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jb49

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jb49    642

Good morning Parkys.  Hope you all had a good weekend.   For Canadians, it was a long weekend, I spent some time  with my brothers and sisters at the family cottage.  Mom was there for a day too. It was fun.

hi PolyParkie, and SoCalGal.

Great Vid LAD, where does your son get that outgoing exuberant talent I wonder.  Oh to be 13 and wishing I could shave ...that seems awhile ago to me.

Hope you are  doing good Dianne, and Linda.

I hope you guys that read this column, soon start writing some posts here, the numbers are a little lopsided here, men and women posting that is! ,

Why is that?  I really don't mind but c'mon you guys, jump in  here anytime, it isn't a 13 year old school dance with us standing along the walls,  

Good days to everybody.

jb 

Fists to the sky in defiance to this Parky thing that tries to drag us down.

 

 

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Pathfinder    65

Good afternoon!

Medical appointments today, our reward is a nice lunch out! Look forward to those.

It has been so cool here, reminders of fall, must enjoy the season now and not long for sweaters and apple 🍎 pie!

Hey guys! Give jb some support here! 😜

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Linda Garren    735

In 2017 Civic Holiday in Canada is on Monday, August 7.

The Civic Holiday is celebrated on the first Monday of August and it's a public holiday in some provinces and territories. The civic holiday is not a statutory holiday although it's a day off for many employees across the country.  The Civic Holiday is commonly referred to as the August long weekend. It is probably the busiest day on highways as tens of thousands of families go camping, to cottages etc this weekend.

It is known by many names in different provinces and municipalities.  It's called Regatta Day in Newfoundland, Terry Fox Day in MB, Saskatchewan Day in SK, British Columbia Day in BC, Natal Day in Nova Scotia and PEI, Simcoe Day in Toronto, New Brunswick Day in New Brunswick, Colonel By Day in Ottawa, Heritage Day in Alberta and Joseph Brant Day in Burlington, ON. It is called Benjamin Vaughan day in the City of Vaughan, Ontario.

Correction sent in by a visitor: Civic Holiday is not called "Simcoe Day" everywhere in Ontario, only in Toronto. Each municipality that opts to declare the holiday can give it a unique name. It's called the "civic" holiday because it's the holiday that cities have authority to declare.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

jb, no wonder you didn't explain to us what the long weekend was for!!   So many names for it!  (It sounds very much like our Thanksgiving holiday as far as being the busiest holiday in terms of travel.)  I certainly think the States should celebrate a Civic Holiday, with each state giving it the name of something unique about it.  Humph!  <_< 

So what/who is "Simcoe"? 

It seems everyone--everyone--in Canada has a vacation cottage.  And very often on a lake.  That is really so nice, and I can well imagine how nice it was to be with your family.  How old is your mom?  Is she in good health?  So nice that she could be with you all.  My family had a cottage on a river here in Maryland, and there are so, so, so many good memories from our times there.  One thing that everyone almost always mentioned is lying in bed at night and listening to the river lap against the seawall. :-)

Well, jb, we're glad to hear you had a good Simcoe Day and weekend!

Linda

 

Edited by Linda Garren

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LAD    202
On 8/5/2017 at 11:30 PM, SoCalGal said:

That was terrific.  You should be so proud of your son.  Loved the lyrics!  

Lorraine

 

Thanks! 

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LAD    202

JB- I have a Canada story....my husband & I first started dating on a cruise to throughout the st Lawrence seaway....it was s school trip that was supposed to be to France but too much political stuff was going on and the School said we count not go. However it was too late to cancel so 2 catholic sisters took about (20) 17/18 year olds on a cruise to French speaking countries. I don't think Sr Pat or Sr Judy were ever the same. On the bright side they came to our wedding 5 years later😊 I remember Quebec being beautiful and on my list to go Back!

 

LAD

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em45    13
On 06/08/2017 at 4:18 AM, LAD said:

ok ...since you all know about my sons...my youngest is into theater- this is him and the cast doing a flash mob performance...my son is in the front singing solo 😊 Feel free to skip this - it's just something fun

wow what  a performance..well done to your son  LAD..

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LAD    202

3 years ago today I was getting a pre surgery nerve test done when the dr conducting the test said "I think you have PD" ... what a journey this has become...I'm glad I found this forum and this thread along the way!

 

LAD

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jb49    642

Good morning Parkys.  

 

Morning Linda and LAD, I'm glad everyone finds a place somewhere on this forum.  I often wonder what happened to some who were regular posters that aren't here anymore.  Where did they go?  

