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  2. otolorin

    Isradipine

    swva. Good if the edema is mild.I suppose,eating less salt or avoiding salt and exercise,helps with reducing edema too.I will be looking forward to a good result from the trial.
  3. Today
  4. swva

    Isradipine

    The edema is not as bad as it was at first. I found that eating less carbohydrates helped.
  5. otolorin

    Isradipine

    swva. Hi, have you developed pedal edema from the use of Isradipine,for the past 3 years?I think it is worth trying,if the trial result is positive.Hopes are high on repurposed medications for slowing down or curing PD. Let's expect the best results.
  6. OMAHA TOM

    Medicare and Wife's Employee HSA

    RN fill us in. There are so rules it takes a law degree to understand them. Thanks
  7. swva

    Isradipine

    I switched my BP medicine to Isradipine about 3 years ago. I figured that if I had to take a BP meds, I might as well take one that may allow PD. I am not sure it works, but I am curious if the trial shows a benefit. If it doesn't, I will probably switched to a different med. Calcium channel blockers cause foot edema. Lisinopril didn't have that side effect.
  8. RNwithPD

    Medicare and Wife's Employee HSA

    Tom, Thanks for the info! I also found out the each state has a "SHIP" program that provides free counseling to help people understand Medicare and answer personalized questions. I'm going to give them a call. Kevin
  9. NCFred

    Bible Verses....

    Linda, Thanks for responding so quickly. I really appreciate this group. It gives me a forum to express feelings about my condition. When the doctor said there was no cure for this, I began to set up a prayer journal like the model presented in the movie "War Room". , i felt like I had nothings to lose. Every Sunday I attend the 9 Am service after that I go to Panera bread and spend an hour in prayer for various areas listed. the prayer request is on the left column, the scriptures are listed on the right column which I can appeal to God for help. Each time I pray I make a checkmark on the page. When the prayer is answered I make a notation in the answered prayers section of the journal. Before praying I like to review the list and give thanks to God for the answered prayers that I can see and remember. It helps put things in the right perspective. Teh practice helps me trust God.. Thanks for listening. Fred
  10. Linda Garren

    Bible Verses....

    Hi, NCFred. Thanks for reporting in on this. I know that all those who prayed for you so faithfully must have loved hearing of it. And it's wonderful how drastically you have improved on the new meds!
  11. NCFred

    Bible Verses....

    Hi all, New effective treatment options. Last Friday Feb. 15.2019, I had aan appointment with a MDS, who I had been seeing for over a year. I was first diagnosed with parkinsons in October 2017. At the doc appt, she changed my sleep aid from prosac to mirtazapin and doubled my morning meds. Since then I have slept the best I have in about 15 years and have enormous energy during the day. I have written a letter to the doctor telling her that the insight in to the treatment changes were the result of prayer once a wek for 67 weeks for sluggishness, and 27 weeks once a week for insominia. Additional prayer support came for prayer requests to 25 christian organizations for the last 10 months. I want to give God all the priase and thanksgiving for the improvements. I am doing things physically I haven't done in 10 years. I plan to report these improvements to the 25 organizations that have prayed for me. I am determined to fight this. Fred
  12. LeanneR

    Psychosis

    thank you
  13. OMAHA TOM

    Medicare and Wife's Employee HSA

    RNwithPD Just talked to my wife . Her insurance is primary and my plan B medicare is second. Of my bills the medicare seems to always pay the CO-PAY of my bills. Example my doctors visits 25 $ co-pay gets payed. But I think the way it works is If the remainder on the bill is less than what medicare would have payed without another insurance. Medicare picks up the entire cost. My wife said we only ended up paying when an out of network doctor was used. Medicare is slow in paying so keep records of what you pay. Medicare will send you a copy what they have payed. On almost every copy medicare will state that I am not responcible for any payment of that bill. I hope it has helped. The big thing is save what you have payed on bills. We payed bills from doctors saying we owe. Then medicare payed them. Had to go back for reimbursement. Tom
  14. Yesterday
  15. RNwithPD

