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Late stage PD and higher doses of sinemet & Stalevo

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I am in the late 4th stage of PD. I had to up the dose and frequency of Stalevo 200mg 1 every 4 hrs.. 6x daily and 25-100 sinemet 1 every 4 hrs.. 6x daily. It really  helped, as there was extreme freezing and tremoring in between doses. I was  at 1600mg of carb/levo daily. With this regemnt I am taking 1800mg total daily. And there is not the traumatic FREEZING AND TREMORING.  I know t won't be 2 months tops until this dose is not going to be enough. But, the quality of life is better than the quantity. Is there any suggestions on doses or meds for late stage PD patients. Thank you.

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As you know there is not a one size fits all medication regime. It sounds like you are on the right path, unfortunately we don't know how long the path is.

The only thing that I can see that may help you is a product called Apokyne. It is a quick release injection, the mechanism is very much like a clicky pen, and it help reverse off periods within a matter of a few minutes. This can really increase the quality of life in many patients.

Lastly there is DBS. I have seen it work wonders in late stage patients. That may be an option you may want to discuss with your Dr.

Godspeed my friend, you are not alone. We are here for you.

I hope this helps and please keep me posted.

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