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Noledynasty2490

27 Male Frightened of YOPD.

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Hi all. Couple weeks ago I felt a tremendous pain in my right hand, that I chalked up to working a register, texting, etc..maybe carpal tunnel. Next day the pain shifted to the other hand and my fingers began to twitch. Me being the idiot I am googled these symptoms and came up with Parkinsons.

 

It's really not so much my hands that bother me. The pain and twitching comes and goes with use so that doesn't worry me. It's the nonmotor signs, particularly sleeping. I've always been an anxious guy, but these hypnic jerks I've been having are ruining my life. I've tried OTC sleeping pills,  muscle relaxers, nothing is helping. Then when I do finally fight myself to sleep it's for maybe 2 hours and then I have some vivid dream and wake up. Rinse, repeat. Also recently I've been acting out dreams, like the other day I was having a dream where I was writing and I woke up to my hand crumpled up like it was holding a pencil.

I've also been dealing with major constipation,  which has now turned to extreme diahreea..but i don't see that as a PD symptom, only constipation. My sense of smell and taste are fine. 

All this gave me a panic attack and I just had to get out of the house and go to the ER to talk to a doctor. When I told him my fears he gave me a quick physical Neuro exam.. (checking for rigidness, gait, tremor, etc) said I was fine and then wanted to refer me to a shrink. I expected all this mind you, but I really needed to get out of that house.

The lack of sleep has led to huge depression on my part, I find it hard to laugh at stuff I used to find funny, sometimes I force a smile just to know that I can. I don't have the money or insurance to go to specialists who I know are just going to tell me.." you're 27 with no physical symptoms, it's stress, go home." So is this all in my head? How do I go about a solution from here? This lack of sleep is just crippling me.

 

Thanks for any help. I've been reading a lot of these posts as a guest and you guys seem like a really nice community.

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Nole,

When I first started having very early symptoms, they strictly looked for MS, didn't find it, and told me it "may be just the way my body reacts to things". After a 2 year carousel of worsening symptoms, here we are. That's my precautionary tale about listening to one opinion--always get a second one. Even if it's something small, it never hurts to ask.

My symptoms began with stiffness in my shoulder and hip, then posture drooping, then a twitching finger, then dystonia in right foot/toes/hand, then progressive stiffness in right leg, right arm, face and so on and so on. Arm swing on right side slowly goes down (now just sits there, so I have to put my hand in my pocket). Then my upper body muscles started to puff up like I had been working out for hours. In terms of sleep, I began having night sweats and waking up 4-5 times per night. This all started when I was 29 going on 30. This didn't just happen suddenly though, it took months and months and months of continued progression from my first sign of shoulder pain. To be where I am now, it's been nearly 2 1/2 years of slow creeping up of symptoms, and even now I'm definitely functional (although obvious if not medicated) and do very well on Requip. This coupled with the fact that my grandmother, great uncle and great grandfather from the same side of the family had PD, I was put on an agonist last year. 

With that being said, and granted I am not a doctor (but I did stay at a Holiday Inn Express last night), it almost sounds like focal hand dystonia or carpel tunnel (there is such a thing as dystonic tremor as well).  Shifting from side to side is also not a usual thing with PD--symptoms usually start on one side. Mine all started on my right. In terms of your sleeping issues, not sure.  It could be stress (as much as I despise saying that because I know how that feels to hear) but it could be something else. Bowel habits wise, over the course of the last two years I've begun to slow down or have incomplete movements, which is notable for me because I have IBS-D. Anxiety can cause diarrhea as well, it has before with me many a time. This coupled with the panic attacks you describe definitely may have something to do with anxiety.  

At this point, if you've had that quick neuro exam, go to a GP and talk to him/her about your symptoms. I do think you have a legit concern about your health, but I wouldn't worry about PD if I were you at the moment. But still it is best to be proactive about your health and you took a great first step by asking us and going to a doc. It will definitely help for you to seek a second opinion.

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Honestly, I think the referral to a shrink was a good idea.  This clearly doesn't sound anything like PD and a shrink might actually be able to help. 

I also think you need some help with your Google skills if you input rapidly changing hand pain and you got PD. 

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You might be setting a record getting Parkinson’s at 27. Majority of people get Parkinson’s mind age in 50s. Relax, what you have is not Parkinson’s. Stop diagnosing things from internet. Similar thread to read. 

 

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18 hours ago, waruna01 said:

You might be setting a record getting Parkinson’s at 27. Majority of people get Parkinson’s mind age in 50s. Relax, what you have is not Parkinson’s. Stop diagnosing things from internet. Similar thread to read. 

 

Number one, there have been people diagnosed with Parkinson's earlier than 27, so no, it isn't a "record". I agree that the person probably doesn't have Parkinson's, but that attitude is exactly the reason why some people (a lot of us in this forum 29-35) get the neurologist run around before we get a diagnosis.

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