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Good morning!!

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Sorry about your Daughter's illness Dianne.  Hope she finds an alternate drug.  hugs to you, jb

  

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Thanks for the hug and words of encouragement, jb. Much appreciated. I will see her today; she arrived in Seattle yesterday afternoon. 

Dianne   

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I feel like my good morning gang are my go to gang..... I know some of you may have read my blog .... any thoughts?!  I’m hoping I help someone somewhere. 

 

LAD 

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Good Morning everyone!  It isa beautiful day in Southern Ontario today.  Actually, I got to see all of the morning and the sunrise on this Summer Solstice.  It is a little cooler this morning, following hard on the heels of some humid days.  The grass is green and my lawn is nicely mowed thanks to Imy brother who came up to my house yesterday to do it.  It is a busy time of the year for me,  but I need to stay away from the work until the surgeon clears me.  Im only allowed to lift about 5 pounds until then. Gee, that amounts to only a very good sandwich.  I am needing to get out and excercise more because when I sit around, my muscles sort get stuck, but I need to sit around more and rest some sore muscles cause when I do too much, my muscles get sore. Life is busy.

Have good days everyone

jb

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Good morning!

jb, a five-pound sandwich would feed me for a week.  I'm happy to hear that you are following doctors orders. What a blessing to have a supportive family nearby. 

The visit with my daughter is going well. She is sleeping a lot. That is a perfectly acceptable way to deal with a devastating diagnosis. I'm sure she will move forward in her grief process, as we all do. Her husband installed my air conditioner on Monday when the temperature reached the low 90s. He is a kind and patient man and is already looking into support for himself and my daughter. The PBC Facebook page has 3600 members. I pray that they are as kind and helpful as those of us here in Parkyland.

Love to all,

Dianne  

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Good Morning Everyone,  It is Saturday morning.  

1, Saturday used to be such a special day. Cartoons.  It was the only day of the week you could get them on a country tv with  a very basic attenae.  It was something to look forward to.  Now satelite channels flood the screens 24/7 with poorly written cartoons and I don't think kids are interested in them because  they have become too common.

2. Movie theatres bring such great box office hits to the big screen.  Price of admission is not too bad but the big money maker is the food.  If you take three kids to the theatre and get them in for say 5 bucks a head, it will cost you 10 bucks a stomach for popcorn, a drink and skittles. Or you can be a grumpy grandpa and tell them that they should of eaten their lunch up.

3.  Walt Disney was a heaven sent TV program on a Sunday evening that you loved to watch with your family. Households now with 4 tvs and 5 cell phones, 3 tablets and a huge x box setup, whatever that is, is often a household of bored people in different rooms throughout the 2800 sq. ft. house, surfing around looking for something to watch and it isn't "Poor Benji"

4. I am watching FIFA football on tv, Live from Russia.  Pretty cool. They are great athletes almost as skilled as Canadian hockey players but here is one thing I hate.  Falling down, acting wounded and stopping the play.  I saw one player here today scream in pain and fall down demanding a penalty before he even was bumped by another football player.  But I have developed a liking for the game and they certainly are very athletic and skilled players.  just damn poor Actors. 

5. We have 5 birdfeeders. We watched a red headed woodpecker stick its tongue into the hummingbird feeder and suck up the sugar water.  Never saw that before.  We have lots of cats this year and before there is an international trade tarriff placed on them, I could ship one to anyone needing a good barn cat.  They like to sit under the bird feeders and make the birds nervous.  Meanwhile the cats are afraid of our dog who keeps the cats excercised.  And the dog is ever watchful of the cats who are as big as he is and outnumber the poor little fella. The birds fly away in fear of the cats , who haunt the dog .Why don't I keep the cats out of the yard, Cause they keep down the number of chipmunkeys that cleanout the birdfeeders every chance they get.  And it has been proven that the chipmunkeys are smarter than me when it comes to trying to keep them out of the sunflower seeds.

6. Soon I will have waited 6 weeks patiently , like a young boy watching his grandpa slowly carry an ice cream cone to him,  for the swelling to  go down and the dbs to startup.  Soon Grasshopper, Soon it will be time for you to go,  Go to Toronto and get powered  up.  Is not it more noble to wait patiently Grasshopper for the cure to be held back and you learn how to be grateful for the heat of the sun and the pull of the moon and the grains of sand upon the beach, whose numbers pale in the light opf the number of stars in the heavens above.  Now Grasshopper, quickly as you can, snatch the pebbles from my hand.  Ah, I win again.  It is good to be the  master.  Go wait a bit more Grasshopper and reflect upon all of this.  (and who did not like to watch Kung Fu back in the day.?)