10 years ago LAD I went to the doctors cause my right hand was not behaving as a right hand should.  I had no idea what a fork in the road I had arrived at...

LAD I forgot to thank you for reposting the iceberg of parkinsons and what is visible.  And the province of Quebec is pretty.  Quebec City is very French, and the old buildings are beautiful.  It is one of the oldest European Cities in North America.

Linda, I never knew as much about the Civic Holiday as you just taught me.  I never heard of Simcoe Day before. Thank you!  I do know that Simcoe was a Governor of Upper Canada a long time ago in the 18 hundreds. 

Hi Em, how are you.  You could likely start a flash mob with your singing couldn't you.  That would be good!  Get Lucy to help you out perhaps. 

My Mom is 88.  She loves the cottage, but the cottage with rocky stairways, slopes 2 stories and an outhouse is not so friendly to people with mobility issues. She has diabetes, uses a walker, is clear in the mind and well loved and respected by many.  She has spent many great weekends at the cottage that she helped build with Dad.  I remember I was 17 when we built a sleeping Cabin on the property that they bought.  The cottage is now owned by my brother and sister.  That arrangement has worked well for the last 10 years or so.  I'm glad that you have good cottage memories too Linda

Tomorrow is Friday again. Who doesn't love a Friday?

Be safe, be strong,

jb

 

 

 

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Linda Garren    735

jb, this is so normal for threads.  Up and down as to people posting.  I'm sure it doesn't have anything to do with people not liking it.  Sometimes a thread can go for a long time with hardly any posts.  Yours will probably not be that way, though.  I suspect it will just be a short time and people will start posting again.  Also, with it being almost mid-August, many may have taken a last-ditch vacation.

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bard    19

Good Morning

Just a quick hello from smoky British Columbia

Bard

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jb49    642

Really good morning this time.  My Previous good morning was typed around Midnite Thursday night.  I have been busy of late and my computer time is limited.

Linda, actually I was not thinking so much of this good morning thread running thin on  people,  but rather about the Forum as a whole.  I know that after awhile, interest can slip, it gets harder to type, and other social sites appear.  I know this because I  go missing sometimes as well.  I do wonder about some people who have disappeared and how their health and lives are.

And Path Finder, I realised this morning when I became mobile again for another day that I forgot to say hey to you last nite..  Thank you for asking those other guys to join in with a post. (Even once in awhile with a  one line message)    PF, you mention sweaters. I love the fall and pulling on a sweater to stay warm.  The autumn is a wonderful time in my mind.  The bugs are gone then, it isn't so hot, humidity eases, the leaves are changing.  And Apple Pie.  I suspect that you make the best Apple pie on the Eastern Seaboard.  With cheddar cheese, vanilla ice cream, or whipped cream. Or what the heck, all three.  Rethinking this.. No, your pie gets no diversionary tastes. I would take it straight.  Actually, I am starting to smell it. The cinnamon scent is escaping to deliver a message to everyone that PF's apple pie is cooling down and will soon be ready for a fork .  Amazing that I can smell it, not even quite the season, 1000 miles away from this unmade pie, and me with a Parky sense of smell.  PathFinder, you have a SSschweeeeeet Day and weekend with your Hubby. 

Safe Weekends to you all, jb

PS, I got onto a list for DBS, I will have to go to Toronto for the surgery and programming. I think I need it now. Surgery is likely 6 months away still.

PSS, I just got a notice on my screen that Bard has spoken. Hey Man, glad to see you. How are the fires in B.C.

Psss. A thousand times my Dad (RIP 4 yrs now)  sat down to apple pie, asked for the cheese, and informed us all that ``apple pie without cheese is like a kiss without a squeeze.`` 

 

 

 

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em45    13

Hi guys..hope all's well ..hope all works out with DBS  jb .

  .hi Bard hope all are good in BC we have family there a place called Trail fabulous there..

Take care everybody and i'll say it again thank you for this forum..

Em 

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Beau's Mom    1,053

Good morning, jb et al. That's good news about the DBS, jb. I understand it's quite a process.

I'm not allowed apple pie--no apples or crust in my diet. I do have a recipe for a killer gluten-free Key Lime Pie if anyone is interested.

I'm off to see the Pulmonologist now.

Dianne

 

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Pathfinder    65

Hey everyone!

Where are those Granny Smith apples 🍎 I got lots of pies to make?!😜

Grandson is here today, spending the night, and we are seeing the movie Nut Job 2. Should be a lot of fun.

