Jump to content


  • Content Count

  • Joined

  • Last visited

Community Reputation

6 Neutral

About Annemarcel

  • Rank
    Advanced Member

Contact Methods

  • Website URL

Profile Information

  • Gender
  • Location
  • Interests
    Biking, sewing, reading, watching silly movies with my family.

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Annemarcel

    Nutrition interventions

    This has been an interesting thread. Hubby and I just started keto a few days ago. His plan is to drop 60 pounds and get off his statins, and my goal is to lose 25 pounds and see how this affects my symptoms. I need to be better about timing my meds with protein though. I've been a carb addict my whole life and I thought that giving up sugar and grain would be my demise. But I've lost my cravings after only 3 days. 😯 It's also been shown to help manage and sometimes heal autoimmune diseases (I've got Hashimoto's Thyroiditis) and just read this study that links autoimmune to PD. http://newsroom.cumc.columbia.edu/blog/2017/06/21/parkinsons-is-partly-an-autoimmune-disease-study-finds/ I'd love to find out that PD could be reversed with just diet, I wish. (*If wishes were fishes we'd all have a fry, if cow pies were biscuits we'd eat til we die). *from my husband's childhood. You're welcome.
  2. Annemarcel

    Medication/Food/Symptom tracker

    Not quite sure how to do this. I was hoping someone could show me how to upload the .xlsx file. I don't really trust Google's security when it comes to publicly sharing a link, but I'll message you and get you the link.
  3. Annemarcel

    Insulin growth factors

    My husband found an article about how insulin growth factors might be a more likely cause for brain disorders than protein aggregates. This article is very interesting but I don't understand all the science behind it. It mostly deals with Alzheimers but it also mentions that Parkinson's patients benefited from the study. https://theconversation.com/alzheimers-disease-why-insulin-is-a-new-suspect-97222 This seemed timely for me because last weekend (our daughter's wedding) was busy and stressful and I wasn't able to keep a regular diet. We weren't in a place where we had access to decent food, just refined carbs and lots of sugar. I didn't test myself but I could tell my blood sugar levels were all over the place. I'm not diabetic but I probably should get it checked. Sunday rolled around and I was having a lot of trouble moving and it lasted into Monday. From that experience, as well as my previous food diaries, I was able to connect the dots and realize that sugar had really taken its toll on me. I have always had a hard time avoiding breads and muffins and it makes me wonder how much insulin has really affected my brain. Do you think this could be a possible cause of Parkinson's?
  4. Annemarcel

    Medication/Food/Symptom tracker

    I've been looking for something that will help me track how food and medications are affecting me. I really want to know specifically how different foods affect my symptoms, and I also need to be better prepared for when I have my MDS appointments. I appreciated Mark Comes medication schedule in the Pharmacy forum, but it doesn't take into account what I'm eating and how I'm feeling. After months of scouring, I decided to take his and expound on it. So far, it's been nice to print several out each day and have them in different parts of the house so I don't have to carry it around with me. I'd like to share it here in case anyone else might find it useful but I'm not sure how to do that. Any techies out there willing to instruct me? I created mine in Google Sheets but I've also got it saved as an Excel file.
  5. First of all its nice to find old posts that help me know I'm not isolated and alone in this parkie thing, I could copy almost everyone's description and paste it here. Why some mornings it takes forever for meds to kick in is a mystery. Is it my sleep (or lack thereof), what I ate last night or just PD being indiscriminate? I rely on caffeine along with Sinement and Mirapex to keep me going through the day. I'm sure the caffeine adds to my sleep problems but sometimes you have to choose. Do I want to move now or sleep later? And after years of experimenting on myself, I can't drink carbonated soft drinks without feeling deep muscle and joint pain in my back and legs. Green tea and caffeine pills are ok. Maybe its the phosphoric acid or food coloring I work hard to stay cheerful and remind myself that things could be a lot worse. People seem to be amazed when I talk about PD because I treat it like an inconvenience. But they don't usually see me when I'm off, or feeling discouraged because I'm slow or stiff or bone achingly fatigued. So my day is starting again and I'm waiting for things to kick in. Dang. I've got places to go and things to see.
  6. Annemarcel

    Lurkers? Past posters? Where are you??

    New Normal, what a nice reply. Most often I post not expecting a reply from anyone because like noworky and Christie, I sometimes feel like I'm on the outside looking in. But no worries. Its in situations where I feel awkward that Im introverted. I actually love meeting new people and sometimes its fun to start a random conversation with a complete stranger. But as for the forum, I'd like to think that it does morph us into one big family, posters and lurkers. It helped me a lot before I decided to post to see other people dealing with the same issues I was. I hate being slow and rigid. It really cramps my style. I'm not done being active and creative, but I really have to schedule my chores and actives around my medication schedule. and my fragmented sleep can complicate things. Being tired seems to cancel out my meds like matter/antimatter. (I'm a nerd) Stress and hunger (low blood sugar) make things worse too but I think that's true for most PWP. Its cool you think I'm a young mother. I'm a young grandmother - 53. The kids in the photo are two of my four grandkids with another due this month. DH and I raised six kids (four are married, two have kids and two are still single) but they've all moved out. *whew* Yes, I understand. Same here, in Provo. I have a sister in Gilbert who moved last year from Mesa. Where are you? I had no idea that message came up for my blog. I'm pretty cheesed off about that. No, you're fine.. Its harmless. Its not about PD although I do talk about it. I posted a thread on here on the YOPD forum called My Facebook Post when Robin Williams died. This has been a good thread. Its given me incentive to throw myself back into the fray.
  7. Annemarcel

    Lurkers? Past posters? Where are you??

