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JP509

Early Symptoms

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I have been visiting a small Army of Doctors over the last year and that due in part to lags between referrals etc.   I go to visit a fourth Neurologist in June who specializes in PD, at Duke University which where the last neurologist thinks the problem lies.   I have not had typical symptoms in part because I was B12 deficient which caused it's own set of issues and tremors.   Anyway post B12 supplement, I am left with the rare tremor but I still have a right side that is slow and stiff, right arms does not swing and my right foot turns out to the right .   I get spasms etc but my question is in the earliest of your symptoms did you notice when you wake up in the early morning like 4:20 am the hand may move almost normal but then quickly begins slowing down?  I realized this recently when I woke and could not go back to sleep.   I found a similar disease called Dopamine Responsive Dystonia that based on my research act similar to what I have experienced.  Since I have to wait till June to get any further, I start doing some experiments to ensure I provide the Dr. with a full picture of my daily experience with these symptoms.  Just curious if folks with PD would experience a similar improvement after sleeping, of course this is pre-medications for PD.

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Just before I was diagnosed. I would wake up my feet were a little stiff but my movements were much improved from the night before. Generally a good warm shower and some stretching and I felt much better. I could get through most of the day before my stiffness and minor tremor would start up again. I first noticed this about 6 months before my initial diagnosis, then it lasted about 6 months after diagnosis. That is when I started taking medication and I felt 100 times better.

Hope you find the answers you are looking for with your doctor appointments. If you do find out you have PD, in the mean time, exercise (cardio helps), try and eat healthy, get good sleep as best you can. Then stick with a good Movement Disorder Specialist who specializes in PD.

Blessings

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4 minutes ago, adams234 said:

Just before I was diagnosed. I would wake up my feet were a little stiff but my movements were much improved from the night before. Generally a good warm shower and some stretching and I felt much better. I could get through most of the day before my stiffness and minor tremor would start up again. I first noticed this about 6 months before my initial diagnosis, then it lasted about 6 months after diagnosis. That is when I started taking medication and I felt 100 times better.

Hope you find the answers you are looking for with your doctor appointments. If you do find out you have PD, in the mean time, exercise (cardio helps), try and eat healthy, get good sleep as best you can. Then stick with a good Movement Disorder Specialist who specializes in PD.

Blessings

That does help.  I was kind of hoping that the stiffness and slowness was linear all the time in PD.   This means to some degree the DRD and PD can act the same in the early stages.   I Guess I wait and deal with the symptoms and impacts a bit longer till I hopefully get a diagnosis.  Makes sense that at night dopamine levels elevate a little while sleeping so both would benefit.

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As you sleep, your body will build up a store of dopamine, thus in the morning you will find that you feel better till you have depleted that supply.

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I never really noticed any slowness prior to my diagnosis. Tremor, stiffness, foot spasms, swallowing issues, and a little shuffling of the feet were my symptoms.

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