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  1. Forum Information

    1. Discussion Corner Announcements

      General information regarding the Discussion Corner and the use of the forums.

      4
      posts
    2. PF Forum Member Service Center

      Direct all technical questions or comments here. ***DO NOT POST ANY MEDICAL QUESTIONS OR ANYTHING RELATED TO PD AS IT WILL BE REMOVED***

      346
      posts
    3. Frequently Asked Questions - How Do I...???

      Step by step guides on how to Register a username, login, change my personal settings, and post my first question in a moderated forum.

      12
      posts
  2. Medical Questions

    1. Ask The Doctor

      Michael Okun, M.D. and Daniel Martinez, M.D. answer medical questions regarding Parkinson's disease and related matters. All posts in this forum are anonymous.Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      25,174
      posts
    2. Ask The Surgical Team

      Kelly D. Foote, M.D. and Michael Okun, M.D. answer questions about surgical matters and Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the doctor cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      1,978
      posts
    3. Ask about Nutrition

      This forum is an archive about nutrition and Parkinson’s and is not accepting new posts. The suggestions given in this archived forum are for general information only. If you have a question about nutrition, you may post it in the Ask the Doctor Forum.

      9,301
      posts
    4. Ask the Pharmacist

      Mark R. Comes, R.Ph., answers questions on the subject of medication management in controlling Parkinson's disease symptoms.

      5,139
      posts
    5. 2,098
      posts
    6. Talk To A Speech Clinician

      A team of experts answer questions regarding speech and people with Parkinson's disease. All posts in this forum are anonymous. Without seeing you and examining you the speech clinicians cannot make specific diagnoses and recommendations. The suggestions given in this forum are for general information only.

      541
      posts
  3. Unmoderated Discussion

    1. Open Forum

      An unmoderated public forum for open discussion among Parkinson's patients and caregivers. Posts in this forum are NOT anonymous.

      43,457
      posts
    2. Newly Diagnosed

      A place where all those newly diagnosed with Parkinson’s disease can share their feelings and opinions. Post in this forum are NOT anonymous.

      5,607
      posts
    3. Caregivers Forum

      A place where caregivers of people with Parkinson's disease can converse and address their unique concerns. Posts in this forum are NOT anonymous.

      5,459
      posts
    4. Young Onset Forum

      A place to connect with other people diagnosed with young-onset Parkinson's disease.

      29,690
      posts
    5. DBS Forum

      A place for those with Parkinson's looking into having DBS surgery, or connecting with those that already have had it done.

      2,160
      posts
  • Posts

    • I love this.     
    • The doctor suggested grinding there pills. Apokyn is the injection which right now is the only thing that keeps me from getting off i have a orotho appointment on wednesday to determine whether my knee is from the medicine or is it something else  I am still having trouble with the fanny pack. It rubs against my stoma which is infected   how do you sleep I sleep horribly
    • I respond very well to C/L, so it only took 2 days. I reduced the am dose for the next few days, and it hasn't changed since. I do take oral meds at night when I wake. I rarely sleep through the night since I contacted Lyme's 5 years ago. Interesting about grinding sinemet for the tube. Did your doc suggest this? Is the Apokyn the inhaler or the shot? I had an allergic reaction to APOKYN. I hope you and your doc can find a happy spot for you to have consistent on-time.
    • Jb  glad to see you are back in the faster track again.  Hope the weather is cooperating for all this weekend.   Have a safe one out on the roads. No DBS here.  Just thought about you mentioning combing your hair different.  WHAT IF YOU HAVE NOTHING TO COMB??   I know someone like that!  tom😕
    • Dosing in my case is 5am,9am,1pm, 5pm 2-100ml fast release sinemet and at 10pm 100 sinemet slow release (900 total for the day)also at bed time 10ml melatonin and .5 clonapine for sleep.    Can,t sleep many nights as well.  But mine is cause by pain in my hands(hand cupping with spasm) and relentless Rem Sleep Disorder. Throw in frequent bathroom visits. My doctor has brought in a second doctor .   My app. with the new doctor is July 24. (soonest I could get an app.)   The Dr. is from the Mayo clinic.   They want to take a close look at my brain stem  and cerebellum.   I know things are moving too fast and my doses have been raised often. Ya just take one day at a time.  Keep moving forward.  Gardener  lack of sleep effects everything  as we all know.  For many it is a symptom.   There is that fine line of too much meds and not enough.  Then there is the side effects the meds can cause that help us sleep.  Our Dr. once we have been diagnosed add us to their list.  Us baby boomers are hitting the age now where the hands of time are catching up.   And there are allot of us.    I really feel for the YOPD'ers.  When I think back before 55 I felt great.  So in my case I feel blessed.   If there is a good thing about us clogging up the app. times.   Well I guess when a certain disease becomes more common it draws more attention.  Attention hopefully causes more reason to find a cure.  That way There will be little to none YOPD. When it comes to a parkinsonism at any age we are all in the same pot.  Many???????  
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