Jump to content
helplinedonate
  • Announcements

    • ForumAdmin

      Frequently Asked Questions - Step by step guides

      Do you need assistance registering, logging in, posting, etc? Please visit the all new Frequently Asked Question Forum for step-by-step guides. Click the link below to access these helpful guides. Frequently Asked Questions
    • ForumAdmin

      Recursos Nuevos en Español

      http://www.parkinson.org/ayuda   http://www.parkinson.org/espanol    
    • ForumAdmin

      Línea de Ayuda 1-800-473-4636

      Línea de Ayuda 1-800-473-4636   ¿Qué es la línea de ayuda 1-800-4PD-INFO (473-4636) de la Fundación Nacional de Parkinson? Es un número de teléfono gratuito que ayuda a las personas con la enfermedad de Parkinson, sus familiares, amigos y profesionales de salud, a solucionar diferentes inquietudes.   La línea de ayuda ofrece: Información actualizada Apoyo emocional Referidos a profesionales de salud Recursos comunitarios Amplia variedad de publicaciones gratis    
Sign in to follow this  
pjdugan1

Help with Duopa pump

Recommended Posts

My husband got his Duopa pump on November 20, 2017.  We had great hope that this would be great from what we read.  We have been back to doctor 7 times now trying to get the dose right, and thought we were there twice.  He is getting 4ml morning dose, 2.6 continuous rate, 1.5 extra dose as of yesterday.  It has been taking 1 1/2 to 2 hours in the morning to get him going, while his tremor leg goes.  Gave him an extra dose again this morning, seemed to help so thinking we still need to increase morning dose.  On the pills, kick in lasted only 45 minutes.   Yesterday he was good all day long, till 4pm, even after increasing his continuous rate.  Third day that come evening, he falls apart.  Gave an extra dose at 4pm, had dinner at 5pm, by 6pm, had to give extra dose again.  Did nothing, couldn't get out of his chair, had to help him up, had to use walker again, which he hadn't used in almost a year, and I had to help him undress for bed and shut down his pump.  Never before was he unable to take care of himself and this is distressing him no end.  We have tried his medical marijuana in the morning and helped yesterday, not today much.  Tried that last  night to see if it would help as he has been very anxious with this whole thing.  Doesn't do well with change.  Marijuana didn't seem to help either.  We had hoped the pump would allow us to do things again in the evening, but has made it worse than before so far.  Any suggestions on what can be done for the evenings, to carry him through?  After he flushes the tubing, he gets jumpy feet for 1/2 hour in bed.  And, he can get up for the bathroom all night with no problem, and in morning is good for about 1/2 hour.  He is already getting to the point of having the tubes removed and going back to the pill.  I thought you may have experienced this before since you have been doing this longer than his neurologist, who apparently hasn't had someone this difficult to get right so far. 

Edited by pjdugan1
Added information.

Share this post


Link to post
Share on other sites

The pump is primarily good for waking hours but meds are usually needed overnight.  One thing for the day is to possibly ask your team to increase infusion rate but this will not address the night.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

Sign in to follow this  

×