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Melissab

When did you notice tremor on previously non affected side?

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I was diagnosed with early onset PD a few months ago. Always, my tremor has been left side only and that's also where the MDS notes rigidity and bradykenisia. I am only on amantadine. I've noted my right foot tremoring a few time but usually it was after exercise so haven't thought much of it. Today on my way to work,while driving, my right foot was quaking on the gas pedal and I couldn't get it to stop without moving my whole leg away. I really hope this is coincidence and not progression. In my left side, my hand is most affected, so is it even normal to  "skip" to another limb when it does start to progress? 

Edited by Melissab

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My non dominant side will tremor sometimes depends on situation or position. It's not a regular occurrence. 

 

LAD

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I had tremor in left hand for years and years before I knew it was PD.  I just thought it was normal---just part of me.  But I sought out help for a probable PD diagnosis when my right hand started to tremor in 2013, which I had read on line is a sign of PD.  I was seen and diagnosed immediately by that, as well as my slowness in moving, difficulty getting up from a seated position, and a few other things I can't remember.  DIdn't have to go through any tests except cognitively and physically in the MDS's office.  It was confirmed by another neurologist and a brain cancer surgeon who also helped in diagnosing PWPs.  They were all with the same hospital group, so it was not a long, drawn-out procedure to get my diagnosis at all.  Oh--and another thing noticed was that I have sometimes a masking.  I knew that happened occasionally but didn't realize it was from PD.

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I assume you mean affected side rather than dominant side from the context of the conversation.

 

I only bring that up for any lurkers that might get confused.  For the record my tremors are on my left side whereas I'm VERY right side dominant.  

 

I have, after 2 years since diagnosis, and not quite 3 years since I noticed symptoms that lead to that diagnosis, no tremors on my dominant right side.  

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Symptoms started on my non-dominate side, left side, mostly in my left arm and hand. First dystonia, then tremors by the end of 2012. Diagnosed in 2013 during my first office visit to a neurologist, at which time the tremors were more noticeable. Sometime in 2014, toward the end of the year I think, my right arm began to be affected with tremors, but not dystonia. Now, my right hand tremors worse than my left, but to date has never contracted dystonia. That has stayed only in my left arm.

When symptoms start up on the previously unaffected side, that is known as stage 2 of PD. So far, I've not progressed to stage 3, which is when balance issues become a bigger factor, freezing can happen, falls are more likely, and any bradykinesia becomes more pronounced. I'm hoping my exercise regimen for the last 2.5 years and the DBS I'm getting this week will delay stage 3 for many more years.

Of course, the earlier you get it, the slower it progresses at first, generally speaking, if there can be any "generally" statements with this disease! Seems everyone experiences it differntly, even if we have many of the same symptoms.

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Stump, you are right; sorry for the mix up but thanks for the correction! Yes, I am right handed but tremors are on left. My concern was the shaking foot on right side!

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My experience is that the tremor on the left side started first. I could do everything with the right side. Then for 9 years there was nothing on the right but increasing tremor on the left. It became intolerable and I underwent unilateral VIM  DBS and the tremor suddenly stopped.  for the first few years after DBS all was normal. Then tremor started on the right side and eventually became intolerable. Thus 7 years after the first one a second DBS was done as bilateral STN. Now I am OK except for drooling and speech problems. I hope this story helps.

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Melissab,

I am right side affected by PD and my dominate side is right. (I know sucks) I also will get a tremor in my left foot from time to time. Depends on stress and fatigue. Stress and Fatigue will make dormant symptoms come out.  My MDS said this is nothing unusual. My DATScan show loss of dopamine cells on both side with one side being worse than the other.

Good luck and keep asking questions

Blessings

Adam

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