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Showing content with the highest reputation on 03/17/2018 in all areas

  1. 1 point
    It's a bit convoluted but here goes: Not sure what type of insomnia you have. Difficulty falling asleep or sleep maintenance problems (you fall asleep but wake up at 3:00 a.m.). I started with the inability to sleep. Was getting about 30-minutes of sleep every three or four days. Felt wonderful in the morning regardless that I did not sleep. My MDS did not think that was a good situation. He's big into sleep as a Parkinson's aid. Parkinson's medications (Carbidopa-Levodopa; Entacapone) really helped me get over the first hump--calming the body enough so that it could sleep. Supplements like L-Theanine that calm the mind (and help my body and brain counteract the side-effects of the C/L); Melatonin; sleep supplements with herbs such as Valerian, Hops and Passion Flower seem to help me more with the initial falling asleep issues but once I began falling asleep, I noticed the sleep maintenance problems. Waking every morning at 3:00 a.m. Tried Benadryl (anti-histamine with diphenhydramine) and while it probably worked the best to that point (on both types of insomnia), the bad side-effects like an inability to really wake up in the morning (felt groggy all day) made me put it away. Mybetriq: Because Parkinson's had invaded my urological system, my MDS referred me out to a urologist whose second or third subspecialty is Parkinson's. The drug seemed to work for about 10-hours before slowing leaving my system, even though the manufacture and FDA claim it works for 24-hours. Used it at night-time to try and eliminate the need to wake up at 3:00 and use the head. Another slight improvement, but not perfect and then it left me exposed most of the waking part of the day. We upped the dose to two-tablets per day (taken at the same time) and it really well. Our next step was to be Botox injections every six months but I'm still hesitating. Later I started probiotics (more about that later) and I'm back down to one tablet per day that helps not only during the waking hours but while asleep. The most help I received for sleep maintenance problems was from people with diabetes and pre-diabetes. Got on this side-note from something my MDS said in mid-2017 about a study finding that while PwP may not have diabetes or pre-diabetes, their bodies were responding to diabetic medications. So I wondered what problems people with pre-diabetes and diabetes were having, and what medications were they using that could possibly help a PwP. About this time I read that some people with pre-diabetes and diabetes would wake up at night and eat a midnight snack, after which they would fall asleep. Apparently high blood sugar or low blood sugar, I can't recall, would spike in them and wake them up at night. Not knowing why they were awake, they apparently felt the urge to eat and the food would then reduce the spike and they would fall asleep again. So I tried a midnight snack at 3:00 a.m. and it worked. My MDS is not thrilled that eating a midnight snack worked, but is happy that I will now only get sleep maintenance problems once or twice per month. (I am not pre-diabetic nor do I have diabetes.) As a midnight snack I first ate a granola bar, then one-half a granola bar, and now generally get by with two whole wheat crackers if needed. Doesn't work all of the time, but for me it has probably around 95 percent of the time. And I'm not sure if my body is re-learning how to stay asleep, but I now only have to use the snack method at most once per week. Many times if I wake at 3:00 I can get back to sleep with yoga style breathing. More recently I also noticed that sometimes it isn't even necessarily the eating of food, but the swallowing of saliva that was needed. So, I will forcibly swallow saliva about 20 times and that seems enough to put me back to sleep. I have no idea why. It's hard to make those swallows at night, especially since Parkinson's seems to want to make my mouth drool saliva through the lips, rather than send it down the back of my throat where it used to flow. Probiotics: major improvements noted with all medications and supplements (for example: marked decrease in the time it takes to get C/L into the system, operating, and it's intensity and duration), constipation and a host of other issues. This boost in medication strength seems to have helped with my sleep--or is it that the probiotics help with sleep? I don't know how they work or much about probiotics, other than they have been an immense help to me. Ultimately, not one item has totally helped me, but rather each has been a baby step forward. Now I'm addicted to sleep and really feel the impact from a good vs. bad night sleep. Okay, probably went way overboard with this explanation, and probably missed the question completely. If so, I'm sorry. I blame it on Parkinson's (and the probiotics, and the sleep that free my mind and fingers enough to write). Cheers.