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Pa Pa Doug

Nightly bladder problems

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How do you cope with the over powering need to urinate at night, I mean the three or four drops thing all night, get up, waking my wife who knows I do it just  to torture her. I really need any ideas you have, I don't care if it's silly or not but I need a good nights sleep.  This has just developed in the last four months and I have had three bad falls that I attribute them to not getting enough rest , Yes I've been to a urologist . Ant help would be so much appreciated   Doug

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Because there could be a number of different medical issues causing your problems, I'll break down what I take for two of mine:  (1) For Parkinson's effect on the bladder that caused me frequent and extremely urgent needs to urinate large volumes, and leakage, I have a prescription for Myretriq from a urologist who has a sub-specialty in Parkinson's/Movement Disorders;  (2)  for symptoms of benign prostatic hyperplasia, I have a prescription for Cialis 5mg for Daily Use (generic: Tadalafil that I buy from a reputable pharmacy in Canada because insurance won't cover it and prices in the U.S. are too extremely high).  Talk with your MDS and urologist about which might be best for your symptoms.

 

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I have the same problem.  In my case ıt happens when I need a little bit of the necessity to urinate  at daytime or nighttime and decide to go to the restroom. Suddenly the pressure rises terribly and I must urinate. When this happens at daytime it is not that bad. But if at night than sometimes I can not tolerate any more and that is it.  This started 3 years ago and became more and more frequent. Now I have a solution I wear a baby napkins for individuals at night. Due to the napkins'  psychological support I assume there has been no problem since then. I would recommend it.

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I am not too sure what is different in my personal life at this time but for about 3 weeks now the having to go at night has given me a break. I have been reading about the necessary things that one should have or not have to expect a meaningful night of sleep ( dark, cool, quite, no tv or computers, white noise, maybe soothing music, relaxing bath or shower ). I think a major factor for me is getting my wife to stop eating and reading in bed, then complaining about her shoulder hurting the next day.

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No words of wisdom.  But I did help my MDS with a research project looking for the causes of overactive bladders.  I was a control subject (so diagnosed with PD, but no bladder issues), which is actually one of the hardest categories to get enough subjects.  So, I've done what I can to help with your problems.

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AS a young person, I was never very good at holding my urine back.  Small bladder I think.  Fast forward to present, 11 year veteran of PD and the owner of an enlarged prostrate gland that makes it difficult to drain my little bladder and make it gladder I still have issues but I do understand it better.

1.   I did have appointments and time spent in the pee clinic with an urologist who concluded that my pd twitchiness, and  a bladder that doesn't draikn easily has put me in a position of urinary urgency.

2. I do ok with it. It isn't my biggest problem.

3. A lot of my urgency is in my mind, not in my pants.

4.  Usually I only go to the Bathroom once a night when I sleep better.  Some nights when I am more restless, or sleeping lightly I go more often.  

5. Google "key in the lock syndrome"  You will be surprrised by the number of people returning to thier home,  who find the  urge to pee grow as they unlock the door, put the groceries down, pet the dog, pull off the snowboots and run to the bathroom.

6. I find that I need to be very casual about finding a bathroom that is available for use before I make the concious decision that "OK, I have to go to the restroom."  The countdown has started from that point.  If I find the intended restroom is not available,  whoa! The urgency status just got dialled up.

7. If my body temperasture is warm, I have better holding power,  If I am cold, I can not hold back as good.  A cool night is not a good night to drink cold beer around a campfire if toilet facilities are not easy to access.

8. If I am travelling, I avoid the morning coffee and I limit juice and water even though I know that dehydrating myself is not a good thing to do. But it does help the urgency thing.

9. I have some belts and zippers  that are easier to use than others which can be hard to loosen off.  If my fumbly fingers are victims of a low med off time compounded by a higher than usual urgency and I am doing the "gotta pee real bad right now shuffle" things can get tense.  When this happens and I finally get it done, I know that I am not done.  I need to relax; think about drinking cold beer while watching Niagra Falls and going through the car wash. Try to relax, relax, don't let the Restroom out of sight. Guaranteed, I will pass more water.. A tense full bladder doesn't give up easily.   Its like a little encore.

!0.  I get by with this problem ok.  I have closecalls, I usually use the bathroom when it is available when travelling even if I don't feel like I really need to.  And I have worn Adult pullups when on long drives or airplane just in case.  Never had to test them yet!

 

Remember this:  You are not alone, lots of people suffer this problem..

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Benadryl (diphenhydramine) helps me.  You can purchase it over the counter and it is easy to get.  Tylenol PM also contains diphenhydramine.  Sadly there some issues with it but then there seems to be an issue with almost anything one can take for Parkinson's.  

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Hey Lahdedah,

i have a cold this week. I'm having a problem finding over the counter cold meds because they all contain Dextromethorphan, which conflicts with Azilect in some way. 

Edited by Superdecooper

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Thanks everyone, even if there is no resolution to the problem it's comforting to know someone else understands. I'm really working on it, and having some relief. Still need to go but only one time and then it's an amount that provides some relief. Limit fluid intake in the evening, after the last meal no juices or carbonated things after afternoon and sadly no cold beers after lunch, needless to say Pizza Hut should be feeling the revenue drop. As Foghorn Leghorn said " that's a joke son " .

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