    Medicare and Wife's Employee HSA

    Gardner, Yes. She pays extra to have me covered on her insurance. I know for certain that her group plan will be primary and Medicare secondary, but I'm hoping that Medicare will pay whatever her group plan doesn't. That's assuming that I enroll in Plan B coverage. Thanks for the response. Ean, Sadly, I have learned from several past experiences that most HR people don't know very much about the plans that they offer, let alone about Medicare. So I don't really trust their information. But I suppose I could always call the Social Security office and ask. Thanks for the thoughts. Kevin
  16. Linda Garren

    Bible Verses....

    The Christian life is not a constant high. I have my moments of deep discouragement. I have to go to God in prayer with tears in my eyes, and say, ‘O God, forgive me,' or ‘Help me.' --Billy Graham--
  17. Linda Garren

    Bible Verses....

    The Bible’s Best Description of Salvation Is a Phrase We Rarely Use How Paul points the way to a fresh way of seeing faith. Julie Canlis Romans 8:1 ESV: There is therefore now no condemnation for those who are in Christ Jesus. Image: Illustration by Rick Szuecs Years ago during graduate studies at Regent College, I had a desperate talk with Eugene Peterson about how my PhD had turned the words of God into a great, big research project. I was trying to read my lifeless Bible, but I was interrupted 1,000 times by children needing to be fed, changed, read to, and more. I begged him to give me a spiritual discipline, some rope to haul me out of the hole I was in. “Well, Julie,” he said, “is there anything you are doing in a disciplined manner already?” I thought about my newborn daughter, Iona, and the hours that I spent nailed to our couch feeding her. She had reflux, and most of what went into her immediately came up again, which meant that I had to repeat the feed all over again. “Nursing Iona is the only thing I can count on,” I said. “She makes sure of that.” He patted my hand, then, like a parent consoling a dissatisfied child who is not content with their lot in life. “Julie, that is your spiritual discipline. Now start paying attention to what you are already doing. Be present.” In that moment and so many others like it, I was weakened by a very common and insidious temptation: I wanted to be for Christ instead of being in Christ. I saw my familial responsibilities as obstacles to a godly life when in fact they were the very place he wanted to meet me. Accordingly, I had to radically revise my view of obedience to include the simple act of abiding in Christ. This idea of being “in Christ” is arguably one of the most potent—and perplexing—aspects of Paul’s letters. Although we tend to speak of salvation as “Jesus in my heart” (a phrase used only one time in the Bible—Eph. 3:17) or as “Christ in me” (which is mentioned five times in the Bible—2 Cor. 13:5, Rom. 8:10, Gal. 4:19, Gal. 2:20, Col. 1:27), Paul says something far more often: He uses the phrase “in Christ” 165 times. The Bible’s favorite way of describing our salvation is one we rarely use. For Paul, salvation was simple: It was being joined to Jesus Christ. When I first began to study Paul, I glossed over this description and assumed it was just another way of talking about what Jesus did for me on the cross. But the more I read Scripture, the more I realized that Paul was actually talking about being joined to Jesus. As John Calvin writes, “But we do not regard Christ as outside of and distant from us, in such a way that His righteousness is imputed to us in mechanical fashion, but we put Him on and are made members of His body, and He has deemed us worthy to be united with him.” According to Calvin, to be saved by Christ means to be included in the person of Christ. For me, this was a Damascus Road revelation. The scales fell from my eyes. This idea didn’t contradict anything I had learned about Scripture, but it made so much more sense of commands that I obeyed but didn’t really understand—like getting baptized, going to church, taking communion. Paul, too, is hit with the same truth of being “in Christ” when he encounters Jesus on the road to Damascus. Saul is breathing down the necks of Christians, ready to arrest them, when at the gates to Damascus he is blinded by a flash of light. He falls to the ground and hears a voice saying, “Saul, Saul. Why are you persecuting me?” Saul asks, “Who are you?” And the voice says, “I am Jesus.” The voice doesn’t ask, “Why are you persecuting my people?” Instead it explains that Saul’s actions against Christians are directly hurting Jesus himself, whom Saul had never seen, touched, or hurt. This dramatic Damascus Road experience revealed not only Jesus but, perhaps more importantly, the ongoing connection that Jesus had with his followers. This conviction grew and grew over Paul’s life. His letters are overflowing with references to “union with Christ.” In the introduction to his translation of the New Testament, the Bible scholar J. B. Phillips writes of Paul and other New Testament writers, To these men it