Jump to content
helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    
MDdoglover

Diagnosed 6 months ago at the age of 52

Recommended Posts

Hi everyone. Let me start off by saying I'm still in that scared to death mode with this being new. Nine months ago I mentioned to my primary care physician of how my hand would tremor when I would go to put my contacts in in the morning. The look on her face is something I will never forget. She  gave me a  referral to a movement specialist for Parkinson's. I didn't go. The symptom didn't go away. Then I noticed my handwriting getting smaller and messier. I renewed the referral and went - with my husband and mother in tow. I think I cried for half of the appointment. I felt like an idiot.  After some finger tapping, toe tapping, circle drawing, etc. he told me my symptoms pointed to PD. I was sent for an MRI of my neck and brain. Both came back normal. I went back to him 3 months later with little, if any, change. I go back again in November. He  told me PD is hard to diagnose and if I wanted a definite answer I could get a  test done where they check my dopamine level. However, since I don't have a "resting  tremor" he would not prescribe medication at this time. Do I have it done or no? Only my left side is affected at this time.

Yesterday I had a meltdown, not my first, my second. Just an incredibly sad feeling, no crazy feelings, just feeling alone, lost and sad. Life moving in slow motion. Normal or no? I talk to my family but I feel like they don't know what to say. I have found comfort reading a lot of the comments. It helps to know other people are showing the same symptoms as me and how they deal with it.

Bless us all. Staying positive.

Edited by MDdoglover
misspelling

Share this post


Link to post
Share on other sites

MD Dog Lover, 

Why are you so sad? Parkinson's is not the end of the world. Your not going to die from having it. It will make life interesting sometimes but it's certainly not something to fall apart from. It's not like you have terminal cancer. My suggestion is to start an excercise program, which is known to slow progression, and live your life.

Dave

  • Like 1

Share this post


Link to post
Share on other sites

Dave - I’m not sure why I was so sad. I’m not like that everyday. I plan on staying as active as possible and continuing to work. Thank you for the encouragement. 

Share this post


Link to post
Share on other sites

 It's a process. Life will be different but it can still be great. It is overwhelming and scary at first but you will be ok. I did a journal early in my diagnosis-it helps to just write it down, type or voice record. Looking back at my journal I have come a long way since my DX 3 years ago. You will get there. As Dave said... Exercise... Find something you love to do. If you & your husband like to dance, I highly recommend it. Keep moving and dance like no one is watching! 

 

Peace-

LAD

Share this post


Link to post
Share on other sites

MDDoglover,

It is very understandable to feel grief and sadness when confronted with this disease. As stated by others, of course it could be worse but that does not away the elephant sitting on your chess as you manage your progression through the grieving process. PD is a manageable disease but it is tricky and it requires fine tuning. There are a lot of medication options and one of these options will be right for you. It will take time, effort and patience to find it.  Exercise cannot be understated.  it is not a matter of putting it off for later, it is a routine that has to be incorporated in your life today and every day. Only through acceptance can we find happiness or at least contentment.  Sadness might be alleviated by PD medication.  Your brains lack dopamine which does many things one of which is to reward us for achievements.  When we do things and get little or no reward we tend to not want to do them again which leads to apathy, more sadness and isolation. It is a long journey, time to unload the unnecessary and conserve energy by investing it where it matters. You can find happiness/contentment in spite of PD.

Norm

  • Like 1

Share this post


Link to post
Share on other sites

Try to take one day at a time.  I was diagnosed about 5 years ago. I'm now 48.  I recently had DBS.  Over the years, I found that it's almost impossible for my wife and I to plan our days in advance.  When I was working, I missed several appointments.  I was basically unreliable.  You and those around you need to understand each patient is unique.  And each day is different.  How I feel today doesn't dictate how I will feel tomorrow.  It took a long time to accept this.  Some folks will compare you to their Uncle John that had PD; thinking we are all the same.  That is not the case.  Take each day as it's own.  Be ambitious, but don't expect to accomplish everything today.  And, honestly, it's ok to have a pity party and stay at home once in a while.  Rest is important.  About once a week I spend almost a day just resting my body and mind.  And get to your doc. Depression happens a lot with any incurable disease.  And remember, PD won't kill you, it's not a death sentence.  There's always someone at the grocery story that is worse off than you.  Seek that person out and offer to help them. They could use your help.

 

 

  

  • Like 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


×