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Discovery

Running out of energy

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Dr. Okun,

I have Parkinson’s and Facilitate a Support Group for my city. Today I was teaching Mindful Walking and a question came up from 4 members.

“Why when I’m walking at a good pace doing well, heel toe good pace, after 20 minutes I’m tired? My Body slouches and I’m out of energy. I’m not on off time”

Can you give me an answer for my Parkinson’s members? What’s the reason? How to change?

Sincerly

Discovery

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Thanks for the question. Each person needs an individual evaluation to discover if there are issues that can be addressed by changing the exercise regimen, medications or other options. 

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On 4/19/2018 at 9:08 PM, Discovery said:

Dr. Okun,

I have Parkinson’s and Facilitate a Support Group for my city. Today I was teaching Mindful Walking and a question came up from 4 members.

“Why when I’m walking at a good pace doing well, heel toe good pace, after 20 minutes I’m tired? My Body slouches and I’m out of energy. I’m not on off time”

Can you give me an answer for my Parkinson’s members? What’s the reason? How to change?

Sincerly

Discovery

I have discovered that Sinemet works like a battery recharge for me, and its effectiveness depends on how much energy I exert. After my morning dose, I walk about 2 miles and do 20 min of tai chi before noticing a return of "off" symptoms, i.e. gait, etc.  When I take that same dose later, my "on" time lasts longer as my activity level is usually less. In fact, if I  take a normal dose and just read or watch tv,  dyskinesia starts to develop. But when I have higher activity levels, like bicycling or pickleball, I find it helps to take an extra half dose so as not to burn out quickly. It took me a while to understand, yet is very helpful when planning activities. 

This effect wasn't as noticeable early in the disease, and DBS has substantially reduced my dyskinesia.

- 14 years Parkinson's, 2 yrs. unilateral DBS

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