is quite plainly the invasion of their lives by a new quality of life altogether. They do not hesitate to describe this as Christ “living in” them. ... We are practically driven to accept their own explanation, which is that their little human lives had, [in] Christ, been linked up with the very life of God. … These early Christians were on fire with the conviction that they had become, [in] Christ, literally sons of God; they were pioneers of a new humanity, founders of a new Kingdom. In this kingdom context, here is how union works: Paul believes that we are united to Jesus’ descent and his ascent. First, Christ joined himself to us in the Incarnation. This union is not subjectively experienced by us but is an objective, cosmic miracle of God uniting himself to our humanity. This extraordinary event doesn’t get activated by our faith or by praying a prayer. Rather, it has already happened—it just is. The second part of the mystery is even greater: Jesus has thrown open his history to us. This is the subjective, personal part that we are invited to step into. The Spirit says to each one of us, “Okay, who’s in?” Then we are ushered into the Spirit’s primary work in the universe—to put all things into Christ and to be joined to him. Together, these two unions are the huge, creation-encompassing ideas that we find in Paul’s letters. When we say, “I have been crucified with Christ and I no longer live, but Christ lives in me” (Gal 2:20), it is not a mindfulness technique or a positive-thinking exercise. This is our new reality. Our job is to wake up to it. All of the big theological words—justification, sanctification—now make sense in this orbit of being “in Christ.” So how do we enter all of this? How do we abide in Christ? First, the church is the context for our union with Jesus. The church is not merely a building or a community of people—it exists in union with Christ, and union with Christ means that you can’t say “Jesus, yes. Church, no.” When you are united to Christ, you are put into a family. There are no “only children” in the kingdom. Growing up, I, like most children at the time, had to go to church. I am eternally grateful to my parents for not making this an option, because as a child, I didn’t know that church is like being in a family—you can’t opt out. If you opt out of family, you grow up not knowing yourself. You have to learn the family dynamics, go to the family reunions, eat the traditional family foods, and endure some of the family craziness. In the early church, people were so convinced that the church was a living reality of those united to Christ that unbaptized persons were not allowed to enter. They were given permission to watch, sing, and pray in the large entryway, but they could not walk into the space unless they had been united with Christ through baptism. Second, if the church is the primary context for abiding in Christ, then baptism in the church enacts our union with him. Paul says that “if we have been united with him in a death like his, we will certainly also be united with him in a resurrection like his” (Rom. 6). In baptism, we experience the gospel in water. We physically declare that we are dying to all attempts to “be ourselves” apart from Christ and instead are raised to new life in him. Finally, the Lord’s Supper nurtures our union with Christ. If union is God’s embrace of us, then Communion is our throwing ourselves into the arms of his loving embrace. In Communion, we are eating the good news of our connection with Christ. As Paul writes, “Is not the cup of thanksgiving for which we give thanks a participation in the blood of Christ? And is not the bread that we break a participation in the body of Christ?” (1 Cor. 10:16). Doing something “for Christ” is a very different action than being “in Christ” and although both bear important fruit for the kingdom, for most of us, being in Christ poses the greater challenge. As Eugene Peterson taught me those years ago, we find our salvation in the simple habits of our daily lives. As we parent, we do so in union with Christ. As we work, we do so in union with Christ. As we face illness or despair, we do so in union with Christ. And as we go forward for Communion every week, we remember that we dwell in him and that he dwells in us. Our coming forward is an act of faith, declaring that we were created for union with Christ and that we need to be continually nourished by that union. Not unlike the child I breastfed those years ago, we are sustained by Christ daily, hourly—even when we are most unaware. Julie Canlis is the author of A Theology of the Ordinary (2017) and Calvin’s Ladder (2012), winner of a Templeton Prize and a Christianity Today Award of Merit. She collaborated with her husband, Matt, on the documentary Godspeed. A note from Linda: To the Calvinists and Armenians reading this, would you say that this article helps explain our being both "chosen" by God (election, predestination) and our "choosiing" to follow God (free will) ? This article helps me sort that out, and I'm just wondering what others think?
  18. EAN