7.  The yellow team just scored.   They do a little victory dance, they jump up into the air together and collide, banging hips together and thier arms entwine the 4 men together, but one man is bumped a bit hard.  As they fall to the ground he screams foul, you fowl.  He rolls and buries his face to the ground and the officials wonder if that is a yellow card or a free kick in seeing as all persons involved are on the same team.

8.  I am not being whiny and poor me but my shoulders are still sore with rotator cuff issues.  I get them working good, free and easy through the daylight hours but most mornings I awaken with them frozen and I have to slowly get them rotating again. 

9. Our Prime minister got the bills passed through the Senate to legalize pot,  or rather decriminalize pot in Canada.  Medicinal pot already was ok.  But now anyone can have 4 plants at home in your herb patch,  there is no roadside test for it if you are driving higher than a kite,  and I think Mr.Treaudeau will rue the day this got done. 

10.   We watched "Awakenings" on tv one night this week.  With Robin Williiams and Robert DeNero.  Good movie.  Doctor Sacks (true story) realizes that a new chemical known as L -Dopa could help his patients. That movie could be about us, well it was.  I felt it inside my soul.

Ok. Gotta go,  Saturday morning cartoons, you know...

Be strong everybody.  PD is not for wimps.  And keep that fist to the sky!

jb.

 

 

 

 

 

 

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We took a ride and it took a week to complete. We had to cut the trip short. Sometimes the ride gets tiring. Plus I missed five episodes of Star Trek: The Next Generation. I've seen them all before but we watch them in reruns now. A friend's son had painted a door in his basement to mimic Dr Who's police box. Really did a nice job. 

Supposed to get very humid the next two days so stay safe if you are traveling. The 4th is coming up. 

m

 

 

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Hi Marcia,  It is extra hot here this weekend.  Hot and humid.  Had a good thunderstorm this morning.  Lots of thunder and lightning closed down the daily bird choir that begins every morning at about 4:45 a.m.   It still is nice and green here.  JUst too hot and humid to do much.  Have a good weekend. It is Canada Day here tomorrow, and monday will be a day off work. If you work. Not me. Now I am rambling, good night everyone. jb

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Jb- my brother is heading to Quebec  & Montreal area ...he’s a hiker & biker...outdoor guy...any places he should see?

 

LAD

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Good night from cool and cloudy Seattle. I took my new purple power wheelchair outside today for the first time. I went 15 blocks north on the Interurban bike trail to the Farmers Market. I may regret it tomorrow; for now, my refrigerator is full of fresh arugula, asparagus, carrots, and raspberries. Tomorrow will be a day of cooking and baking.

Sweet dreams!

Dianne     

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Hi folks, very hot here in Ireland , how are you jb? thinking of you..

take care guys, em

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Hi Emma,

Does that mean you have been enjoying same beautiful weather like we had the last week of May ?

IRELAND is such a beautiful country. You should all go visit Ireland, guys. I fell in love with your country, Emma.

Hope JB is passing his stimulator's "calibration tests" with flying colors.

Mireille

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Yes Mireille, it is 30 degrees  next time you try to make it to Inistioge, co, Kilkenny..

Em

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Enjoying the cool (77/25) wee hours before the heat (103/39.4) sets in here on an Arizona summer morning. The bird chorus is just warming up. We are due to have thunderstorms today. It is our monsoon season.

 

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LADy,  Gosh, I am way behind again in correspondence. Your brother likely has been to Quebec, knows more about it than I do, returned home and has put together a photo album already.  But here I go.  The city of Montreal, is very diverse with lots of different ethnic groups.  We used to drive up to Montreal to watch the National League Expos play baseball. Before they moved to Washington.  It is a beautiful city.  You will have no trouble finding services in English but all signage and initial conversation is in French.  Qubec City, the Old City is a trip through history.  The stone and timber buildings are just wonderful to see. It is one of the oldest cities in North America settled and lived in by Europeans for about 400 years.  The south shore of the St, Lawrence River is a very nice drive from the Eastern Townships along to the Gaspe Peninsula where the Gulf of the St. Lawrence receives all the fresh water from the Great Lakes and begins to mix and fill up the north Atlantic Ocean.  Not to over symplify but that is most of Quebec. The river is a corrider through the province and most of the population lies along the river.  Hope he enjoys the trip!

jb

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On 7/1/2018 at 1:02 AM, Beau's Mom said:

Good night from cool and cloudy Seattle. I took my new purple power wheelchair outside today for the first time. I went 15 blocks north on the Interurban bike trail to the Farmers Market. I may regret it tomorrow; for now, my refrigerator is full of fresh arugula, asparagus, carrots, and raspberries. Tomorrow will be a day of cooking and baking.

Sweet dreams!

Dianne     

Dianne, that soundslike a very nice trip out for you and your "Ride"  Good for you.   You have pushed your walls open,  and you will not be contained.  Happy motoring to you! 

