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jb49

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Hello Everyone,

When I grow up, and develop better work habits, I hope to become more disciplined and attend to required paperwork in a timely manner.  I have had the papers here to renew license sticker on my car for about 2 months.  It can be done online or at a government office.  I renew mine at the office usually but decided to do it online this time. You can do it online up to the date of expiry which would be midnite tonite.  It took me about 25 minutes and had about 30 minutes to spare.  Next year I will do it at 6 oclock on the day of expiry instead of waiting until 11 pm.  

Linda, the hospital is a teaching hospital affilliated with the University of Toronto  and there are many wonderful and clever minds at work there.  The group  that will work on my brain take referrals from neurologists  from all areas of the country.  I think that is the way they keep things in order, in Budget and organised.  Your cousin could contact the hospital, Toronto Western, and ask for the neurology department and make a request for an appointment but it would be a long process.  Most specialists take new patients through your family gp which partially sorts out cases and they see the proper doctor.  Does this help you any?

Good to see and hear you She Ra, Cabin in the mountain sounds great to me.  If the thought of snow excites you Sheila, I will swap you a farmhouse for a mountain cabin down south  for 3 months next winter.

Hi Dianne, sounds like a rough weekend for you. That tube is bugging you again!  Still?  Sorry for that.  THE VIEW SOUNDS LOVELY. I'm sorry it will take awhile yet to get the dbs device but that is the way it is here.  Oh well. 

Good Luck to your son LAD y for his singing.

As of this week, I am now 60 yrs old.  I can't believe that. 

Good nite my friends

jb.

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What a big week it has been for birthdays in the PD world.  A couple of regulars on Patients Like Me have just celebrated 60 as well.  Y'all are young whippersnappers!  Happy happy birthday, JB from the swamp! 

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Our run ended - just missed the finals but he had fun and learned a lot!

 

LAD

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Bard, Em and Sean, Linda, LADy,, Dianne and Miss Swampette, thank you all for the birthday wishes.

jb

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Happy Birthday jb!    We share the same birthday month.

 

I've been in kind of a funk lately.   I feel myself coming out of it but the process has been slow.  She-ra, I hope you're feeling better also. 

Sorry your son missed the finals LAD.  It was a joy to watch the video you posted.

Take care everyone.

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Good morning to all of my Parky forum friends,

I let too much time go between postings. I am sorry for that.  My days are longer even though I accomplish  less each day.  My evenings are a crash on the couch into a tired poor quality sleep that I wake from, do what needs to be done, put wood on the stove and the dog out for a whiz, and then off to bed thinking I will gety caught up on correspondence tomorrow.  Caught up becomes elusive. I need to revise my goals to match my capabilities I sometimes think,  But with my muleheaded stubborness I continue to push on.

The sap has run really well this year.  The woods are free  from snow and gathering has been the easiest ever.  But it has tested my body.  I have had times this season where I have had to walk  away from situations where I can't do a task. My brothers and neighbours who have helped in the past, now shoulder more of the work although I give up shares of the responsibilities with reluctance.  So my thinking has evolved some with those surrenders. I need to make the process easier and so I made a double snatch pulley to lift up pails of sap 4feet to dump into the boiling pan.  That saved a lot of shoulder and back strain.  I realize that I am now living within a 60 year old body that has been pretty physical and the joints are getting worn and muscles strained.  I don't pin all of my limitations on Parkinsons, I know some of it is due to regular aging.  Im not complaining, sorry, I guess I am.  It is pretty hard to stand there at the end odf the day and have to ask your brother to help you get your coat pulled onto your shoulders. But then, 11 yearss into this crappy disease, I am happy to be able to do what I  can do.  I have, correction, we have bottled 67 litres oif maple syrup.

And Happy St. Patricks day to Em and Sean in Ireland and all of the other Irish folk.  Enjoy your big day.

Nice to hear from you Peace.