    Medicare and Wife's Employee HSA

    Another good resource may be your wife's HR/benefits hotline- if she has one.
  19. Gardener

    Medicare and Wife's Employee HSA

    Hi Kevin, Do you have to pay a premium for your insurance with your wife? I'm fairly certain that you will need to meet your deductible under your primary insurance. You might want to look at the medicare advantage plans that supplement basic medicare. If your wife has a HSA account I believe that those funds can be used for her spouse even if you are not on the plan. It's really complicated so do all your homework before deciding which way to go. Good luck! Gardener
  20. Beau's Mom

    duopa pump

    Thanks, Mihai, for sharing your Duopa journey with us. Two years ago, I switched from the cross-body shoulder bag to the fanny pack because of shoulder pain. I have an appointment with my MDS next week and plan to get the pump settings readjusted as I am experiencing more painful dystonia in my neck and shoulders. I hope the DBS works as well for you. Dianne
  21. Oh Wise One's...I need your counsel. I am 47 years old, on SSDI, and my Medicare coverage will begin this July. I currently have coverage through Aetna under my wife's plan at her work, but she is about to change jobs and has a choice between a "standard" group health plan (GHP) like we are on now and a high deductible plan (HDP) with an associated Health Savings Account (HSA) - both through CIGNA. We are leaning towards doing the HSA plan, but I have some questions. In doing some research, I have found that CIGNA will be primary and Medicare secondary for me. I have also learned that I personally cannot contribute to my wife's HSA, but that she can contribute the full family amount per year and can pay my health-related expenses from that account. So, here are my questions: With primary insurance having a $2,700 deductible, will Medicare kick in and pay 80% of that deductible? Or will it only start paying after my primary deductible has been met? Is it better to enroll in Part B and have to pay premiums, or just let my wife's insurance cover me until age 65 and then pick up Part B? I'm sure there are other questions that I don't even know to ask right now, but any help would be appreciated. Thanks in advance, Kevin
  22. John Hoefen

    Psychosis

    I know a few Hi leanne I know of quite a few people who had similar experiences especially thoughts of infidelity towards a spouse.Most were on agonists like requip or mirapex but others can do it also.I would review his meds as often doctors shy away from pointing fingers at drugs.PD is mostly a movement disorder and with good care the mind is untouched.Mental health affects everyone .Anyone can acquire a obsessive thought.My remedy is to treat it as a unwelcome visitor or a harmless manifestation of a nervous imbalance.This help was given to me through Dr.Abraham Low founder of Recovery Inc.
  23. jb49

    Good morning!!