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Well LADy....,,,, It may be nice in PA today, but If I could put the Ontario Air that I am breathing, into Mason Jars, I think that they could be sold.  Especially if the jars of air could bring you the birdsongs, the smell of cut hay, the sight of the butterflies and happy vibes coming from my TV set as 4 young Thai soccer playing boys emerge from the underground caverns.  My hat is off in salute to the decency, strenghth and skill of the rescuer workers doing what they can to rescue them.  Such brave young men, smiling and joking into the cameras.  May the grace of unseen powers continue with them on this epic struggle.  jb 

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Hi Emma, how are you doing? And Sean, are you watching the football?  I have watched quite a bit of it.  I have enjoyed it but I don't understand the time clock and when is the game done.  And why would they play the ball fom an attack position back to thier goal keeper.   Ooooh, as a hockey fan, that is not a good idea.  But, I have enjoyed the "footie matches"?

Mireillel,  I have been busy with that setup.  The long awaited for DBS initial program.  We travelled  by train to Toronto, about 100 miles.  I can't drive the drive  "off drugs" as required by the appointment.  Tuesday this week was the first return since my surgery.  I had to go up the day before, stay over nite and we were at the hospital at 8 a.m. to see the surgeon. I was all healed up good from surgery even if my head is bumpy with hidden wires.   Then up to the 7th floor and a Dr. programer who sat down and took control of me.  That was not painful by any means but very strange to have exterior control over my brain in his hands.  He told me that they would map out combinations of things that won't work.  He found the leads that would make me feel like I was about to upchuck, hot flashes and cold sweats,  make me cry with emotion saying the days of the week, and what it must be like to have a stroke as my face pulled to the left.  After an hour or so, we settled on a program that would do for a start .  Or thought.  But because I had to show up at the hospital Levadopa free, he asked us to have our lunch and levadopa and return to the floor. After our sandwich and two levadopa pills, I could feel the tug of war between me and the unwelcome visitor begin within.  We returned to the office.  The Dr. could see the struggle setting up on my right side as dyskinetic powers started up.  He told me to cut back on the Levadopa for the next dose and we returned to Union Station and the train.  It was not a good afternoon,  and I was aware of the stares from people as I walked around trying to balance on a leg that was not mine, or felt that way.   Or, trying to stand casual but looking like I was trying to shake my shoe off of my leg, while my arm swung in a strange way like I was playing invisible frisbee with an invisible friend. I felt uncomfortable whenever a security officer walked toward me.  I had a miserable train ride back to Belleville, concentrating on not kicking out with dyskinesia. Finally at 10:30 that night I turned the stimulator off. (as instructed by the Dr., if required, when leaving his office).  The relief was total and instant and I have great respect for the controller, even more important than the tv, or sattelite controller, not to be lost down behind the cushions on the couch, robbed of batteries, chewed by the dog.  Or played with by grandboys that want to see old Pa shake a leg.  I phoned the Dr. in the morning for advice, tried it again and after trying for 10 hours,  I turned it off again. I have another appointment early next week. I am patient, I have great faith in my medical team and great support in my life from my wife, family and friends.  So For a few more days I will go with the pills.  

And be be a patient patient.

Have a good day everyone.

Cereus, I visited Arizona once.  Such a beautiful clear blue sky every day in January.

ps. 4 of the boys in the cave have been rescued .  fingers crossed. Such brave kids.  And Rescuers too!!

john b

Edited by jb49
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Hey, John B, sign me up for some of that Ontario Air!

Although I am new to the forum, I was thinking about you and the DBS this morning and then, lo and behold, here is your post. It sounds like a challenging experience. Thank goodness you have an excellent medical team and strong support to help you get through it. Best of luck with your next appointment.

Take care.

Diana

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14 hours ago, jb49 said:

LADy,  Gosh, I am way behind again in correspondence. Your brother likely has been to Quebec, knows more about it than I do, returned home and has put together a photo album already.  But here I go.  The city of Montreal, is very diverse with lots of different ethnic groups.  We used to drive up to Montreal to watch the National League Expos play baseball. Before they moved to Washington.  It is a beautiful city.  You will have no trouble finding services in English but all signage and initial conversation is in French.  Qubec City, the Old City is a trip through history.  The stone and timber buildings are just wonderful to see. It is one of the oldest cities in North America settled and lived in by Europeans for about 400 years.  The south shore of the St, Lawrence River is a very nice drive from the Eastern Townships along to the Gaspe Peninsula where the Gulf of the St. Lawrence receives all the fresh water from the Great Lakes and begins to mix and fill up the north Atlantic Ocean.  Not to over symplify but that is most of Quebec. The river is a corrider through the province and most of the population lies along the river.  Hope he enjoys the trip!

jb

He is heading home today. It seems like they loved it. But it’s on my list so I’ll keep your information!

 

LAD

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