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Alaska8925

Just Diagnosed

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Hi,

I'm 35, married with 4 kids, I was recently diagnosed with Parkinson's roughly about a week ago. I can say it's been a really long and frustrating journey. I've likely been having signs and symptoms for around 6-7 years, been seen by several neurologist and doctors, with a lot of them saying that they just didn't know what's going on, and I'm too young to be having issues. It wasn't until I saw my current doctor who finally reviewed all my symptoms and history, and came through with the Parkinson's diagnosis. I have been put on sinemet 25/100, 3 times a day, and my symptoms have been better, the muscle stiffness isn't as bad, and my tremors have decreased. I am still dealing with speech and swallowing issues, also not sleeping through the night/restlessness. Any tips or suggestions would be great!! 

Thanks!!

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The beginning is tough even though it's not really the beginning. If you don't exercise regularly---start. There are lots of PD specific programs... Fund something you love to do. Exercise is one thing everyone agrees is beneficial for PD symptoms. There is a program called big & loud. It definitely targets speech & swallowing. 

There are some good relaxing techniques and yoga type music helps me. 

Welcome to the forum. Trust that you will be ok. Keep a journal on how you are feeling so you can tell your doctor. It helps to sort out things in terms of your meds. 

Good luck,

 

LAD

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Welcome, Alaska8925, to the long and winding road. As you read these pages, you will see that there is much good to be found in life even after a Parkinson's diagnosis. Don't be afraid to ask questions. You may find yourself on an emotional rollercoaster as you adjust to your new life. Know that this is normal.

You might find comfort from a book by a fellow Alaskan, Peter Dunlap-Shohl, titled My Degeneration: A Journey Through Parkinson's. He also has a blog: http://offandonakpdrag.blogspot.com/

We will be here with you, sharing our experience, strength, and hope.

Dianne

 

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