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  4. Gardener

    Tremor

    I'm seven years from diagnosis and except for infrequent tremor of chin I have not had much of a tremor. For the past several months I have been aware of a vibration in my right arm and very recently a resting tremor in my right hand. For those who have tremor, does the tremor come and go depending on time of day, stress, tiredness, etc. or is it constant at rest? I have read that once it begins it generally is always there at rest. So far, mine has been later in the day/evening when watching TV. Any information about tremor would be appreciated. Thank you. Gardener
  5. Hello. Is it said that people with parkinson are more likely to die on high temperatures . Why is so ? How the mechanism works ? 

  6. Hello. Is it said that people with parkinson are more likely to die on high temperatures . Why is so ? How the mechanism works ? 

  7. Hello. Is it said that people with parkinson are more likely to die on high temperatures . Why is so ? How the mechanism works ? 

  8. Beau's Mom

    How does the Mask begin?

    Welcome, Barbara. Take several slow, deep breaths and relax your mind. Feeling overwhelmed and wanting to predict the future were two of my first reactions when I was diagnosed. I nearly drove myself and those around me crazy. The PD mask came on slowly for me. Three years before being diagnosed I noticed that my smile was lopsided; the right side of my face was tighter. My PCP checked my carotid arteries for blockages. He insisted that the tremor in my right hand was from too much thyroid medication. Your age at the time of diagnosis can be a predictor of how quickly PD might progress. If you are younger than 50, you would be considered Young Onset. People with YOPD generally have slower progression than those diagnosed after age 60. Exercise has been proven to slow PD progression. If you have an exercise regimen, stick to it. If you don't exercise, ask your neurologist or MDS (Movement Disorders Specialist) for a referral to a Physical Therapist and an Occupational Therapist specializing in PD. They will complete a thorough assessment to determine what your current deficits are and develop a personalized plan to address and even reverse those deficits. Living well with PD is possible, even probable. Stress makes the symptoms worse. We will offer our experience, strength, and hope. More questions will certainly arise. Feel free to ask questions of forum members and the professionals on this site. Dr. Okun and Mark, the pharmacist who also has PD, are always happy to help. I'm so glad you took the first step. You are among friends here. Dianne
  9. Barbara B

    How does the Mask begin?

    I have two questions. Does the developing the PD mask have any physical sensations? I am experiencing some tightness, around my right eye and surrounding area, and it just feels "different" Is this the beginning of the mask? I am newly diagnosed with PD. Pill rolling in my right hand was the first sign I noticed in June. Now I have lost my right arm swing and a resting tremor in right hand. This week I started pill rolling on the left. Does this mean my disease is progressing quickly?
  10. victor_dan

    Sports and Dopamine

    Sport usually burns out temporary intellectual activity and dopamine secretion / retention. Sport is good for the body and relaxes the mind but, you have to recover after physical exercise. I think that intellectual activities combined with light physical exercise is a good approach at first. I think it`s easier for the body to get used to physical effort gradually rather than doing intense sports rarely. In this way, i think dopamine levels will stay the same (but again, gradually).
  11. Gardener

    Just joined the club

    Welcome JMMouse, Most of us on this forum have the common Idiopathic Parkinson's Disease which is quite different from CBD. You used the word "tentatively" and I think I can speak for everyone here when I say that I hope the doctors are wrong. You're on the right path with a MDS. These Parkinsonism diseases are complex and difficult to diagnose so consulting with the best will likely get you some answers. Hang in there and keep us posted. Gardener
  12. papa57

    Mired in Muck

    Thanks DaveN.
  13. DaveN

    Mired in Muck

    John Hoefen, i completely agree with Stump. Please check your partisan politics at the door. It just gets everybody riled up and taking sides. Most of us have Parkinson’s or support someone wit it. Papa57, I feel your pain and concern. I’m a couple of years behind you and am struggling to figure out my future and the love of my life. Keep us posted as you figure stuff out because it is useful to everyone. Cheers. Dave FYI John H.: We are not a democracy but rather a representative democracy, which is a form of democracy. A direct democracy makes laws (and other government decisions) predominantly by majority vote. Some lawmaking is done this way, on the state and local levels, but it’s only a tiny fraction of all lawmaking.
  14. MComes RPH

    Gum Enlargement

    Appala, It sounds like you're in top of it. Please keep me posted.
  15. Appala

    Gum Enlargement

    Thanks again. I'll try the Listerine. I believe my dentist says I don't have a plaque problem (my husband does, both teeth & arterial!). I apparently have the other type of dental issue, problems with many cavities, lost teeth, implants, toothaches, etc., all my life. Dentist says you tend tohave one or the other type based on mouth chemistry, perhaps inherited. I do have a nightguard & wear it every night.
  16. MarciaJ

    Good morning!!

