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johnny

sleep apnea and cognative decline in pd

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On 4/11/2018 at 8:59 PM, otolorin said:

Johnny,have you seen a sleep specialist?He might be of help.

I have been on a cpac for 7 years now,Im now looking into alternatives.I always think about what did others do long before the CPAC came around.

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Been on CPAP since 2014 myself.  Did you change your pressure setting on your own or as a result of a new sleep study?  What is myoclonus? Leg twitches while in bed?

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I just talked to a specialist about this on Friday. She told me I should have my sleep study redone, since my incidences of sleep interruption are pretty low - 1- 5 per hour.  (I know someone who has 15 to 20 per hour). She said I should be tested for Rem sleep behavior disorder - which is a different test from the sleep apnea test. 

My cpap usuage has cut down on the snoring and jerking awake gasping for air. 

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hi

my apnea was about 25 ahi beforethe cpac went down to 5 with it.It went back up to 15 for some unknown cause.Last night i used a large pillow behind me so I couldnt roll over and it went down to 6.Hope it stays that way also no jerks yet today,lol Awhile ago i posted a video of my myoclonuson dr.Okum  ask the doctor

I wish I could find others with this problem,lol

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wow johnny, 25 incidents seems pretty high. When is the last time you had your mask refit. Also, they make a special pillow for cpap users. Maybe your provider can get one for you. I think they cost between 40 and 60 bucks. They are kinda shaped like a T.

-S

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I have Lewy Body Dementia. And myoclonic jerking is something that folks with LBD often get. It consists mostly of involuntary jerking of arms and/leg and/or body core shortly after bedtime. It also can occur at any other time of the day, but it is most frequently seen while in bed. I am no doctor, so take advice from your doctor. The jerking is almost like putting your fingers in a wall socket and getting a good jolt. That what it feels like to me anyway. They come and go, so no a constant thing. I always assumed that Parkinson people got them too, but I don't know about that. I have fairly full blown Parkinson crap along with the Lewy crap. But Sinemet and PT has resolved a large part of my Parkinson stuff.

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7 hours ago, BillBRNC said:

I have Lewy Body Dementia. And myoclonic jerking is something that folks with LBD often get. It consists mostly of involuntary jerking of arms and/leg and/or body core shortly after bedtime. It also can occur at any other time of the day, but it is most frequently seen while in bed. I am no doctor, so take advice from your doctor. The jerking is almost like putting your fingers in a wall socket and getting a good jolt. That what it feels like to me anyway. They come and go, so no a constant thing. I always assumed that Parkinson people got them too, but I don't know about that. I have fairly full blown Parkinson crap along with the Lewy crap. But Sinemet and PT has resolved a large part of my Parkinson stuff.

Hi Bill,Your electric shock sounds familiar,I get it also before the jerking starts.I use to get it at night also when I was taking requip 8 mg.Now I hardly ever get it in bed.I also get it more late in the day and when im resting.I've cut down my sineemt(on my own)to 2 pills a day stopped the cr 50/200 If I wake up early I can take a half 25/100 and sleep till 800am.I've had the jerking since fall 2114,it went away for 5 months when I switched c/l brands,unsure now if it was the cause.I have it now only when Im idle after movement.Cutting back severely on sinemet has helped jerks and I hardly miss it for the other PD problems.Things that bring it on left hand pill rolling,talking,moving around then stopping.I can also feel its presence before it starts,i think that's a form of askinsia (drug side effect).You do sound pretty good cognitively.I also think my jerking is a form of dystonia as now with a low dose c/l the jerking resembles dystonia more.

My doctors have done nothing to help this problem since I got them except to see a shrink.lol

best to you Bill

john

On 4/11/2018 at 8:59 PM, otolorin said:

Johnny,have you seen a sleep specialist?He might be of help.

I have been on a cpac for 7 years now,Im now looking into alternatives.I always think about what did others do long before the CPAC came around.

Edited by johnny

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