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BlueLion

Just got the news ūüėē

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Soooo.  I'm on the PD team at 43 with a wife and two little ones 7,9.  My Anger is almost explosive.  I am so sad for my little ones that I am at a complete loss.

The Dr said I should take Cymbalta and I am lined up for so many more tests,  with a full time job and the little ones I feel like my stress level is in the RED!  Im ussually a very upbeat person and the life of the party but now I'm just mad/sad.  

Since I am preaching to the choir, I am sorry but only my wife knows and I had to vent somehow.  

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It is a process.  Anger is part of it but so is accepting, adapting & adjusting. If you exercise and get a good MDS, PD symptoms can be managed. Exercise is the best thing you can do for yourself - find something you love to do- exercise with your family. My husband and I started Dance lessons when my MDS recommended it. We've been dancing for 3, years. I also do a program called PWR...www.pwr4life.org. PD is not for wimps so choose to fight it. 

Be present in your life. Don't worry about what may or may not happen. Everyone is different. Your mindset is part of the battle  every day. Eat ice cream for breakfast with your kids. 

Keep a journal-it's a great way to vent. You will look back and see how far you've come. 

LAD

 

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Welcome Blue Lion,it is not the end of life.Mad,sad and fear of the future are all the emotions that comes with the diagnosis of PD.Like LAD stated,exercise has been the only weapon proven to slow down PD.Let's keep hoping for a breakthrough towards finding a cure.Keep exercising.

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Thank you for the advice. LAD and otolorin, I am a former professional athlete and I exercise religiously.  I will not stop/nor give up.

Have any of you taken Cymbalta?  Does it help?

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Welcome to the club.  Not that you wanted to join.

 

I was diagnosed at 38.  I have 4 kids, a career, and at the time I was also half way through an MBA program (I did finish it, on time even).  So I can fully empathize with where you are.  That said, anger and stress are not going to help you.  I've never taken any anti-depressants so I can't help you much there.

 

If you need to talk PM me your phone number.  Happy to tell you my story, listen to yours, and hopefully help you process things.

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22 hours ago, BlueLion said:

Soooo.  I'm on the PD team at 43 with a wife and two little ones 7,9.  My Anger is almost explosive.  I am so sad for my little ones that I am at a complete loss.

The Dr said I should take Cymbalta and I am lined up for so many more tests,  with a full time job and the little ones I feel like my stress level is in the RED!  Im ussually a very upbeat person and the life of the party but now I'm just mad/sad.  

Since I am preaching to the choir, I am sorry but only my wife knows and I had to vent somehow.  

Hello BlueLion,

Don't say you're sad for your young kids.  For one thing you are still young and chances are you will witness new discoveries (meds) /maybe a cure ?? in your lifetime. Second, in my experience, my son (whom I had at age 40, some 6 years after diagnosis ) has grown up with a PD mom and has evolved into a very considerate person, always there to help others in difficult situations and does not seem to have been affected by his mom's disease.  He will turn 25 on December 26 and is  a very positive and successful young man.

On April 1st last, I celebrated my 30th anniversary of diagnosis. Am still around, doing reasonably well (I had surgery in the meantime). PD is not a life sentence.  You can keep an almost normal life (except for taking meds). So enjoy life and treasure every moment.

Take care,

Mireille

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Welcome! I’m 38 and was diagnosed in July, with a 13, 11, and 2 year old. I had been having troubling issues for more than a year so a diagnosis actually was a relief-validated I wasn’t crazy! Now that time has passed I can’t lie and say I don’t have my doom and gloom moments, but things are ok with a few meds and a pretty positive attitude and, of course, exercise. I work full time as a school district asst. superintendent and am 1/2 done with my doctorate which I will finish early. I don’t want to be studying away family time and I do think this disease has made me see priorities a bit clearer. I wasn’t a pro athlete, but I ran several marathons prior to diagnosis and am still running. You’ll be okay! Some people took the news worse than others (of those that know) but with time they’ve gone onto normal again. 

Edited by Melissab
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BlueLion,

Welcome to our corner of the internet. A place you did want to go but I am sure you will find help here.

I was diagnosed at 35, I understand the whole fear, anger, and my life has ended feelings. Took me about a year and a healthy positive attitude to adjust. I can honestly say I am happier now with my life than I have ever been.

Friends and family will react differently. Some will pretend nothing is wrong with you, some will genuinely want to know how your doing and want to learn exactly what is going, and a few will just start to loose touch. (ignorance is bliss rings true with the friends that loose touch) For the most part once I was diagnosed I told my family and few close friends. Almost all were supportive. You will find that some friends will as the general question of how are you doing, to them I answer "Good, I am doing good" then some will say "No I mean how are you doing??" that is my signal they really want to know how PD is going. These are the ones you will want to hold close to your heart.

Sounds like you have a positive attitude for the most part, Keep it going, it will do amazing things for you. I not sure if you mentioned if your doctor is an MDS (Movement Disorder Specialist) or not.  If they are and you are working well with them then keep going. If not I recommend finding an MDS neurologist you trust.

If you have any question or need to vent feel free to send me a private message.

Blessings

Adam

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Hi Bluelion,

Its normal that you found yourself consoling to your friends. I remember when I had my routine 1:1 with my manager , I was collapsed  in tear , non-stop through out the meeting. This was 1.5 year ago. Now I feel way much better, you will as well. I don't cry anymore. Time will easy your anger and sadness, keep yourself busy. I'm doing fine since being diagnosed, no change in term of functional status. I am still medication free.  You take care. It takes time to accept. Now I am in stage to read and educate myself.  PinkDaisy

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Hello Bluelion,
i am father of 4 (4,9,13,15) diagnosed 4 months ago at 38. Still adjusting to my new symptoms. First month was a  worst for me and now i am emotionally in much better shape .Humans are highly adaptive species, so  I guess key is enjoy present moments you have and try not to blame yourself. I think there are quite a few more nasty deceases and life situations. It is also good filter to validate your relationships.  I am financially worry about my kids, but at the same time they are biggest bright angels of my life and purpose to keep moving. 

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Thank you all for your views. Today I went for the second opinion.  Different Dr. Same Dx. I knew it would be. But I went anyway. I dont think that makes me foolish.  Just hopeful I think.  

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Hey Blue,

I've taken cymbalta before. It does work to make you less depressed and more willing to see past feelings of anger and sadness. That's the good part. For me, Cymbalta eventually turned off all feelings and left me feeling like a straight gray line.. I couldn't see colors or feel passionate emotions after a while. Eventually, I realized that life was less, so I got off that medicine. But, it wasn't a straight withdrawal. I had take it slowly - i think 1/2 a pill less per week over a four week period - and the process left my head buzzing whenever I breathed in and out, sort of like a buzz saw.

Now, as everyone always says - medicines are different for everyone. Also, I was on other pain medicines at the time so there may have been interactions. My advice would be to read the medicine side effects, and determine if you are okay with the risk and reward. You may just need it for a short while until you can cope. As for me, I did find it helpful, but I noticed a difference in my emotions and views after I stopped taking it. It was like a light was turned back on.

Once again, I repeat, only my experience.

-S 

Edited by Superdecooper

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