    Yeah, jb. How did you know I've been hiding in the green bottle.? Stuff has been happening. Hard to go up staiYors even if we only have three. And then when we took the cats down for a nail trim we discovered fleas. Dealing with that. Someone told us we should have put the flea stuff on once a month. I'm exhausted. The cats knew what they had in the beginning. They had been jumping couch to sofa to table. Then meow. Then look at us like, "It's your turn to help!" They look all over the furniture and floor before jumping. I think I got more fleas on me then they did on them. Then my sister reminded me that I have not done a blog post since April. Congrats LAD. And Wow Dianne. I guess I should continue with the fleas clearing out. I'll give them their notice. My DH said I should stop feeding them. Fleas and mosquito's like me. Tom, your pictures were cool. More later. m
  17. Beau's Mom

    Good morning!!

    LAD, you will be great! Your positive, can-do attitude will overcome the stage fright. You will bless many PWP and their families. jb, thanks for being here when the rest of us are overcome by apathy or inertia or life. I've been to RSB this morning and am ready for a shower, lunch, and a nap. Don't worry; be happy! Dianne
  18. MComes RPH

    Gum Enlargement

    Appala, I would also recommend using Listerine. It may taste bad, but it works well at removing plaque and promotes good teeth and gum health. I forgot to mention the use of a bite guard. Since Parkinson patients have a tendency to grind their teeth, this is a good way to stop and damage to the teeth. I hope this helps and please keep me posted.
  19. Appala

    Gum Enlargement

    Thank you for your response. I'll talk it over with my doctor & dentist. I do use the electronic toothbrush & the plastic flossers.
  20. MComes RPH

    Restore-gold

    John, It looks like they have combined all the ingredients together. Their dosing regime is 4 capsules Four times a day. I would suggest to start with 4 capsules in the morning for about a week. After that you can increase by 4 capsules every week for the next 3 weeks if you feel you need to. I don't necessarily believe that you would need all 16 capsules a day, that is why I suggest starting at 4 capsules per day and increasing if you need to. Also, if you are feeling better at the 4 capsules per day then you did prior to using it, you should try that for a couple weeks. This will help to lessen the chance of tolerance with the medication. I don't see any harm in the full dose of 4 capsules Four times per day, but I don't believe it is necessary to start off on that regime. I hope this helps and please keep me posted.
  21. papa57

    Mired in Muck

    Thanks all for your supportive comments. I try my best to be supportive of the group forum.......thanks for reciprocating!
  22. papa57

    Mired in Muck

    Agreed. I relate to everything you've stated. Family first as well. Attitude is all we can really control and obviously mine went south for awhile. It would just be good to be on a firm path. Maybe if I just try to remember to focus on one thing at a time.
  23. JMMouse

    Just joined the club

    I was tentatively diagnosed this May. Currently on 1mg rasagiline daily plus 12.5/50 C/L 3x/day. The MRI results have come in and there is “cause for suspicion of corticobasal ganglia disease (CBD)”. I am in total shock, feeling numb, and very scared. I have an appointment with my MDS next week, and I will ask exactly what this means: is it “pretty sure but just being cautious”, or “not really sure, just mentioning it to cover things”? I’d appreciate any thoughts or suggestions on how to deal with this potentially devastating dx.
  24. stump

    Mired in Muck

    🙄 Can we keep partisan politics out of this place?? Anyone thinking what happens in D.C. in a few weeks, or in 2020, or any other time, has more than a tertiary effect on their lives needs to reexamine their perspective. I've thrived under D and R administrations, and I've had hard times under D and R administrations. My happiness and prosperity is not dependant on the political climate.
  25. hercules957

    Sports and Dopamine

    I would agree that strenuous exercise burns dopamine. During the effort, the symptoms are controlled due to other neuro transmitters kicking in but after, I am a bit more symptomatic and then it get better again.
  26. John Hoefen

    Mired in Muck

    Hi papa Today many of people fear the future and for good reason. DT brought alot of it.We have just 3 weeks to regain our democracy . Help getting a strong voter turnout is a surefire way of forgetinng our aliment. John
  27. Drummergirl

    For those that think C/L causes Dyskinisia ?

    My sister is a respiratory therapists and works in the sleep lab. She has seen non-PD patients taking C/L for restless legs, some have developed uncontrollable movements, (Dyskinesias). I was on C/L for 20-21 years before dyskinesia began. Everyone's different, diet plays a significant role (meds absorption in the gut) and there are different types of PD as well.
  28. PatriotM

    Mired in Muck

    I agree with LAD. You do get to choose how you react to PD. If you sit at home, you'll only get worse - and quickly. My MDS always says 'live your life". He's a big believer in only taking the medication that you need and to just continue with life as normal. I am not a believer in the idea that a person with PD should take it easy and reduce stress. Reducing stress is another way of saying that you're not living life. Life is full of stress and if you have no stress, you have given up a lot of your life. It's like a war, there is only flak when you're over the target I've only been diagnosed for a little over 5 years, so I'm not the expert on all phases of PD. However, I do know that with any disease, you've got to stay active and keep living!
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