    Good morning everyone. Hello Ems, how is Ireland these days. And Linda, hope you are managing the winter ok on the East coast. Omaha Tom of Nebraska, in turn, thank you for all the weather you send us, We give you 8 " of nice clean white pure snow, fresh from our pristine Artic deepfreeze and suitable for many exercise programs as you mention how much you like shovelling it. Not to mention how our winter snow layered nicely onto Nebraska cornfields is money in your pockets. On the other hand, much of the snow and snow pellets, freezing rain, fog , plain rain and all other forms of really crappy winter weather that we have to contend with comes from that big soup bowl that you Americans refer to as the gulf of Mexico. Out of that warm puddle comes warm air, bayou catfish and alligators plus lots of moisture that flows North and crosses the border at detroit/windsor, hits our colder air and starts to condense upon our southern ontario road system. Thanks for the explanation of grandparent terms. Have a good day O.T. Be strong everyone, JJ Bushka
  24. OMAHA TOM

    Constant Fuzzy-Headedness

    All Parkinson's is one of those diseases with a multitude of symptoms. Many of the symptoms we have for so long they become the new normal. Some of the symptoms overpower our ability to adapt. So we find it hard to function in the real world. But you push on. You find what works best. The forum gives us tools to try from others. This forum is the place we can go and talk about our concerns, successes, our good days , and our well as not so good. Thank you for your input. It is helpful! Tom
  25. otolorin

    Constant Fuzzy-Headedness

    TFR. Hi,I get the fuzzy headache or head/neck pressure,or fullness.I don't know what to call it.Whether this symptom will eventually lead to cognitive problems,or not I don't know.I take one day at a time with all these PD symptoms.Some days are better and some are worse.With the fuzziness,just like you said,I feel like should lay down and fall asleep whenever I get it,because It sometimes occur with fatigue.After sleeping,then I feel better sometimes.How do you take the Mirtazapine? I think this medication is an antidepressant.Do you take it only at night?Does it help to treat the fuzziness?I have been prescribed this same medication to be taken at night,but I don't want to be dependent on it for sleeping,so I use Melatonin and a small quantity of benzo occasionally.I notice intense exercise actually helps with sleeping.I will try the pistachio nuts,according to fire 1 fl.Take care.
  26. Just started the DBS pre testing today. I’m 44 male and had PD for 4 years any system you would recommend? I’m pretty overwhelmed here.
  27. Mihai

    duopa pump

    Hey! I think any kind of tape will do, just so it keeps the tube from twisting... After having the pump for almost 5 years, I decided to look at DBS as an option due mostly to the fact that I was tired of carrying the pump around all of the time, my shoulder was beginning to give me trouble due to the constant weight, and because I had developed a granuloma around the tube at the stoma sight that drained alot (staining my clothes) and was painful. I had it removed surgically once, but it came back within a week. Also, I really liked the idea of getting off of levadopa all together (if I could) because I am so prone to dyskinesias these days. My MDS told me that DBS would pretty much address everything that the pump did, but all with the internal device rather than the external pump. So, we went for it.... As good as the pump was, I am so glad I took a shot on DBS. I am medication free for now and will fight levadopa as long as I can. It feels wonderful to have it out of my system.... I am enjoying the freedom of a pump-less life. I am grateful for the pump and I am hoping they eventually develop a smaller, lighter option. But for now, I'm glad to be where I'm at! I still have the peg-J tube. Looking forward to having it removed in the next couple of weeks.... We all experience this disease differently, so why should the treatment process be any different? What works well for one, may not work at all for another....that's PD!!! Peace, hugs, and blessings.... Mihai
  28. fire1fl

    Constant Fuzzy-Headedness

    My mantra: Drugs are poisons with an occasionally useful side effect. Mirtazapine lists a multitude of side effects that match the symptoms of PD. It is possible this drug enhances your PD symptoms. You should be consulting an MDS about continuing. As a side note, I've been successful at relieving "fuzziness" by adding two hours to my normal sleep (9.5 hours instead of 7.5). The two things required for me to sustain that sleep are (1) daily intense exercise and (2) 10 roasted pistachio nuts 1-hour before long sleeping time. (A "natural" source of melatonin with slow release. There are other melatonin sources but this works for me because of high dose of this naturally occurring normal sleep mechanism hormone in a food.).
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