Best of luck jb for your procedure, that's a long time to wait.

Hubby is facing some ups and downs lately, he has to be so weary with it like I am.

As for posting on our board, sometimes it takes too long to do when there is so much going on. As a caregiver and chief cook and dishwasher, pharmacy clerk, and chauffeur there isn't always lots of time left.

Off to enjoy a nice lunch with hubby and GS!

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Linda Garren    735

jb, that's good to hear you are getting DBS. And nice that you will be able to get it rather close to where you live. 

It must be very hard to keep up with all the farm work you have to do in the meantime.  Will your grands and others be able to continue helping you out?

Isn't it wonderful that there is surgery that will help with advanced symptoms and also that a lot of research in general re: PD is being done.

Will be praying for you.

 

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Linda Garren    735

P.S.  Ever since I read an article on all the benefits of cannabis tea for Parkies, I've been encouraging others to read about it.  It has so many benefits for so many of our symptoms.  I checked in with my MDS and he seemed fine with my trying it and wants me to report in on how it goes.  Does anyone here drink this tea?  I know for a long time there have been discussions on marijuana, and I'm wondering specifically if anyone can vouch for the tea?  :-)

 

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MIMILASTER    79
10 hours ago, jb49 said:

Really good morning this time.  My Previous good morning was typed around Midnite Thursday night.  I have been busy of late and my computer time is limited.

Linda, actually I was not thinking so much of this good morning thread running thin on  people,  but rather about the Forum as a whole.  I know that after awhile, interest can slip, it gets harder to type, and other social sites appear.  I know this because I  go missing sometimes as well.  I do wonder about some people who have disappeared and how their health and lives are.

And Path Finder, I realised this morning when I became mobile again for another day that I forgot to say hey to you last nite..  Thank you for asking those other guys to join in with a post. (Even once in awhile with a  one line message)    PF, you mention sweaters. I love the fall and pulling on a sweater to stay warm.  The autumn is a wonderful time in my mind.  The bugs are gone then, it isn't so hot, humidity eases, the leaves are changing.  And Apple Pie.  I suspect that you make the best Apple pie on the Eastern Seaboard.  With cheddar cheese, vanilla ice cream, or whipped cream. Or what the heck, all three.  Rethinking this.. No, your pie gets no diversionary tastes. I would take it straight.  Actually, I am starting to smell it. The cinnamon scent is escaping to deliver a message to everyone that PF's apple pie is cooling down and will soon be ready for a fork .  Amazing that I can smell it, not even quite the season, 1000 miles away from this unmade pie, and me with a Parky sense of smell.  PathFinder, you have a SSschweeeeeet Day and weekend with your Hubby. 

Safe Weekends to you all, jb

PS, I got onto a list for DBS, I will have to go to Toronto for the surgery and programming. I think I need it now. Surgery is likely 6 months away still.

PSS, I just got a notice on my screen that Bard has spoken. Hey Man, glad to see you. How are the fires in B.C.

Psss. A thousand times my Dad (RIP 4 yrs now)  sat down to apple pie, asked for the cheese, and informed us all that ``apple pie without cheese is like a kiss without a squeeze.`` 

 

 

 

Hi JB !

Going to Toronto for DBS is the best option you could think of ! The Toronto team with Lozano, neurosurgeon,  and Lang, neurologist, is known worldwide for its early involvement with DBS procedure.  I know someone who had DBS for Parkinson's there as early as 2000.  There is also this great Doctor from Italy, Elena Moro, who was trained in Grenoble, France. You couldn't think of a better team. I wish you all the best for the forthcoming DBS procedure.

Mireille

Edited by MIMILASTER
Correcting typos
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jb49    642
On 11/08/2017 at 9:05 PM, MIMILASTER said:

Hi JB !

Going to Toronto for DBS is the best option you could think of ! The Toronto team with Lozano, neurosurgeon,  and Lang, neurologist, is known worldwide for its early involvement with DBS procedure.  I know someone who had DBS for Parkinson's there as early as 2000.  There is also this great Doctor from Italy, Elena Moro, who was trained in Grenoble, France. You couldn't think of a better team. I wish you all the best for the forthcoming DBS procedure.

Mireille

Hello Mireille,  

Thank you very much for your opinions and input about my upcoming DBS procedure at Toronto Western Hospital.  

