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DBS for unremittiing pain

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Guest

Dear doctors,

 

In 1999 I underwent an anterior discectomy with fusion C3 through C7. I was diagnosed with Parkinson disease at the end of 2001. In 2003 I began to experience pain in the neck and left side of my head and was diagnosed with occipital neuralgia. I've gone the route of medications (including methadone and vicodin); have had 7 injections to block the pain (locally and at the Mayo Clinic). Nothing has helped in the years since this pain was diagnosed. Now I am experiencing unremitting pain that gets so severe that I have vomited on occasion. When the pain is at its worst, my balance is severely compromised and I have severe headaches that make it seem like my head will explode. My only relief is sitting or lying down. I have worn a soft cervical collar from time to time which gives some relief also. My Parkinson seems to be under control with my Sinemet (25/100)--6 times a day and with Selegiline twice a day. In Deep Brain Stimulation for the constant pain, is there a chance that that surgery would worsen my Parkinson disease? Is one and the same DBS used for both Parkinson and the constant pain? I am 70 and a retired music teacher.

 

Thank you for all that you do to help this large community.

 

Clayton Henderson

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This type of pain is not usually treated with DBS to the brain.

 

Botox and physical therapy may be one approach.

 

Also, some people use local marcaine and other nerve blocks.

 

Finanlly, some medications may be effective.

 

There is a DBS like procedure that stimulates the spinal cord but for this type of pain it may or may not be effective.

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