokes powered by shoulder and arms, my writing is better than when doing finer strokes using more wrist and fingers.  Try carrying a chalkboard through the bakery section at the grocery store. 

In conclusion,  No one should let me perform any type of neuro surgery on your brain., don't look for Christmas cards from me in the mail, I'm glad that we have a journalist on the forum,  I hope that you don't have Parkinsons SuperdeScooper, Linda is still Linda and that is fine with me, and I hope Shera is doing great but she should say hi once in awhile (maybe you have and I missed it), there are many others who should check in once in awhile, and I hope that you don't mind me yammering on in a straight circle on your well intentioned thread .

Hope that you get the answers that you are seeking SuperdeScooper.

All the best to you and everyone, jb

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Hey JB

I love getting mail from people who address me or my alter ego Scoop Newsworthy.  Fyi, the doctor has already diagnosed me with essential tremor,  and my hand writing isn't getting smaller it's getting larger and floppier and crazy looking.  I still have some other symptoms that match up with the non-motor ssymptoms of PD,  but I'm taking the ignorance is bliss  route on those -  it's what any self-respecting  red-blooded male would do.  Right now I don't have Parkinson's, and as far as I can tell I'm not in danger  of developing it, even though I know some people do get hit with a double Whammy. 

 My fine motor skills are also taking somewhat of a beating when it comes to typing, mouse control, holding books and newspapers, drinking  from a coffee cup or glass, or doing exercise.  Exercise causes my tremor to kick in  as my energy output increases,   Especially stretches that cause my spine to twist. 

 I'm thinking of putting my journalism skills to use on behalf of Parkinson's  and essential tremor, but I have to do it in such a way that does not conflict with my solemn responsibility not to engage in advocacy. I think I might be able to do some blog writing but I have to be careful. 

 Christmas is coming you're right, JB. But I think I will have my wife do the cards. I've decided that the best role for me would be to put up the Christmas tree and string the lights.  My brain is sending signals to my hands to tell them to jump around, but the switch seems to be stuck in the on position.  Not all the time but often enough that I get a little embarrassed. I don't like that. But what can I do about it. Whatever will be will be.  Didn't Doris Day become famous seeing about that?

In the meantime I've been going to the movies and living vicariously through the stories on screen. I love movies. I also love music. In my future I'm going to write a movie soundtrack. It's going to be great. 

 By the way Linda, here is a link to a song I wrote in early 2003.  I wrote the music and the words.

https://youtu.be/WJtD4Jug6WU  

-S

Edited by Superdecooper

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