    Hi, I'm Marcie and I'm a lurker. "Hi, Marcie". I don't purposely avoid posting, I'm just an introvert and very busy. But I find myself coming here for info all the time. I can follow the logic - I need to be more vocal. Because if I'm looking for help, support and info, others are too. Even if its just to say, "I know what you're going through." fyi, I have akinetic rigid Parkinson's. Moving around and balance are big problems for me. I'm currently taking sinemet and mirapex, and caffeine is very helpful for me, as long as its not carbonated. It makes my joints ache.
  8. Annemarcel

    Drug Interaction warnings

    I'm currently taking: 25/100 carb/levo 5x day .50 mg pramipexole 1 mg Estradiol 112 mpg Levothyroxine 1x day 20 mg Fluoxetine 1x day Magnesium Oxide 250 mg 2x day 5 mg Melatonin each night According to drugs.com I have several "moderate" drug interaction warnings for fluoxetine and magnesium, fluoxetine and pramipexole, and others that can cause dizziness, drowsiness and impaired judgement. My doctor asked if I would be interested in trying Lyrica for pain but after checking the drug interactions, I'm wondering if having so many moderate warnings is safe. Lyrica has warnings with fluoxetine and pramipexole that can cause dizziness, drowsiness and impaired judgement. (I'm taking fluoxetine for mild depression). Is gabapentin the same as lyrica but just an earlier generation of the drug? And should PWP who have balance issues already be worried about all these warnings of dizziness? Are these warnings the same for all SSRIs or just Prozac? I'm mostly rigid with balance issues and have fallen a few times so this is something that really concerns me.
  9. Annemarcel

    Phytic acid pros and cons

    I'm thinking about taking the time and energy to make sprouted Ezekiel bread for the numerous health benefits. But I'm reading different opinions on phytic acid. While some sites claim it can bind minerals like Zinc, Calcium, Magnesium and Iron and prevent them from being absorbed, others say it has neuroprotective benefits. I'm always happier when my magnesium levels are higher and it seems the only way to get that is to take loads of supplements. I'm wondering if one reason I'm having trouble with magnesium levels is because I love love love bread. Is the phytic acid depleting my magnesium? Some sites say it causes inflammation, others say it reduces it. There are so many different pros and cons, I'd like to know what you think.
  10. Annemarcel

    Buzzy head

    This has been a problem for me for quite a while. Like Stevo said, sleep helps a great deal. But making sure that my diet is balanced and that I'm getting enough magnesium has been very helpful. Its not a cure all, but it has made a big difference for me. I've also found that the best kind of magnesium (for me anyway) is citrate. I hope he can find some relief! -Marcie
  11. I really appreciate this topic too. I've been chastised online before for commenting on my beliefs and faith in God. So you learn to keep certain things to yourself when actually they should be spoken from the rooftop. Let your light so shine..... My faith in God and our Savior isn't just something I do, its part of me and how I choose to live. We are God's hands on earth and you just don't know how your actions will affect someone. I would rather be a source of comfort and peace than to be a source of contention. It took me a bit of hard knocks to learn to control my temper when I was young, but its amazing how the gospel can change your heart.
  12. Annemarcel

    PJ Day...

    Thanks for reviving this! Even though I don't post as often as i feel i ought to, I love this group. When I find myself in need of my own PJ day for reasons that I can't quite put my finger on in that moment, its nice to come here and see that I am not crazy or paranoid! The other day I was leading a meeting with three other ladies who are aware of my PD, but since I don't have a tremor its not obvious. By the end of the session, I was hungry, stressed and my blood sugar was dropping. I was embarrassed at how I was losing my concentration and frame of mind and would make comments about how unorganized I was while my hands were shaking as I turned pages in my binder. I left feeling very self-conscious and awkward. I wish I'd had the presence of mind to realize the situation i was in before it got that bad. I should have had a some tea and cookies with me for starters, but I guess I'm wondering how you all have dealt with situations that might be similar.
  13. I'm glad you started this thread. I can relate to almost all of the comments. Electric toothbrush, check. Peeling potatoes "backwards", check. Typing with my left hand, check. Stash of sinemet by the bed for mornings and purse for little emergencies, check. Using a knife to cut something works if I anchor my arm and throw my body into it. And dictation on my smart phone is brilliant for texts, emails and notes. Yippee for technology!
  14. Annemarcel

    Dumb question...yawning

    I wouldn't be surprised if its a tell. For years, I've had a strong tremor on my affected side when I have a deep yawn. I didn't start noticing other motor symptoms until 2008. Its the only tremor I have. I'm mostly rigid, slow and unbalanced.
  15. Annemarcel

    My Facebook post

    Your responses have been heartwarming. Thanks everyone for being who you are. In a perfect world we wouldn't need to stress over little things that feel so big to us. But here we are. I'm glad we have this forum to share our struggles and successes.