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toontrev

Muscle weakness?

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Hi all I was dxed with YOPD a Year and half ago age 35 (now 37) it was predominately it my right side (dystonia right hand, foot drop right foot) about 3 month or so ago I have developed what I can call muscle weakness/loss of strength then it shakes in my left arm.

When I am "on" there isn't the issue but when i am "off" it is and I feel all sluggish to add to that... So I have to go for a lie down.

I spoke to my Parkinson's nurse and she says "I also advised Mr.******** that if this does not help to improve the symptoms, then it may be wise for him to discuss things with you, as there is a possibility that this is not Parkinson's disease related." that is what she put in the letter to my doctor.

I seen my doc a week after and she did blood tests everything was ok so 13th October I went back to the doctors she did relex test on my arm and checked my strength she said that it felt that it was all there and she believes it's down to my PD.

I have found this website https://www.apdaparkinson.org/understanding-weakness-parkinsons-disease/ that describes what I mean.

Anyone had this issue?

Trev

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Uh....yeah. My MDS always checks my grip strength and leg strength, I guess because if it weakens, my PD is getting worse. As of my last visit I was fine, but I think my next visit will be slightly different. I seem to be getting a bit weaker, but it's been over 3 years since diagnosis, so I suppose that's to be expected.

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Hey MM....D here!

Buy a Bender Ball to work on strengthening your fingers, hands and legs....I use it and I also do a workout session teaching my Support Group Members how to benefit from using the ball. The Bender is soft and easy to use. Also great to put behind your lower back when sitting.

Cheers!!

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Grip strength has always been identified by the multitude of the VA doctors, in my case. All with varying determinations be as vast as the number of treating providers.

But in my opinion my hand grip strength would best be described in the context of the degree of rigidity or stiffness at the exact moment of the evaluation. And this varies greatly as does almost all of my PD symptoms, due to the complex algorithms of PD management.

 

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The strength issue is really getting to me!

One thing that worries me is what if it's not my PD causing these issues, but then wouldn't the doctor have picked up on it when I visited last Friday and this Monday?

Going to the doctors again tomorrow and ask for them to do some checks on me... Would a UTI make me feel like this?

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I have had weakness through my legs and upper chest at times. Really concerning but, I've had complete cardio physicals and im healthy. The weakness isnt all the time. Been told its typical with PD.

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