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Share Your Story with NPF

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Share Your Story with NPF:

 

 

Are you living with Parkinson's disease?

 

Are you a caregiver of someone living with Parkinson's disease?

 

Are you a loved one of someone living with Parkinson's disease?

 

 

If the answer is YES, you have a story to tell. Your story may be featured on www.parkinson.org.

 

 

Go to http://www.parkinson.org/Community/Personal-Stories/Share-Your-Story.aspx.

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Not i am not living with Parkinson's disease but i know about Parkinson's disease.Parkinson's disease is a degenerative disorder of the central nervous system. The motor symptoms of Parkinson's Disease result from the death of dopamine-generating cells in the substantia nigra, the midbrain region Therefore, cell death is unknown.

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I am a caregiver to my sister, who 5-7 years ago, developed Parkinsons...at least that's what i am told by a neurologist.  I am very frustrated to say the least. Not only does she have Parkinson's ,but she is mentally challenged as well, which adds another dimension to my and i am sure her frustration. She is not a candidate for DBS , as the neurologist is afraid that it will only make her mental condition worse. the carbadopia/levadox (spelling) is not working well anymore and I don't know what avenues are available. 

 

I am not complaining, though at times i look at her and wonder where is this beautiful person that was active and able to do things..because she is not here anymore...and it makes me sad...I work a full time job (which isn't always easy), take care of a house and husband. I would do anything for her to make her better,if even just a little bit....my parents are gone, brothers and sister have their own lives and frankly don't want to deal with this..

 

anyway...thanks for listening...

 

patty

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