Hello Dianne, Linda and Marcia who may be still looking for some good snow to make as snowman.

Be safe, be strong, be kind to others and .................

I sit here pondering that last phrase. What do you think it should finish with.

Good days to all.

Be safe, be strong, be kind to others and .................

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Hi, jb.  WE HAD SNOW TODAY IN BALTIMORE COUNTY, MD!!!!!!!!!  It has been beautiful, coating each branch on the trees and staying cold enough for it to not just all drip off right away.  We kept reading about the southeastern states and the northeastern states getting good heapings of snow, and it was so frustrating that we didn't get the same.   So FINALLY we got some before the season is over.

Caught up certainly IS elusive.  Lack of strength, cognitive issues, and apathy are very challenging to overcome.  I find I get so excited when I get even one thing among many done these days.  I am so glad to hear you have the support you do for all of the things needing to be taken care of in a farm life.   It is hard to have to face not being able to do some of them now.  We're with you in mind and spirit.  And we understand that it is harder to keep up with correspondence.  It's just always nice when you can, and we appreciate that.

Take care.

Linda

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A partly cloudy day turned into light rain showers this evening in Seattle. One of my caregivers stopped working with me abruptly last week after a devastating third cancer diagnosis. Please pray for Debbie Flannery.

As to your statement, jb: 

On 3/17/2018 at 10:11 AM, jb49 said:

Be safe, be strong, be kind to others and .................love yourself exactly as you are. 

 

 

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We've had a few flakes which gets me all excited but it doesn't stick which disappoints me!

Can someone point me to the instructions on how to post a picture?

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9 hours ago, She-Ra said:

We've had a few flakes which gets me all excited but it doesn't stick which disappoints me!

Can someone point me to the instructions on how to post a picture?

I use flkr app ... you post and then copy & paste the URL address

 

LAD

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Just wanted to give you yet another reason to believe you are in the right hands at the Toronto Western Hospital for DBS.  Here is one of their latest publications0 Take care,  Mireille

Mov Disord. 2018 Mar 23. doi: 10.1002/mds.27359. [Epub ahead of print]

A 21-year retrospective study of the Toronto Western Hospital deep brain stimulation cohort.

PMID:
 
29570864
 
DOI:
 
10.1002/mds.27359
 
 
 
 
 

 

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Hi all! Not enough snow to make a snowman or snow woman. Why does a snow man not get a space but a snow woman does. Or I could ... pause before I say stupid things. Too late.

We've been visiting the grandgirls. I know why you should have them kids in your twenties. 

Son and DH went to pick them up at daycare. One made a farting sound and the other would laugh. Than the other one would make the sound and the other would laugh. All the way home. Our son ignored them. I would have laughed too. 

Sorry I haven't been on to post, Now I'm back home. The cats are following us around and they even came to me to be petted. Must have missed us. 

 

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Welcome home, Marcia! Aren't grandchildren grand?

Your cats really missed you! I've missed you, too.

Dianne 

 

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IMG_0682-300x225.jpg

 

Hi all! Thanks Dianne. We didn't think we were having any for a while there. Grandkids I mean. 

Happy birthday, JB. 

The cats much have thought they needed to bribe us to stay home. Yesterday they came out with a toy that has been missing for ages. Then this morning one cat brought out another toy that has been missing. I'm thinking they hid them on purpose.  If those cats could talk what a tale that would be.

Edited by MarciaJ
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On 3/17/2018 at 10:42 AM, Peace said:

Happy Birthday jb!    We share the same birthday month.

 

I've been in kind of a funk lately.   I feel myself coming out of it but the process has been slow.  She-ra, I hope you're feeling better also. 

Sorry your son missed the finals LAD.  It was a joy to watch the video you posted.

Take care everyone.

Thank you! He's incredibly passionate about it. He just got a summer job performing in Hershey PA on the trolley tours! So if you go to the sweetest place on earth-do the tour!

LAD

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