I have had this Parky disease hanging over me since I was 49. Next year I will be 60.  When first diagnosed I was not too worried about it.  I thought I was handling it pretty well, I could stop my  tremor with my mind, I could pull myself together and walk without showing much dragfoot, My Neurologist  had new medicines to put me onto, Mirapex. Requip, Azilect, with Levadopa as a final tool.  I was part of a good drug plan to pay for these expensive drugs, research was turning up new ideas for treatment and I felt like I was going to beat this Parkinson's Disease.  Besides, there was no time to be sitting around shaking and shuffling around the house.  I had too many trails to ride, projects to do, home repairs, trips to enjoy and I always wanted to build a cabin in the woods for my grandboys to overnite in.  I was going to retire soon from working as a carpenter and get back into playing softball with the other old guys in town, with hockey to follow in the wintertime.  I used to argue online with man who called himself "Net Gypsy" who warned me of the problems of agonists (root word agony:?, see mirapex and requip.),  He had experience and knowledge: I had a strong body and self denial.  At about age 55, I was still confident in my treatment plan, my personal strength and determination to push through the off times of my medicines.

As for DBS, I never considered having that done.   But things change.

I'm sorry Mireille, I sometimes ramble on without a clear sense of where my conversation is going or when it will end.  I admit that I am nervous about having DBS performed on my brain, but I also accept the fact that it has helped other Parky People that I know feel better. It is my hope that DBS will allow me to cut back on volume of drugs I require,  have less off time, and  more control of my tremor. I understand that DBS won't turn the clock back, but it may slow the decline of my health.  It is good to know that where I am going to go for the procedure has an excellent team and reputation, known about by you across the Ocean in France.  

Once again Mireille, I appreciate you taking the time to Endorse the Toronto Western DBS clinic.  It does help my confidence .

I will sign off now with 2 of my favourite quotes from members of this forum, Paper Bag Princess, and her defiant  "A defiant fist to the sky" and Tremor Girrrrll's observation  "Parkinson's Disease is not for Wimps"

Thanks again Mireille, and good health to you,

jb,49. 

 

   

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Linda Garren    735

jb, really good post expressing your thoughts and feelings and also your well-planned-out goals for retirement.  And I think it's perfectly normal to have some nervousness about taking the step of surgery.  I keep thinking, though, how PWPs (yourself included) get to a point where they know it's better to get it than not to, and you are there, aren't you.  I'm finding that there are more and more trade-off types of decisions we have to make as we get older and/or sicker that are really difficult when each decision has positive and negative things about it.  I'm facing one of those with a potential change in treatment for a rare blood cancer I have.  It's not easy. but with excellent specialist's advice and the input and experience of those in this Forum and other Forums who have gone through similar situations, we can at least feel good with having a well-informed basis on which to make a hard decision.  There is definitely some amount of grief and working through acceptance of what is that is inevitable.  But even in that, there is such comfort in being part of a group of wonderful friends on our forums who support and care about us.   And for myself, I find the greatest direction, comfort, and help with acceptance of difficult things through the Lord.   These two poems always come to mind at times this these.  The first one describes the ways in which we look for peace, and the second one has some additional thoughts and is so beautifully and simply written:  https://newthingspringingforth.wordpress.com/2013/05/07/in-acceptance-lieth-peace/ 

Have a nice evening, and thanks for sharing all that you did so we can go along with you for the next 6 months and after.

Linda

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LAD    202
  • Prayers to you Jb49! I am relatively new to the PD journey. I truly appreciate all the support and insights you all give myself and others. I am currently on an agonist and doing well with it. I am scared of the unknown and what the future holds but one of my favorite quotes from MJ FOX BELOW sums it up for me at this point in my life..I'm trying to fill the space with good things. 

Paece-

 

LAD

 

With Parkinson's, it's like you're in the middle of the street and you're stuck there in cement shoes and you know a bus is coming at you, but you don't know when. You think you can hear it rumbling, but you have a lot of time to think. And so you just don't live that moment of the bus hitting you until it happens. There's all kinds of room in that space

 

Edited by LAD

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otolorin    28

Hi,jb49-   Good luck on your decision to go the DBS way.Have you considered other option like the du dopa pump?I know  that some pwp on this forum have recommended the pump for people who are scared of brain surgery.If I may ask,what are your current symptoms,which defy medications,that makes you  consider DBS?Just like LAD posted above,the whole PD journey is so scary.We can only continue to pray for a breakthrough miracle for a cure.It will happen in our life time,by the GRACE OF GOD! AMEN.

Edited by otolorin

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jb49    642

Thanks for all replies. I will expand when I get a chance and the chores are caught up.!  Have good days my friends. jb

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