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Beau's Mom

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Beau's Mom last won the day on September 18

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About Beau's Mom

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  • Birthday 01/23/1953

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    Seattle, WA
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    Staying happy, joyous and free from limitations set by my own limited thinking. Even with PD, and sometimes because of PD, life can be grand!!!

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  1. Beau's Mom

    Good morning!!

    Linda, I'm glad you are back. Living alone with PD is difficult, lonely, and downright scary at times. Now that you're back online and healing from your medical emergency, we'll look forward to sharing the PD journey with you. Dianne
  2. Beau's Mom

    Good morning!!

    Thanks, Peace. The link works. I have Peter's book. It's required reading for all my new caregivers. Dianne
  3. Beau's Mom

    has anyone seen this?

    Yes, in my Facebook feed yesterday. I wonder what it can do for me. Five years ago my DAT Scan showed minimal uptake of dopamine bilaterally. I'm very happy that this new treatment is a ray of hope for many who are early in the progression of PD. I am grateful that eight years post diagnosis Duopa still gives me a decent quality of life. Dianne
  4. Beau's Mom

    New Caretaker/Drug Interactions

    Calliope, I suggest you post that last question to Dr. Okun in the Ask the Doctor section of the Forum. It seems reasonable to me that the first diagnosis could be reversed. However, I'm not a doctor. You could ask your question about slowly tapering off the Azilect to Mark, in the Ask the Pharmacist section. He is not only a pharmacist; he also has PD. Dianne
  5. Beau's Mom

    New Caretaker/Drug Interactions

    Calliope, my heart goes out to you. PD is a scary diagnosis for both the patient and the spouse, child, or parent. Please know that we are here for you as you and your husband adjust to this diagnosis. Dianne
  6. Beau's Mom

    Good morning!!

    What an amazing comeback, Texas Tom! Keep up the awesome work. Marcia, please, no more stairs. The last thing you need is a broken hip. As for you, jb, just keep being your wonderful self. Dianne
  7. Beau's Mom

    New Caretaker/Drug Interactions

    Calliope, please call the Helpline and ask for the Aware in Care Kit. It is free. It contains valuable information for physicians, anesthesiologists, and nursing staff about which meds can and cannot be used when a patient has PD. It has been a saving grace for me for both outpatient procedures and inpatient hospitalizations. You will have the weight of the entire Parkinson Foundation standing with you next time you have to deal with professionals who know nothing about PD. Blessings as you learn how to be the best possible advocate for your husband. Dianne
  8. Beau's Mom

    Good morning!!

    Thanks for the sentiments, jb. It feels scary to be an American right now. In other, more positive, news, I was blessed into the Lay Ministry at my church yesterday. It means I will be of service to the people and situations that come into my awareness by sharing Light, Life, and Love. I feel grateful and honored. Wishing you all an onward and upward week. Dianne
  9. Beau's Mom

    The PD Roller Coaster...

    Mac, otolorin is correct. Sinemet (carbidopa/levodopa) is the most common medication used to help determine a PD diagnosis. Your symptom progression sounds slow, which is good. Young Onset PD progresses more slowly than PD diagnosed after the age of 60. My symptoms began before I was 30. I wasn't referred to a neurologist until I was 57. I'm 65 now and still live alone, with some daytime help. So much more is known about PD, how to delay progression, and there are more treatment options available than seven years ago when I received my diagnosis. Be hopeful, and see a Movement Disorders Specialist ASAP. You will need a PT/OT evaluation soon so any deficits can be identified. Most MDS's are affiliated with medical centers that have all the specialists you need at the same location. You can call the Helpline Number at the top of this page to find the Parkinson's Center nearest you. Dianne
  10. Beau's Mom

    How does the Mask begin?

    Welcome, Barbara. Take several slow, deep breaths and relax your mind. Feeling overwhelmed and wanting to predict the future were two of my first reactions when I was diagnosed. I nearly drove myself and those around me crazy. The PD mask came on slowly for me. Three years before being diagnosed I noticed that my smile was lopsided; the right side of my face was tighter. My PCP checked my carotid arteries for blockages. He insisted that the tremor in my right hand was from too much thyroid medication. Your age at the time of diagnosis can be a predictor of how quickly PD might progress. If you are younger than 50, you would be considered Young Onset. People with YOPD generally have slower progression than those diagnosed after age 60. Exercise has been proven to slow PD progression. If you have an exercise regimen, stick to it. If you don't exercise, ask your neurologist or MDS (Movement Disorders Specialist) for a referral to a Physical Therapist and an Occupational Therapist specializing in PD. They will complete a thorough assessment to determine what your current deficits are and develop a personalized plan to address and even reverse those deficits. Living well with PD is possible, even probable. Stress makes the symptoms worse. We will offer our experience, strength, and hope. More questions will certainly arise. Feel free to ask questions of forum members and the professionals on this site. Dr. Okun and Mark, the pharmacist who also has PD, are always happy to help. I'm so glad you took the first step. You are among friends here. Dianne
  11. Beau's Mom

    Good morning!!

    LAD, you will be great! Your positive, can-do attitude will overcome the stage fright. You will bless many PWP and their families. jb, thanks for being here when the rest of us are overcome by apathy or inertia or life. I've been to RSB this morning and am ready for a shower, lunch, and a nap. Don't worry; be happy! Dianne
  12. Beau's Mom

    This & that!

    I participate in clinical trials to further the knowledge base of what works for PD, as a way of giving back to the experts who have helped me on my journey, and as a way to make a little extra cash. Dianne
  13. Beau's Mom

    Summer adventure season starting

    Welcome home, Stump! Dianne
  14. Beau's Mom

    Good morning!!

    Welcome to the best half of your life, LAD! Dianne
  15. Beau's Mom

    Phantom smells???

    Thank you, One Day at a Time, for introducing yourself to us. Welcome to the Forum! Dianne