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PixelPaul

Doctor says symptoms 'consistent with' PD

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It looks like on March 1, 2018 that I joined the club none of us ever wanted to be a part of. Upon examination my neurologist said my symptoms were "consistent with" Parkinson's Disease. The hours and days that followed have been a mixture of just about every emotion imaginable.

My journey towards this diagnosis began in May 2015, when after returning from a long bike ride I had numbness and tingling in my right hand .When it didn't go away, I saw a doctor and after several tests it is was diagnosed as an ulnar nerve compression. I opted for physical therapy instead of surgery, and by late 2015 my right hand was back  to about 95% normal functionality. I was pleased and I felt fine for about a year. Then in late 2016 I started to notice a decline in fine-motor skills in my right hand. My handwriting was declining. In addition I started to have constant tension in my right hamstring and foot. The leg never felt like it was in a rested state. Then I noticed my right arm didn't swing freely like the left arm. In early 2017 I returned to the doctors, and over the next 15 months saw numerous specialists, and had countless tests: x-rays, MRI's, CT scans, nerve conduction tests, EMG's, etc. It wasn't until last week that it now appears to have been correctly diagnosed. Now that I look back on it, I am somewhat surprised that it took so long as it seems some of my symptoms seem like "classic" PD.

My current symptoms are limited to the right side of my body and include:

  • constant tension in right hamstring and foot
  • loss of fine motor skills in right hand, my handwriting has become almost illegible
  • some rigidity in right arm, arm does not swing 'naturally'

I haven't yet experienced any tremors. I'm sure I've had noticeable symptoms for at least 15 months, but almost certainly longer.

My doctor has suggested I start in right away with Azilect (rasagiline), .5mg 1x a day for two weeks then 1mg after that. I guess this is more of a preventative medication used to delay the progression of the disease? Other than this, I am trying to be like a sponge and learn as much about the disease and treatment options as fast as I can. I'm surprised to learn that I'm a bit young by PD standards. It's been a while since I would consider myself young. It seems like exercise is very important, which is good for me as I enjoy being active as much as I can. Now it looks like I can be a bit more selfish with my time and exercise even more!

I spent quite a bit of time this weekend reading through many posts on this forum, and I came to appreciate the supportful and positive comments. I look forward to becoming an active member in the future.

 

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Keep biking!!! If you love what you do for exercise you will stick with it and that is so important. exercise is one of your best tools in the PD toolbox! 

Just remember it's a process.... Life is different and not what you planned but it can still be good. 

Stay strong & stay hopeful!

 

LAD

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Hi, you are welcome.Keep exercising according to LAD, You are not defined by PD.Hope for a cure,they say is on the horizon.

LOl.

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Welcome to the club, Paul

You can check out at anytime, you just can't leave! 

Like you, I just started on Azilect recently. I'm hoping for the best and exercising every day to stay as lose and limber as possible and to keep my brain healthy. So far, I haven't adjusted my diet as much as I'd like, but that's coming. And I'm becoming more patient with myself... so what if I keep dropping stuff and knocking things over ... I'm trying to make peace with who I am and what I can do now and not dwell on how some of the simple things I used to do without thinking are now more difficult.

Feel free to ask questions.. I've found that somebody on this forum will have already had the experience and can offer guidance. That's comforting, especially when frustration kicks in.

-S

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My symptoms started on my left side and the constant tension in my leg was frustrating.  I started worrying that I'd never be able to fully relax my body again.  It's one of those things you take for granted until you can't do it.  Luckily levodopa gives me relief and now when I relax I take mental note and fully appreciate the feeling.   

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Hi Paul,

Glad to see another Ohioan here!  I am near Cleveland.  I was diagnosed 16 years ago at the age of 33.  I have never had a problem with tremors, but I do have issues with the other hallmarks of PD...bradykinesia (poverty of movement) and rigidity.  Slowness on the left side and lack of arm swing were my initial symptoms.  Currently, in addition to a host of "normal" PD symptoms, I am also dealing with alot of dyskinesia from being on PD meds for so long.  PD is experienced very differently from person to person, but thankfully, it is a manageable disease overall.  Sorry you have had to join the group, but you've found a very supportive and knowledgeable resource in these forums.  Hang in there and feel free to ask as many questions as you need.  Chances are, someone here will have an answer, a thought, or (at a minimum) will know someone else who does!

Peace and blessings,

Mihai (Michael)  

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Pixel Paul,

Sorry for joining in the welcome party so late.

Your story sound familiar to almost all of us. I hope you find some relief from the Azilect as I did when I first started it. Hang in there, the first year is rough. Just know that the life you thought you would have hasn't ended, it just looks different. I can honestly say that after I finally adjusted to my new reality I am more happy now than I have ever been.

Blessings

Adam

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